Meningioma showing signs of re-growth

Posted by mrector @mrector, Sep 20 9:26pm

I had 85% of my meningeoma removed in August of 2018. I saw my neurosurgeon by phone on September 15th, 2020. According to the MRI, the meningeoma is growing slightly.
I have noticed that I’m having dull aching headaches almost everyday for the past few months. I blamed them on tension headaches or being so hot outside. Not really thinking that it was tumor related. Also vision seems to be worse in left eye.
My neurosurgeon wants to wait and repeat the MRI on December 14, 2020. I see my neuro-opthamologist on October 15th to check peripheral vision. My question is should I request to be seen sooner than December since I’m having these symptoms? Or should I wait and see what the peripheral vision test shows in October and go from there?

You should be seen sooner—especially as you’re having symptoms!

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You definitely should get an earlier appointment. Listen to your body as it's warning you that something is going on. Good luck.

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Hi @mrector, I'm sorry to hear of the possible re-growth of the meningioma. Is the neurosurgeon aware of the headaches, their frequency and intensity?

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@colleenyoung

Hi @mrector, I'm sorry to hear of the possible re-growth of the meningioma. Is the neurosurgeon aware of the headaches, their frequency and intensity?

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Yes he's aware. He wants me to see my neuro-opthamologist first to check peripheral vision in left eye. I'm getting frustrated because I can't see him until October 15th. I've tried to get seen earlier but they are booked up. I guess that means it's okay to wait until then???

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Hi @mrector, I wanted to check in with you. How did the appointment with the neuro-opthamologist go? What did you find out?

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The appointment went well. Tumor is growing and I do have more vision loss in my left eye. Waiting on answers from my neurosurgeon to see if I am doing radiation or another surgery. I don't see the neurosurgeon until December 14, but trying to get in sooner.

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