Anyone have a hard time getting back to normal after ADT?

1.4 cm PRADS 4 lrsion 4+3, righr apex 3+4, left lateral 3+3. I realize there is risk but I do my PSA 3x a year. It is interesting that high doses of testosterone have been shown to kill androgen resistant prostate cancer.

I fall asleep quickly and then I'll wake up in a few hours. Sometimes I have to get out of bed to reset. But after that, I wake up constantly, often with pain. Sometimes I'll go right back to sleep, other times it's constant movement and somewhere I catch some sleep
I was on ADT (Lupron) 3 months. Third month he added Zytiga (Abiraterone Acetate). One pill, the two together, and I said no more. That was 9 months ago.
You have a device? I'm happy for you. Tell my doctor about it. He should know. I will not do this again.

@lacraig1

Unfortunately, you didn’t clearly say that your testosterone was still near zero but it appears that that’s what you meant. You also don’t mention your age with she’s a major factor and testosterone coming back.

After being on it for six months, it took my brother over a year before his hot flashes completely stopped and his testosterone came close to 200..

Here is some information from PCa Commentary about testosterone returning

Examples of the relationship of the duration of ADT exposure to subsequent recovery to their
original T levels after stopping ADT are as follows:
- After 3 - 9 months of ADT nearly all men fully recover by about 10 months;
- After 18 - 24 months of ADT only 60% fully recover by about 3 years; and
- After 36 months of ADT exposure only 50% fully recover by ~ 5 years.
It is clear that after receiving ADT for longer than 6-9 months many men never fully return to their
T baseline. This raises the very important question of whether it is safe to offer replacement
testosterone in symptomatic men who have been rendered persistently hypogonadal (<230
ng/dL).

If your testosterone is not returning after a year, you could get testosterone replacement therapy through injections. It has been shown in recent trials that it does not cause the PSA to rise. That can get you back to feeling normal again. Something to discuss with your doctor.

It took 18 months to recover after six months of ADT for my testosterone to cross back into the low normal range. I'm going to be 65. Mood improved first, then orgasms came back and then, after 18 months, I *finally* got a testosterone test in the normal range though still considerably below my pre-treatment T.

I REALLY wish I'd been informed of this beforehand as I just assumed it was like any other drug and wore off relatively soon after stopping it. All the side effects have gone away now except osteoporosis, which is permanent. I'm finally able to sleep through the night without medication which seems to have helped everything else.

The worst side effect for me is that I now have a belly despite really watching what I eat and working out six days a week. It's as if my entire body has been "reconfigured."

@jeffmarc Well, Jeff... I guess I’m probably an exception then; I used Orgovyx for 17 months—my testosterone level was 7 at the end of that—and I had an orgasm again two months later. I’m 71 years old.

There is no indicator of prostate cancer . My PSA is undetectable. He did a molecular test that as far as I could tell showed nothing. He says there's something somewhere.
AI says that this kind of pain is typical after radiation in the pelvic area.
But I also get pain in my shoulders too.
I only told AI about the pain in my buttock, or thigh or calf.

My oncologist says that T studies have not been done with aggressive cancer. He doesn't want me to have TRT. I'm seeing an endo Monday. About a month and a half wait. I took myself off ADT after 3 months. Nine months later, my sleep is still abysmal and I get frequent 'episodes.'