Just diagnosed with Glomus Jugulare Paraganglioma Tumor: Advice?

Posted by saylor479 @saylor479, Jan 2 9:30am

Currently I'm at the Mayo Clinic in Phoenix. I'm newly diagnosed and with a large paraganglioma. Any information this type of brain tumor would be much appreciated. Thank you.

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I have a brain tumor a paraganglioma, that causes me to be nauseous and dizzy. How would one even approach a medical professional at the Mayo clinic or at my pain management Dr.? I am so scared of asking because when I asked my previous pain management dr about it he before my diagnosis, by the way, it took 4 years to get a brain tumor diagnosis with all the symptoms including massive headaches, and he old me if I use Any Marijuana he would drop me from his care. I have been taking nausea meds foe over a year .
How do you askabout it without sounding like a drug addict?. No offense.

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@saylor479

I have a brain tumor a paraganglioma, that causes me to be nauseous and dizzy. How would one even approach a medical professional at the Mayo clinic or at my pain management Dr.? I am so scared of asking because when I asked my previous pain management dr about it he before my diagnosis, by the way, it took 4 years to get a brain tumor diagnosis with all the symptoms including massive headaches, and he old me if I use Any Marijuana he would drop me from his care. I have been taking nausea meds foe over a year .
How do you askabout it without sounding like a drug addict?. No offense.

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Welcome to the Brain Tumor group, Saylor. What a journey you've had – four years to get the diagnosis of Glomus Jugulare Paraganglioma Tumor. I'm inviting fellow members @jls77 @kfs @mrruttinger1, who also have experience with this type of tumor.

You mentioned that you are at Mayo Clinic now. Is this your first time at Mayo? What care plan has been suggested? Were you able to talk to them about pain management and controlling the nausea long-term?

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