Gastroparesis with severe symptoms!

Posted by paarak @paarak, Jul 17, 2011

Does anyone have gastroparesis (low stomach emptying) and what are you doing to manage the problem. I was finally diagnoised with this condition this year after at least 3plus years of unexplained illness. Most of my symtoms were related to pain in the chest; deep back shoulder pain; lightheaded/dizzyness; I always felt like I was having a heart attack. But each time I went to the ER all the heart test came back fine and was told it was just acid reflux. I have been to cardiology; neuralogy; gastrology. I have had heart test; stress test;;thryrod; diabectic test; all kinds of blood test (only showed low vit D) MRI of brain; spinal tap. Finally had stomach emptying test in March - which showed 85% food still in stomach after 3 hours. I have had to switch to a no fat; low fiber diet - pretty much all liquid; soft (babyfood like) foods. If I do experiment and eat something that doesn't move through - then I end up with the deep shoulder pain; lighthed/dizziness;; numbness in the arms/fingers and over all wekness. In order to overcome this feeling - It seems to work by drinking just water /gator aid for at least a day. I just don't know if this all started by a nerve damage issue or if it is reverserble. I have done a lot of internet reading and there doesn't seem to be anything to do except eating habit changes. And no one else seems to associate the pain I have with the stomach - I never seem to have stomach pain - Only fullness; nausea; bloating/gas. I also am not diabetic. Which my understanding is a reason for this condition. If you have this condition - what are your symtoms and how are you managing? Thanks

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Hey there, does anyone have suggestions for what to do (or how to be creative) when your Dr puts you on an all-liquid diet and yet you can't tolerate even that due to the level of nausea/pain and the consequences of food rejection? I've tried broth, protein shakes, gatorade etc and my body seems to hate it all. I can't win this one, it seems. Also, does anyone ever have pain associated with Gastroparesis? Curious if I'm not the only one... thanks. Don't know what to do anymore ...I've got a lot of life ahead and fight within me still, whether my body agrees or not.

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Have they ever checked to make sure you don’t have a monster in your belly? That’s what I call a bezoar! I had that with stomach pain when I was first diagnosed with gastroparesis.

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