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Trying to keep creatinine level down. Need food list that will help.
An update to an earlier post: after flu/cold and hospitalization in Dec, GFR tanked again, lower than it had last year when I had the flu then also. (Yes, I have a flu shot every year, go figure.) I have a neph appointment next week to re-do labs to see if GFR has improved any and to discuss options just in case. Sign me Disappointed Kamama94.
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I was sadden to hear you took flu shot and still was in H ostpital with the flu.but glad you recovered.its been a year for me.trying to eat right,no sodas,Gfr has not. Went back up I need to buckle down and do better..I need to learn what IAM doing wrong,thanks for postings about dairy, I don't eat right every day..I don't have a good routine of eating…
@kimberlyharris Thanks, you're quite right about meats, dairy, and legumes. And hydration.
As a vegan, I eat no animal products whatsoever – no meat, no dairy, no eggs, no honey, no gelatin. Andt since I have CKD, I'm a vegan whose only legumes are about 1/4 cup mashed chickpeas in something every couple of weeks. I use almond milk but not soy milk and don't use tofu. A few processed vegan items I buy do contain some soy or some pea protein but I've contacted all the manufacturers of the foods I eat for potassium, phosphorus, sodium, and protein content so I know I'm under the NIH recommendations for CKD patients for all of those.
In fact, I'm writing a cookbook for vegetarians who have CKD and diabetes and every ingredient either is kidney and diabetic friendly or in amounts which are kidney and diabetic friendly. When I have the rough draft finished, my primary will review it then submit it to the medical school for vetting. Then it will be free to everyone.
What I don't understand is that I'm doing everything right and I feel great but my labs are crap. Go figure.
Do you eat fish?..my neph told me it's ok..to eat fish..no beef he said…he told me low fat,low salt,no diet…but…I start sreaching on my own ways to keep my one kidney healthly..my D is low..my white count keep dropping..it's 3.4…now 3.6…I have had test but they can't find what's going on..I had kidney cancer in 1991..a kidney removed!I just heard yesterday that my Immune system may never be the same as I get older things are really going down hill..I ko you say you are doing all the correct things and labs are the same keep doing what you are doing,keep the faith,and hope.you never know! What good comes about!! Thanks for all your replies you are encouragement for me.
@bdade59, yes, fish is included on many renal diets. But I am a vegan so consume no animal products at all, meaning no dairy, no eggs, no meat of any kind, not even jello made with gelatin since that's an animal product. Doing better this spring than past winter although foot swelling increased and when neph put me on metolazone and I had a very bad tummy reaction to it and stopped it. You've had quite a time if you've had cancer and have only one kidney now.. Sounds like you're battling several issues. I send you positive vibes and healing thoughts!
Check out the MIND diet on Dr Axe's site. Aim for 10 fruits and vegetables per day. If your plate is very colourful you're on the right track.
you mentioned a gut problem with metolazone…would that problem be diarrhea …upset stomach?
@sissieann, SEVERE epigastric pain worsening over 4 days until it almost doubled me over, had an EKG to rule out cardiac. Stopped the metolazone and side effects resolved over 3 days. So now what do we do about pedal edema since I have CHF as well as CKD and COPD? It's a balancing act.
The MIND diet lists several foods that renal patients are told to avoid, among them whole grains and red meat.
I am sorry to hear of what you have been going thru. I hope you will see and feel improvement.
I have COPD also. The doctor had me taking lasix for 5 yrs. 3 tablets a day, all because 5 yrs ago i had CHF also.I cut out most of the salt and kept to my diet. Dr. would say sodium level too low and creatine levels to hig.I stopped taking 3 tablets a day when i kept getting food stuck in throat,Couldnt cough up mucous, That stuck too. Many times almost passed out. I believe my whole throat and esphsogus was dehydrated severely. Now i am just taking 1 tablet everyother day and what an improvement.I have never had any swelling anywhere in 5 yrs.I believe I was overdosed. P.S. My gp doesnt know yet Dont see them til May or June.
Some good news at last. GFR up from 24 in Feb to 33 yesterday. BUN down from 46 in Feb to 26 yesterday. CREAT down from 2.00 in Feb to 1.56 yesterday. Translation: kidney filtration almost back to where it was before extra diuretics dropped filtration rate. Happy improvements in BUN and Creatinine. Creatinine almost normal and potassium normal. Diabetes well managed with test results normal.
So my diet and kidney-friendly diabetic recipes are working! In addition, those of you who have shared with me and offered support are partly responsible for my kidney function improvement. Your encouragement, support and wisdom have been invaluable.
So happy to see such improved numbers! You inspire me truly to cope with this kidney-diabetes diet thing. Interesting aside: I've had IBSd for over 60 years. Only major change in my diet so far is eliminating flour because of sugar, as in cookies, crackers, etc., and now for a week, no diarrhea! We'll see what happens. 50 years ago, Hearing Institute told me my Menieres was caused by maybe a wheat allergy – thought they meant glutton, but maybe they meant wheat itself. Think if we live long enough, we'll figure it all out!!!!
That’s awesome news! I received good news this week too. Creatinine dropped again this time to 2.35 (was 3.90 one year ago), BUN dropped from 41 to 28 and GFR up to 29 (was 16 one year ago). My new Nephrologist says I’m right on the border of stage 3 (have been stage 4 for past year) but is willing to call it stage 3. All the result of a low oxylate diet for the past year and 3-4L of water a day. Transplant discussion is off the table. Feeling optimistic.
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