Five years ago, I had to have an emergency hysterectomy with delivery [...]

Five years ago, I had to have an emergency hysterectomy with delivery of my son. A couple doctors told me that I am lucky to be alive after that procedure and have had more procedures in my abdomen area since that time. Around Christmas, my stomach swelled overnight to where I look 8 months pregnant. It is almost daily that someone asks when I am due. I have gained 45 pounds and went from wearing a size 8 to barely being able to button a 14. I have seen every doctor imaginable - have been to a colorectal surgeon, a GI doc, pelvic floor therapy, therapy to release scar tissue in my stomach, OB/GYN, urogynocologist, lymphedema specialist, you name it. My stomach never goes down at all - no matter if I prep for a test that requires me to drink tons of laxatives and use an enema. I have been tested for celiac disease. All tests come back normal. I am nauseous a lot, short of breath, beyond tired, have pelvic and back pain and pressure. My normally low blood pressure has shot up to staying around 156/94 so I am now on medicine to control that. I am a mother of 4 (who is not able to be a "normal" mom) and am struggling with my issues and not finding any relief. Every doctor I see agrees there is a problem, but no one knows what the issue is or seems to care how it is effecting my life. The most recent came back that it is probably just IBS. I have ran out of my FMLA and all of my leave at work and am on the verge of being let go because of not being able to work 8 hours a day. I do have an appt scheduled at the Mayo Clinic in September and have been gathering all of my records from various doctors, various tests, etc. I don't know where else to go and pray that going through the expense of getting to my appt. and staying for testing will work in my favor.