Fibromyalgia Was the most chronic pain you could imagine.

Posted by tresemae @tresemae, Jul 28, 2023

I started pain management not opioids anymore. I have been getting nerve blocks 2 and next they will do ablation of the nerves that were causing my pain. I can't tell you how good it has worked for me. I'm sitting here right now pain free finally. No more pain meds I sleep all night and wake with no pain, To all of you who suffer from this dammed thing I would suggest doing it. GOD I FEEL GOOD.

Interested in more discussions like this? Go to the Fibromyalgia Support Group.

I totally agree I felt like a different person, now to wait and see if it lasts 3 months or 18

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@jwkelly72

How often do you do these treatments.

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It can last 3 to 18 months. I had six in my lower back and three in my neck

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@foxylloyd

I never heard of that and I just got out of the hospital and they are going to start giving me B-12 vitamins to treat my nerve damage. I wish I knew what you had done I can’t imagine being pain free and able to sleep. Congratulations

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Pain Management non medication the Dr does injections on the nerve 2 times. Then go's in and basically burns the nerve. I'm already pain free. But after 5 years of being on opioids. I just said enough. And I can't wait for my last procedure. It hurt a bit but way worth it. Find a non medication pain management Dr.

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@leannestork

It can last 3 to 18 months. I had six in my lower back and three in my neck

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I know hope it last 2 years. I guess it depends on how fast the nerve grows back. Good luck to you.

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@tresemae

Pain Management non medication the Dr does injections on the nerve 2 times. Then go's in and basically burns the nerve. I'm already pain free. But after 5 years of being on opioids. I just said enough. And I can't wait for my last procedure. It hurt a bit but way worth it. Find a non medication pain management Dr.

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I am wondering if I’m going to die from torture or from sleep deprivation. My pain from tingling and burning has become all over my body and I lay in bed screaming and crying in pain all night long. No amount of pain medication works anymore because it’s been progressively getting worse for about thirty years so I’m opioid intolerant. I started taking Vicodin over forty years starting with my father handing them out like candy for every scrape, toothache to menstrual cramp. At about thirty I started taking pamalor for nerve pain along with Cymbalta. I still don’t know what I’m going to do because I’m now in a nursing home without access to a lot of medical care. My only fear is that I’m going to die a slow painful death. Thanks for sharing this information with me. foxylloyd

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@tresemae

Pain Management non medication the Dr does injections on the nerve 2 times. Then go's in and basically burns the nerve. I'm already pain free. But after 5 years of being on opioids. I just said enough. And I can't wait for my last procedure. It hurt a bit but way worth it. Find a non medication pain management Dr.

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I’ve reading a lot about that in google on from news letters about neuropathy and was referred to this chat room but I have dragging this infliction along with me for over thirty years now and I’m opioid intolerant and they just make my pain worse. I’m now in a nursing home wondering if I’m going to die a slow miserable death because I don’t know how much medical treatment I can get to. Foxylloyd

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Having Lyme disease for over 30 plus years there is an inflammatory effect that settles into the body whether it be from infection or stress or a traumatic situation involving all three.
I have yet to find - especially here in the Tampa/Clearwater area of Florida a single doctor that can put two plus two together regarding this tick borne disease.
We lived in NY for 40 yrs and as the tick situation took over in epidemic proportions, Doctors finally had to admit they were dealing with a very complicated and extensive disease. **Epstein Barr and **fibromyalgia are two associated side effects or conditions after long periods of no treatment or treatment that will not work for the patient.
I hope to find doctors who will also deal intelligently with the lyme arthritis situation and not grab for the scalpel asap. Since having COVID, and a relapse in my lyme care and a hip replacement, I’ve found how predictable a “flare” is in my lyme disease symptoms. including fibromyalgia. I am still showing positive for two coinfections within lyme, and to be very honest -LYME DISEASE HAS ARRIVED IN FLORIDA / and it’s the real thing. I’ve tried to tie in infectious disease and the pain of fibromyalgia in this message. It’s very important to have a well rounded and intelligent willing doctor to look at all aspects of care.
S Borton
Clearwater Florida

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@foxylloyd

I am wondering if I’m going to die from torture or from sleep deprivation. My pain from tingling and burning has become all over my body and I lay in bed screaming and crying in pain all night long. No amount of pain medication works anymore because it’s been progressively getting worse for about thirty years so I’m opioid intolerant. I started taking Vicodin over forty years starting with my father handing them out like candy for every scrape, toothache to menstrual cramp. At about thirty I started taking pamalor for nerve pain along with Cymbalta. I still don’t know what I’m going to do because I’m now in a nursing home without access to a lot of medical care. My only fear is that I’m going to die a slow painful death. Thanks for sharing this information with me. foxylloyd

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Thanks for the hugs. Foxylloyd

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@foxylloyd

Thanks for the hugs. Foxylloyd

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I would search for a pain management DR in your area and find out if they can help you. I was in and out of bed because of the pain so I know how you feel.

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Find out if you can take Diclofenac it worked for me. It's a 2 pills a day.

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