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Trying to keep creatinine level down. Need food list that will help.
@kimberlyharris Thanks, you're quite right about meats, dairy, and legumes. And hydration.
As a vegan, I eat no animal products whatsoever – no meat, no dairy, no eggs, no honey, no gelatin. Andt since I have CKD, I'm a vegan whose only legumes are about 1/4 cup mashed chickpeas in something every couple of weeks. I use almond milk but not soy milk and don't use tofu. A few processed vegan items I buy do contain some soy or some pea protein but I've contacted all the manufacturers of the foods I eat for potassium, phosphorus, sodium, and protein content so I know I'm under the NIH recommendations for CKD patients for all of those.
In fact, I'm writing a cookbook for vegetarians who have CKD and diabetes and every ingredient either is kidney and diabetic friendly or in amounts which are kidney and diabetic friendly. When I have the rough draft finished, my primary will review it then submit it to the medical school for vetting. Then it will be free to everyone.
What I don't understand is that I'm doing everything right and I feel great but my labs are crap. Go figure.
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@kamama94 How wonderful that you're doing a cookbook! Looking forward to receiving a copy; I find doctors to be woefully inadequate when it comes to diet! Hope an answer is forthcoming on why your labs are out of sync!
@trishanna Thanks. It will be awhile before it's ready. I'm fortunate in that my primary and my neph both are very diet-aware and when I told my primary about the cookbook he was delighted and offered to help. I will tell neph about it at my appointment next week and hope she's as supportive as my primary.
My son in law exercised (either ran miles or lifted weights every day), ate a normal American diet (not many boxed foods but lots of meat) was slim and he still had kidney problems. He had been in the hospital a couple of times because he couldn't urinate. The doctor told him that if he continued like that he would have to go on dialysis. My daughter started a vegan diet just because she read a book that said it was healthier. He said he would support her one meal a day but, after trying it for a couple of weeks, he found it wasn't too bad so became vegan himself. After 6 months when he had an appt. with his kidney doctor his kidney stats were better and now, after a year, his kidneys are normal. The doctor was very happy and when my son in law asked the doc why he didn't tell him how much better a vegan diet was the doctor replied that most people wouldn't change for very long. BTW he is a strict vegan while my daughter does eat fish now. There are a lot of vegan cookbooks out there and my daughter makes a lot of their food from scratch. She doesn't buy much of the frozen vegan meals.
Looking forward to your cookbook as I am Stage 3 CKD right now.
@richardkeenam I asked my doctor if he thought it would help if I drank more water and cut back on my protein (I'm a vegetarian but get plenty of protein from veggie combos) and he said it wouldn't hurt to try and might help. I read somewhere that 50 Gms protein or less daily for Stage 3 CKD.
Don't ask a doctor about nutrition. You can see a naturopath or dietician who will set you on the right path.
Thank heavens my primary and my neph are "up" on nutrition, renal diets, minerals (P, K, Na, etc.,) protein content, oxalates, etc. That's quite rare, I understand. Many docs don't study or research nutrition. I've done a lot myself so the three of us make a pretty good team.
How long can live with gfr 50?
How long can one live egfr 50?
My Urine Creatinine dropped from 37 to 27 in just the last week. I read that could be the cause of taking in less protein, or issues with the liver. I am at Stage 4 with a GFR of 29. Any thoughts from the group?
Hi, @randyr. have you had your serum creatinine tested as well as the urine creatinine and if so, does it also reflect a drop? Normal serum creatinine range is 0.55-1.02 mg/dl and normal urine creatinine ranges from 40 to 300. My serum creatinine is high at 2 mg/dl and my neph told me to restrict my protein to 35 grams or less daily hoping to get the level down. So it seems logical to me that eating less protein might very well decrease your urine creatinine. Has your care team done a liver panel? Maybe you can discuss what it all means with your doctor. Wishing you well!
Thanks. No liver panel yet and haven’t tested serum Creatinine recently. See new Nephrologist on Monday so will ask.
Let us know what you find out, @randyr. We care.
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