Fibromyalgia Was the most chronic pain you could imagine.

Posted by tresemae @tresemae, Jul 28, 2023

I started pain management not opioids anymore. I have been getting nerve blocks 2 and next they will do ablation of the nerves that were causing my pain. I can't tell you how good it has worked for me. I'm sitting here right now pain free finally. No more pain meds I sleep all night and wake with no pain, To all of you who suffer from this dammed thing I would suggest doing it. GOD I FEEL GOOD.

Interested in more discussions like this? Go to the Fibromyalgia Support Group.

@tresemae

Find out if you can take Diclofenac it worked for me. It's a 2 pills a day.

Jump to this post

75 mgs 2 times a day. I would also take Gabapentin 800 mgs 3 times a day. But it was mostly the nerve injections that did the job. I still would ask your DR.

REPLY
@foxylloyd

I am wondering if I’m going to die from torture or from sleep deprivation. My pain from tingling and burning has become all over my body and I lay in bed screaming and crying in pain all night long. No amount of pain medication works anymore because it’s been progressively getting worse for about thirty years so I’m opioid intolerant. I started taking Vicodin over forty years starting with my father handing them out like candy for every scrape, toothache to menstrual cramp. At about thirty I started taking pamalor for nerve pain along with Cymbalta. I still don’t know what I’m going to do because I’m now in a nursing home without access to a lot of medical care. My only fear is that I’m going to die a slow painful death. Thanks for sharing this information with me. foxylloyd

Jump to this post

On Wed, Aug 2, 2023 at 5:09 AM Mayo Clinic Connect wrote:Thanks for the hug

REPLY
@foxylloyd

On Wed, Aug 2, 2023 at 5:09 AM Mayo Clinic Connect wrote:Thanks for the hug

Jump to this post

Your welcome. You need them, Are you going to ask your DR? About the meds?

REPLY
@foxylloyd

I am wondering if I’m going to die from torture or from sleep deprivation. My pain from tingling and burning has become all over my body and I lay in bed screaming and crying in pain all night long. No amount of pain medication works anymore because it’s been progressively getting worse for about thirty years so I’m opioid intolerant. I started taking Vicodin over forty years starting with my father handing them out like candy for every scrape, toothache to menstrual cramp. At about thirty I started taking pamalor for nerve pain along with Cymbalta. I still don’t know what I’m going to do because I’m now in a nursing home without access to a lot of medical care. My only fear is that I’m going to die a slow painful death. Thanks for sharing this information with me. foxylloyd

Jump to this post

Thanks for the hug. Sometimes I wonder if anyone even thinks about me as I lay here burning alive feeling like I’m being cremated and I’m not even dead yet. foxylloyd

REPLY
@foxylloyd

Thanks for the hug. Sometimes I wonder if anyone even thinks about me as I lay here burning alive feeling like I’m being cremated and I’m not even dead yet. foxylloyd

Jump to this post

I had those same feelings. I was so tired of the bed. I said that's it This is going to get fixed. And I started looking for a spine Dr . He is my savior. Quit thinking dead. And do something about it. I did it. I had to just flat get up.

REPLY
@foxylloyd

I’ve reading a lot about that in google on from news letters about neuropathy and was referred to this chat room but I have dragging this infliction along with me for over thirty years now and I’m opioid intolerant and they just make my pain worse. I’m now in a nursing home wondering if I’m going to die a slow miserable death because I don’t know how much medical treatment I can get to. Foxylloyd

Jump to this post

Are u in a state that has legalized Medical Cannabis? If so u sure would be eligible for it. Use the THC Indica at night and the 1:1 Sativa in the daytime by 2:30 pm. Can at same time, use a cannabis cream. Rotate the places where u apply it. I hurt like you do 22 Yrs. If I don’t take Lyrica plus use medical cannabis, I would have died by now. My adrenals are worn out also so I take Florinef prescription plus Pregnenolone and Adrenal Complex supplements for that problem. I have a Dr who is both Integrative and Functional so he knows all these helps. My heart goes out to you! Here’s more helps: sign up for Dr Gine ra Lipton’s emails. She has Fibro also. Is our nations top Fibro Dr. Has published two fabulous books: Fibromyalgia Manual and Fibro Food Formula. Both are on Amazon. She explains why Fibro causes all our pains and digestive issues and what to do about them. So good!!!

REPLY
@irr4et

Are u in a state that has legalized Medical Cannabis? If so u sure would be eligible for it. Use the THC Indica at night and the 1:1 Sativa in the daytime by 2:30 pm. Can at same time, use a cannabis cream. Rotate the places where u apply it. I hurt like you do 22 Yrs. If I don’t take Lyrica plus use medical cannabis, I would have died by now. My adrenals are worn out also so I take Florinef prescription plus Pregnenolone and Adrenal Complex supplements for that problem. I have a Dr who is both Integrative and Functional so he knows all these helps. My heart goes out to you! Here’s more helps: sign up for Dr Gine ra Lipton’s emails. She has Fibro also. Is our nations top Fibro Dr. Has published two fabulous books: Fibromyalgia Manual and Fibro Food Formula. Both are on Amazon. She explains why Fibro causes all our pains and digestive issues and what to do about them. So good!!!

Jump to this post

Can't tolerate Cannabis anything. I have anxiety and it just intensified it . But ya I have the Lyrica also it has been prescribed to me but it is new and I have no idea how well it works. Just waiting for my nerve ablation procedure. And hoping to be medicine free. We will see.

REPLY
@irr4et

Are u in a state that has legalized Medical Cannabis? If so u sure would be eligible for it. Use the THC Indica at night and the 1:1 Sativa in the daytime by 2:30 pm. Can at same time, use a cannabis cream. Rotate the places where u apply it. I hurt like you do 22 Yrs. If I don’t take Lyrica plus use medical cannabis, I would have died by now. My adrenals are worn out also so I take Florinef prescription plus Pregnenolone and Adrenal Complex supplements for that problem. I have a Dr who is both Integrative and Functional so he knows all these helps. My heart goes out to you! Here’s more helps: sign up for Dr Gine ra Lipton’s emails. She has Fibro also. Is our nations top Fibro Dr. Has published two fabulous books: Fibromyalgia Manual and Fibro Food Formula. Both are on Amazon. She explains why Fibro causes all our pains and digestive issues and what to do about them. So good!!!

Jump to this post

Yes I am but my condition has put me in a nursing home where I don’t know if they even allow it. I was looking for something along the lines of vitamin B9 and B12 or medication that was recommended to help heal the damaged nerves.

REPLY

Bless your heart! It’s important to know that Fibro doesn’t cause nerve damage. But prior nerve damage sure can ofcourse cause pain and be a part of causing Fibro, bc there’s only so much pain the Nervous System will tolerate. One D-L-Phenylalanine capsule plus one Turmeric capsule is a good pain reducer. CBD Pain Cream called Painless-X by Resonant Botanicals is also a great help. Stay limber. Think about Kittens. Be sure there is B12 in your multivitamin. Sending you love and prayers today Foxloyd.

REPLY
@foxylloyd

Yes I am but my condition has put me in a nursing home where I don’t know if they even allow it. I was looking for something along the lines of vitamin B9 and B12 or medication that was recommended to help heal the damaged nerves.

Jump to this post

Continuing my just posted message, a Butrans pain patch would work well for you. It requires a prescription. Stay away from sweet foods, even fruits, beverages, caffeine, dairy and gluten (in wheat, Barley and Rye), candy, chocolate, citrus, msg, food dyes, lectins and night shade plants and u will feel much better. I promise you! If u eat oatmeal or steel cut oats, be sure I says Gluten Free on the bag. A nut may increase pain so get off all nuts 2 weeks then try them one type at a time and keep a journal about it. Record what happens when u add bk a nut. Sometimes a certain ingredient on food labels causes pain. With me it’s Sunflower Oil, msg (has many names so Google Names of MSG) and Google list of Histamine foods so u can avoid pain better. Take Omega 3 oil capsules if ok with ur Dr and use Extra Virgin Olive Oil and Avocado Oil if u can. These healthy fats will help ur nerves.

REPLY
Please sign in or register to post a reply.