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terryb1
@128128terry11t

Posts: 178
Joined: Jan 07, 2017

Traveling with the aerobika with or without a nebulizer

Posted by @128128terry11t, Apr 27, 2017

I am going away for 3 days. I use the aerobika with a nebulizer with saline once a day (should do it twice, but I am bad). Does anyone just bring the aerobika without the nebulizer when you go away? If so, do you still only bring aerobika if you go away for more than a few days?
Katherine: Want to take this opportunity to send you love, gratitude, and wishes for a swift and uneventful return to good health.

REPLY

Hi Terry,
I’m tagging @megan123 @lindam272 @david1952 @decosmo and @maryjo2sell on this new discussion to see if they have any insights about traveling with the aerobika with or without the nebulizer.
Safe travels, Terry. What other things do you consider when traveling?

Liked by Community

Terry,
I always take both. I rarely use the aerobika without the nebulizer first as the nebulizer thins the mucous so the aerobika can get the mucous that is deeper in our lungs. That’s my understanding at least. I have a note from my doctor that allows me to carry my breathing equipment on the plane as an extra bag. Here is a post from Katherine that I copied that might be helpful to you if you’re looking for a smaller nebulizer for travel. Linda
Reply by @katemn in MAC & Bronchiectasis on Tue, Mar 28

Reply
@maryjo2sell, Mary Jo, in checking my File Cabinet I found the below from when I was using a nebulizer for inhaled Amikacin. The daily Pari really wasn’t that bad .. but if you look at the link for the Pari I had for travel .. it really is small. I found both very usable .. and what saved my life was a hint I got which was to purchase a baby bottle sterilizer .. purchase extra nebulizer parts( where you breathe from) .. then I only had to clean the parts daily .. toss them into the sterilizer until I sterilized them weekly. It made the cleaning process much more bearable! Hope this is helpful! Hugs! Katherine

NEBULIZERS
PARI CUSTOMER SVC: 800-327-8632×1
DAILY USE:
1. PARI VIOS DELUXE SYSTEM (J-P310F35-LSD)
I found an EXCELLENT price for this unit at: http://justnebulizers.com/pari-vios.html?gclid=CN3otLjf5qsCFSkBQAodBW_SJw
BOUGHT FROM 1-800-998-7750 $55.95 .. good service and good price!

2. I PURCHASED .. SO WILL HAVE 7 NEBULIZERS-ONLY HAVE TO STERILIZE ONCE A WEEK!
PARI LC SPRINT Reusable Nebulizer Part No 023F35 $69.75
http://justnebulizers.com/pari-lc-reusable-nebulizer-set-buy-5-and-save.html

3. FOR TRAVEL I PURCHASED THE: PARI’s TREK S 47F35-LCS $73.00
http://justnebulizers.com/pari-trek-s-compact-compressor-combination-pack.html?gclid=Cj0KEQjwk-jGBRCbxoPLld_bp-IBEiQAgJaftTVwkbErO_u3ZOcbxz0IfnYrud-94KGyrVRGpPRuRnsaAmpa8P8HAQ

Many, many thanks.
Terry

@colleenyoung

Hi Terry,
I’m tagging @megan123 @lindam272 @david1952 @decosmo and @maryjo2sell on this new discussion to see if they have any insights about traveling with the aerobika with or without the nebulizer.
Safe travels, Terry. What other things do you consider when traveling?

Jump to this post

Haven’t used a mask yet but purchased the Cambridge (hope that’s the name) recommended by this forum. Have Airborne and Halo with me on plane. This is my first travel (only a few days) so haven’t had time to contemplate. Please see lindam272 for pertinent info from beloved Katherine. Posted right after this one.
Wishing once again Katherine all good wishes for recovery and health.
Terry

@colleenyoung

Hi Terry,
I’m tagging @megan123 @lindam272 @david1952 @decosmo and @maryjo2sell on this new discussion to see if they have any insights about traveling with the aerobika with or without the nebulizer.
Safe travels, Terry. What other things do you consider when traveling?

Jump to this post

I have dry bronchioectasis and NTM. For now am using just the aerobika. Tk it with me
Wherever I go. Don’t use a nebulizer yet, but maybe I should be using one….

@colleenyoung

Hi Terry,
I’m tagging @megan123 @lindam272 @david1952 @decosmo and @maryjo2sell on this new discussion to see if they have any insights about traveling with the aerobika with or without the nebulizer.
Safe travels, Terry. What other things do you consider when traveling?

Jump to this post

How often do you use the aerobika? How often do you clean and disinfect? What method(s) do you use to clean or disinfect? Wondering if it is an absolute necessity to use distilled water.
Thanks for all the help,
Terry

Terry,
I have A-typical cystic fibrosis along with bronchiectasis and MAC so I had a lot of mucous. It has cut down considerably since I started the MAC meds. I used to do a breathing treatment 2xday, but since about 3 months into my meds, I cut down to 1xday in the morning unless I feel I need a second one later in the day. I use a baby bottle sterilizer to sterilize my equipment every day. I soak everything in warm water for awhile, agitate, rinse and sterilize. I only sterilize the aerobika once a week. I wash the mouthpiece every day and sterilize with the rest of my breathing equipment, but the unit itself, I wash and sterilize every Sunday. I used to use distilled water but I don’t anymore. Don’t take what I do as gospel, because I don’t know that I’m doing it “right.” It works for me and I’m comfortable with it so that’s what I’m doing. I struggled a lot in the beginning boiling water to sterilize, sometimes forgetting it was on the stove (yikes!) and then talked to my respiratory therapist the first time I was going away for a few days and she put me on to the sterilizer. They have packets you can microwave your equipment in as well so it’s easy to carry with you when you travel. You can find it all on Amazon. Best, Linda

Terry,

Realized I missed a question – I use the aerobika every day right after my nebulizer. Linda

@colleenyoung

Hi Terry,
I’m tagging @megan123 @lindam272 @david1952 @decosmo and @maryjo2sell on this new discussion to see if they have any insights about traveling with the aerobika with or without the nebulizer.
Safe travels, Terry. What other things do you consider when traveling?

Jump to this post

Hi Terry. Mary Jo here. I have spoken with a rep from Aerobika. She advised me to use distilled water to clean. I ordered the product when it first came out and had some problems. The rep was very nice and sent me a new Aerobika that has always worked.
My question to you- what is a Cambridge? You commebted that you traveled with it. Hadnt heard of that before.
Fondly, MJo

@colleenyoung

Hi Terry,
I’m tagging @megan123 @lindam272 @david1952 @decosmo and @maryjo2sell on this new discussion to see if they have any insights about traveling with the aerobika with or without the nebulizer.
Safe travels, Terry. What other things do you consider when traveling?

Jump to this post

Hi, Mary Jo, Stepping in as I ordered one as well per Katherine’s post a while back. Here is the link on Amazon: https://www.amazon.com/gp/product/B01G7AJ67Y/ref=oh_aui_detailpage_o04_s00?ie=UTF8&psc=1 The only thing about this for me is that it makes my ears stick out like Dumbo. I’m sure there’s a way to fix it, but haven’t had a chance to figure it out yet. Linda

@colleenyoung

Hi Terry,
I’m tagging @megan123 @lindam272 @david1952 @decosmo and @maryjo2sell on this new discussion to see if they have any insights about traveling with the aerobika with or without the nebulizer.
Safe travels, Terry. What other things do you consider when traveling?

Jump to this post

I use it twice a day for 15 minutes. I boil water with a little dish soap and soak for 15 minutes. Then I dump boiled water and rinse with the remaining boiled water, and let air dry.

@colleenyoung

Hi Terry,
I’m tagging @megan123 @lindam272 @david1952 @decosmo and @maryjo2sell on this new discussion to see if they have any insights about traveling with the aerobika with or without the nebulizer.
Safe travels, Terry. What other things do you consider when traveling?

Jump to this post

Thanks to everyone who replied. This newbie is very grateful to my more experienced sisters and brothers. I use aerobika and nebulizer with saline once a day. I am supposed to use it twice a day but my pulmonologist said doing it twice instead of once is only “marginally helpful”. I am not recommending that; I just use that as an excuse when I don’t do it the second time. That was a great tip to boil water instead of using distilled. I have a follow-up question to that (sorry if silly): How long does it take for the boiled water to cool before you can use it to clean or rinse?
Again many thanks,
Terry

@colleenyoung

Hi Terry,
I’m tagging @megan123 @lindam272 @david1952 @decosmo and @maryjo2sell on this new discussion to see if they have any insights about traveling with the aerobika with or without the nebulizer.
Safe travels, Terry. What other things do you consider when traveling?

Jump to this post

I just saw that lindam 272 just gave the link to ordering it from Amazon. It is a mask and I find it to be quite comfortable. I just used it to fly to Atlanta. I turned to my fellow traveler lucky enough to be sitting next to someone who looked a little like a Martian and explained that I was not contagious and that my lungs were scarred and I had to guard against being infected by anyone on aircraft who was sick. She was very understanding. So not only did my ears stick out but I put on my reading glasses and that made me look like even more of an alien … but a friendly and funny looking one. Terry

@lindam272

Terry,
I have A-typical cystic fibrosis along with bronchiectasis and MAC so I had a lot of mucous. It has cut down considerably since I started the MAC meds. I used to do a breathing treatment 2xday, but since about 3 months into my meds, I cut down to 1xday in the morning unless I feel I need a second one later in the day. I use a baby bottle sterilizer to sterilize my equipment every day. I soak everything in warm water for awhile, agitate, rinse and sterilize. I only sterilize the aerobika once a week. I wash the mouthpiece every day and sterilize with the rest of my breathing equipment, but the unit itself, I wash and sterilize every Sunday. I used to use distilled water but I don’t anymore. Don’t take what I do as gospel, because I don’t know that I’m doing it “right.” It works for me and I’m comfortable with it so that’s what I’m doing. I struggled a lot in the beginning boiling water to sterilize, sometimes forgetting it was on the stove (yikes!) and then talked to my respiratory therapist the first time I was going away for a few days and she put me on to the sterilizer. They have packets you can microwave your equipment in as well so it’s easy to carry with you when you travel. You can find it all on Amazon. Best, Linda

Jump to this post

Do you recommend any particular baby bottle sterilizer to use with the nebulizer and mouthpiece daily and the aerobika unit itself weekly? Very appreciative for such specific and helpful advice. Thank you.
Terry

Terry, Here is the sterilizer that I use daily: Philips AVENT Microwave Steam Sterilizer https://www.amazon.com/gp/product/B007VBXKG2/ref=oh_aui_detailpage_o05_s00?ie=UTF8&psc=1
These are the sterilizing bags that I use when I travel: Philips Avent Microwave Steam Sterilizer Bags (pack Of 5)
https://www.amazon.com/gp/product/B00DUEFZK8/ref=oh_aui_detailpage_o04_s00?ie=UTF8&psc=1

Linda

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