Mayo Clinic Connect
Trying to keep creatinine level down. Need food list that will help.
Liked by cehunt57, rachalanne Shelley
@richardkeenam I asked my doctor if he thought it would help if I drank more water and cut back on my protein (I'm a vegetarian but get plenty of protein from veggie combos) and he said it wouldn't hurt to try and might help. I read somewhere that 50 Gms protein or less daily for Stage 3 CKD.
Liked by cehunt57
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As we know nothing hurts to try it would have been so nice to hear the word Yes!I myself th ave stage3 I look for some kind of hope.my doctor said its alot they don't know about the kidneys..so as he said nothing hurts to try….do you have high cholesterol?..I need all the help I can get in that area too.
@bdade59 I have high cholesterol also, I take Lipitor and try to watch fats and to eat fiber (from fruits and veggies but not whole grains) so it's moderately well managed. On top of everything else, I also have diabetes and in many ways a diabetic diet conflicts with a renal diet. Whole grains are recommended on a diabetic diet but to be avoided on a renal diet. What a challenge! My dr. said me watching potassium, phosphorus and sodium has taken some strain off my remaining kidney and my GFR went from 28 to 37 in a few months but we did have to increase my insulin to maintain blood sugar control.
Liked by JK, alumni mentor, cehunt57, jlizzard
When I was waiting for transplant and was in Stage 5 kidney failure, I watched my phosphorus intake. That means no legumes, dairy or organ meat. I felt much better and was able to stay off dialysis while waiting for my transplant date.
Liked by Rosemary, Volunteer Mentor, JK, alumni mentor, cehunt57
Very helpful Thanks
@kimberlyharris, Welcome to Connect. Congratulations for being able to stay off dialysis before your transplant. I experienced acute kidney failure, and I was on dialysis before my transplant. I only knew to follow my nutritionist dietary suggestions, so I want to thank you for sharing youe expert experience.
How long did you maintain your limited phosphorus intake prior to your transplant?
How long ago did you receive your transplant? Do you still limit your phosphorus intake?
I want to invite you to the Transplant Discussion Group where there are members who are waiting for kidney transplants. . https://connect.mayoclinic.org/group/transplants/
Your experience can be helpful, and hopeful for those who are waiting for a kidney transplant. Would you share your story?
I look forward to meeting you there.
An update to an earlier post: after flu/cold and hospitalization in Dec, GFR tanked again, lower than it had last year when I had the flu then also. (Yes, I have a flu shot every year, go figure.) I have a neph appointment next week to re-do labs to see if GFR has improved any and to discuss options just in case. Sign me Disappointed Kamama94.
@rosemarya I may have to start dialysis within the year. Can you share what it was like for you? Clinically I know what the procedures are but I've always been on the nursing side of CKD. Details and personal experience would be very helpful to those of us who are looking at dialysis in the future.
I was only on dialysis for 8 weeks. (then I received my transplant). I needed dialysis because acute kidney failure related to my liver failure. I was in an emergency situation and critically ill at that time. This was sudden and unexpected and I never did learn much about the ins and outs of dialysis. I just did what I was given instructions to do by my medical team.
Some things that I remember are: limited liquid intake, sleeping during dialysis, hungry afterwards, limit salt and low potassium are some things that I remember. I also remembee the nurses talkimg about how much better patients do if they adhere to diet and maintain a healthy attitude and lifestyle. I wish that I could be more helpful.
There is some discussion about dialysis experiences in the Kidney Transplant discussion in the Transplant Group. It is a long discussion, but the dialysis discussions are in the first half of it.
Liked by JK, alumni mentor, cehunt57
Yes. Drinking water and reducing protein intake is easier on the kidneys. Also watch the phosphorus in your diet. Phosphorus is found in dairy, legumes, and organ meat. I was in Stage 5 kidney failure before my transplant. Cutting the phosphorus made me feel much better and, in my opinion, helped keep me off dialysis before surgery.
@kimberlyharris Thanks, you're quite right about meats, dairy, and legumes. And hydration.
As a vegan, I eat no animal products whatsoever – no meat, no dairy, no eggs, no honey, no gelatin. Andt since I have CKD, I'm a vegan whose only legumes are about 1/4 cup mashed chickpeas in something every couple of weeks. I use almond milk but not soy milk and don't use tofu. A few processed vegan items I buy do contain some soy or some pea protein but I've contacted all the manufacturers of the foods I eat for potassium, phosphorus, sodium, and protein content so I know I'm under the NIH recommendations for CKD patients for all of those.
In fact, I'm writing a cookbook for vegetarians who have CKD and diabetes and every ingredient either is kidney and diabetic friendly or in amounts which are kidney and diabetic friendly. When I have the rough draft finished, my primary will review it then submit it to the medical school for vetting. Then it will be free to everyone.
What I don't understand is that I'm doing everything right and I feel great but my labs are crap. Go figure.
@kamama94 How wonderful that you're doing a cookbook! Looking forward to receiving a copy; I find doctors to be woefully inadequate when it comes to diet! Hope an answer is forthcoming on why your labs are out of sync!
@trishanna Thanks. It will be awhile before it's ready. I'm fortunate in that my primary and my neph both are very diet-aware and when I told my primary about the cookbook he was delighted and offered to help. I will tell neph about it at my appointment next week and hope she's as supportive as my primary.
My son in law exercised (either ran miles or lifted weights every day), ate a normal American diet (not many boxed foods but lots of meat) was slim and he still had kidney problems. He had been in the hospital a couple of times because he couldn't urinate. The doctor told him that if he continued like that he would have to go on dialysis. My daughter started a vegan diet just because she read a book that said it was healthier. He said he would support her one meal a day but, after trying it for a couple of weeks, he found it wasn't too bad so became vegan himself. After 6 months when he had an appt. with his kidney doctor his kidney stats were better and now, after a year, his kidneys are normal. The doctor was very happy and when my son in law asked the doc why he didn't tell him how much better a vegan diet was the doctor replied that most people wouldn't change for very long. BTW he is a strict vegan while my daughter does eat fish now. There are a lot of vegan cookbooks out there and my daughter makes a lot of their food from scratch. She doesn't buy much of the frozen vegan meals.
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