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Frequency of Pneumonia with Bronchiectasis

Posted by 1954cheryl @1954cheryl, Aug 29, 2022

Hi Everyone,
I am new to the group and was diagnosed with Bronchiectasis about a year ago. I have had pneumonia last Dec., this April and again in August. So far, that is 3 times in eight months. This time in Aug. I did better with getting an antibiotic sooner than the previous times, thanks to the wonderful advice from Queen City Walker. So, I'm still learning. I do have a first-time apt. with a bronchiectasis specialist next month. My question is to those with bronchiectasis - how often do you get pneumonia in a year's time? I am wondering is this my life now. I do lung clearance daily and use albuterol twice a day, also breo-ellipta for asthma. Btw, the last two times occurred around vacations.

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donnaturn | @donnaturn | Sep 1, 2022
In reply to @sueinmn "The "Medicare Team" at Blue Cross - listed on my insurance card. UGH!!! Life shouldn't be..." + (show)
@sueinmn

The "Medicare Team" at Blue Cross - listed on my insurance card.
UGH!!! Life shouldn't be this hard.
Sue

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I agree! I was told that it is covered by the person I talked with at Medicare, but only at Lincare and CVS in my area. Both a Lincare and a CVS pharmacist told me that it is not covered! I finally gave up and bought it with GoodRx.

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migizii | @migizii | Sep 3, 2022
In reply to @donnaturn "I, too, am new to your group and was told by several people that 7% saline..." + (show)
@donnaturn

I, too, am new to your group and was told by several people that 7% saline is not covered by Part B. I fortunately was able to get 180 vials at Walgreens for about $20 with a GoodRx coupon. Please let me know how you found out it is covered, although it sounds like it is actually more expensive using Part B! Thank you so much for all your helpful advice. Donna Turnbaugh

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In reply to @donnaturn….. I do not pay anything through pt. B for the 7% solution but my pharmacist had to talk directly with my pulmonologist’s office at Mayo for the script to be accepted by Medicare. It took a few tries for Mayo to get the script written exactly as it needed to be. Unfortunately, I don’t know the exact wording but maybe your pharmacist would?

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