Fibromyalgia Was the most chronic pain you could imagine.

Posted by tresemae @tresemae, Jul 28, 2023

I started pain management not opioids anymore. I have been getting nerve blocks 2 and next they will do ablation of the nerves that were causing my pain. I can't tell you how good it has worked for me. I'm sitting here right now pain free finally. No more pain meds I sleep all night and wake with no pain, To all of you who suffer from this dammed thing I would suggest doing it. GOD I FEEL GOOD.

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I need to ask about something for anxiety. On top of the Fibro, I'm dealing with PMR and taking cortocosteroids which can induce anxiety as a side effect. I was on Buspirone prior to the PMR but that gave me regular achy headaches... no thanks to that. Any suggestions as to what to request?

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@tresemae

What is Topamax? What's it treat?

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Topiramate
Brand name: Topamax
Anticonvulsant and Nerve pain medication
It can treat and prevent seizures. It can also prevent migraine headaches.
From Cleveland Clinic:
Topiramate Tablets
Topiramate is a medication that treats epilepsy by preventing and managing seizures. This medication can also prevent migraine headaches. Topiramate works by calming overactive nerves in your body. Brand names for this medication are Topamax® and Topiragen®.

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@vellen

Topiramate
Brand name: Topamax
Anticonvulsant and Nerve pain medication
It can treat and prevent seizures. It can also prevent migraine headaches.
From Cleveland Clinic:
Topiramate Tablets
Topiramate is a medication that treats epilepsy by preventing and managing seizures. This medication can also prevent migraine headaches. Topiramate works by calming overactive nerves in your body. Brand names for this medication are Topamax® and Topiragen®.

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Ya I take gabapentin same thing. But before I started the nerve injections, I was on 60 mgs oxycodone a day. Thats how bad it was. Plus gabapentin, muscle relaxers, anxiety meds, God glad that;s over with.I suffered for 5 years. injections is the answer.

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@vellen

I need to ask about something for anxiety. On top of the Fibro, I'm dealing with PMR and taking cortocosteroids which can induce anxiety as a side effect. I was on Buspirone prior to the PMR but that gave me regular achy headaches... no thanks to that. Any suggestions as to what to request?

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Ya I couldn't tolerate Buspur. I'm trying a new one just started today. Not. sure everyone is different. But Ive tried a lot of them. At first I was getting prescribed the pams. I cut myself off those. Wicked coming off those. The Dr is trying me on TRANYCYPROMINE it was prescribed back in the 60's.

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@tresemae

Ya I take gabapentin same thing. But before I started the nerve injections, I was on 60 mgs oxycodone a day. Thats how bad it was. Plus gabapentin, muscle relaxers, anxiety meds, God glad that;s over with.I suffered for 5 years. injections is the answer.

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But to answer you the Gabapentin didn't do that. They prescribe Gabapentin for anxiety also.

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@tresemae

But to answer you the Gabapentin didn't do that. They prescribe Gabapentin for anxiety also.

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I didn't take the Busour very long once I realized that was where the headaches originated.
As far as anxiety, I ordered an otc gummy by Olly called GABA, L-Theanine. It seems to have decent reviews and doesn't interact with anything I take. I'll let you know if that helps.
The other drug I take for the fibro and have since 1998 is Tramadol. I've been able to take less since the last week or so which is nice.

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@vellen

I didn't take the Busour very long once I realized that was where the headaches originated.
As far as anxiety, I ordered an otc gummy by Olly called GABA, L-Theanine. It seems to have decent reviews and doesn't interact with anything I take. I'll let you know if that helps.
The other drug I take for the fibro and have since 1998 is Tramadol. I've been able to take less since the last week or so which is nice.

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Oooh that stuff gave me really bad anxiety. It was so bad I was ready to scream. But they wouldn't listen to me.

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@rwinney

@tresemae Hello, that is wonderful news, glad you are feeling relief. How long ago did you receive your nerve blocks? They can be hit or miss for some and of course each person's experience varies. Have you tried blocks in the past for your pain?

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I think your reffering to trigger point injections. I had those also. No those didn't work for me. This is nerve blocks, those work but are temporary. Blocks are mainly a test to see if the DR hits the right nerve. Which will give me temporary pain relief. meaning it was a positive test. If it was negative, he hit the wrong nerve. So mine was positive I am a candidate for the nerve ablation procedure to basically insert a needle into to the nerve and burn it,

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@irr4et

I desperately need an ablation of my left occipital nerve but I was told insurance (Medicare) requires two separate nerve block injections (lidocaine) and only if pain is blocked two times will Medicare pay. My problem is that Lidocaine leaks into all nearby tissues notth, south, east and west, and causes pain that goes on and on. So even if I have the ablation, angry tissues are going to continue to hurt 24/7. Did u not go through that?
How long after the ablation did it take for pain from the ablation (burning of the nerve) to go away?

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Don't know yet. Read about 2 weeks recovery. I'm not quite sure.

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@tresemae

Oooh that stuff gave me really bad anxiety. It was so bad I was ready to scream. But they wouldn't listen to me.

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I'm finding the otc GABA, L-Theanine gummies (Olly brand) definitely take the edge off of the anxiety and fast heartbeat I've had from taking corticosteroids. It's nothing like prescription strength meds and what I was trying to avoid so I'm happy with this.
ALSO, the Topamax is working great. Not only have I just had two very mild migraines in the past month compared to the usual 7-9 with a couple being really bad, I'm experiencing much milder Fibro aches and pains as well as less fogginess. I wish I'd heard about this medicine sooner. I'm still on Tramadol and getting off will be chore, that will have to wait until I'm clear of PMR. One major thing at a time.

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