Fibromyalgia pain

Posted by clownscrytoo @clownscrytoo, Oct 22, 2016

Is there anyone here that suffers from fibro? I had the ‘tender spot test’ several years ago and I had 17 out of the 18. I try my hardest to get through the pain with my 4 hydrocodone/acetaminaphine pills a day, Tiger Balm rubbed into areas that are the worst, light exercises, and distracting myself with hobbies or chores, etc; but there are many occasions where none of that helps and I spend most of the day holding down the couch, getting up about 30-45 minutes after that, walking/standing around the house for 15-20 minutes, or sitting for about 15-30 min. I do not drive and my husband works 6 days a week, overtime almost every day, so I’m alone a lot. my wonderful husband is very supportive and I am very grateful for that, but my only other friends are online, out of state, and I will probably never even get to meet them. when extreme pain takes over, my depression takes over and it is so difficult to find hope. does anyone have tips for fibro, whether diet or over-the-counter meds (I’ve tried them all, I think), or anything, besides hobbies and such? I’ve tried every over-the-counter med, and the Tiger Balm does cover some of what the pain pill doesn’t help, but I’m hoping one of our members might have some knowledge that could help. I’d really appreciate it.
hugz,
Clownscrytoo

@oregongirl

I know as my legs can only take so much. My kids are on me constantly about walking. They brag about my DIL’s mother and how she walks miles everyday. It is horrible to be compared to a women who does not have RA and Fibro We don’t bleed so we are not ill? Its so hard to get people to understand that you are not faking an illness. I stopped taking my son to my appts. He interfers with my conversation with the doctor.

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Just had some or lunch added mushrooms and garlic ,mmm mmm good

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@robbinr

Annoying that is! But do you have someone else to go with you? I know when I go to the Doc, I immediately space out, start thinking of worse-case scenarios, and don’t hear a word she says. Another “Quiet” person to bear witness is a good thing. I took my cousin to a Fibro clinic and her mother, my aunt, insisted on going along. Then she proceeded to tell the Doctor about her illnesses. My cousin, the Doc, and I just looked at each other over her little head and agreed that Auntie D needed to wait outside:} But I took copious notes. Even taking a small tape recorder can be helpful.

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Happy for you ,we have to keep fighting and not give in to our diseases whatever they maybe but ,a positive attitude ,healthy eating and good quality water ,some exercise and believe in God are creater is the key.I can tell you are this kind of girl Keep on ,keeping on.

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@sandytoes14

I was diagnosed in 2012 with Fibro. Over the years I have been on different prescriptions. For a while now I have been taking 60 mg Cymbalta and 150 mg Lyrica. It works well to help with most of the pain but of course I have flare ups, especially when the weather turns. Lately I have been suffering from the dreaded Fibro Fog. It gets so bad that I want to cry. I get frustrated when I talk and can’t think of what I want to say. Sometimes I even lose my train of thought mid sentence. I don’t know how to describe the feeling other than my thoughts are no longer clear but like I have stepped into a cloud. A few years ago I had a complete neurological workup. The only thing that was shown were tremors.
Do you feel like this? What do you do when this happens?

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Hi randee, I am also a newbie. I got a bundle of problems 20 years ago. Thyroid and adrenals failed and I could not even walk. My legs were so weak that i collapsed. I was only 40 when this happened. I am 60 now. Your story sounds a bit like mine. Most of my pain is numbness and tingling that causes weakness in my calves. I too have to take Norco and Ultram to numb my legs so that I can function at 20 percent of what I used to. I know 100% what u mean about doctors. Here on Long Island 99.9% of pain doctors won’t see me due to the opoid epidemic so my mother’s dr. in the city writes me the pain meds. But she doesn’t understand what is going on. I was given a diagnosis of fibro about a year ago from a rheumatologist — she ran lots of blood work and after she discounted lupus and MS she didn’t want to see me again???? They write u off very fast these dr’s. I also have extreme insomnia and I am exhausted most days leaving me almost house bound and I have no one to help me. When I feel good I have to do as many errands as possible or I won’t have food here. I have 2 little doggies and they are my life. But I worry about getting them healthcare if they need it. I don’t know how u can live without the pain meds. Sorry about your mom and son and everything else but I wanted to let you know that you are not alone. No one asks for any of this – I read that fibro patients have bad childhoods. I know I did, perhaps the stress from that contributes to a weak constitution. I know I was on a diet at age 10 and could never lose weight due to a weak thyroid. Who really knows?

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@sandytoes14

I was diagnosed in 2012 with Fibro. Over the years I have been on different prescriptions. For a while now I have been taking 60 mg Cymbalta and 150 mg Lyrica. It works well to help with most of the pain but of course I have flare ups, especially when the weather turns. Lately I have been suffering from the dreaded Fibro Fog. It gets so bad that I want to cry. I get frustrated when I talk and can’t think of what I want to say. Sometimes I even lose my train of thought mid sentence. I don’t know how to describe the feeling other than my thoughts are no longer clear but like I have stepped into a cloud. A few years ago I had a complete neurological workup. The only thing that was shown were tremors.
Do you feel like this? What do you do when this happens?

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Foxyjune…don’t give up. I am so sorry you have this affliction. If you are a member of a church, you CD get help. You can order groceries on line. Call Sr center for meals on wheels. They bring weekend food with Fri delivery. You are not asked to pay but it helps them if you do. I wish you well I will pray for you right now.

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@sandytoes14

I was diagnosed in 2012 with Fibro. Over the years I have been on different prescriptions. For a while now I have been taking 60 mg Cymbalta and 150 mg Lyrica. It works well to help with most of the pain but of course I have flare ups, especially when the weather turns. Lately I have been suffering from the dreaded Fibro Fog. It gets so bad that I want to cry. I get frustrated when I talk and can’t think of what I want to say. Sometimes I even lose my train of thought mid sentence. I don’t know how to describe the feeling other than my thoughts are no longer clear but like I have stepped into a cloud. A few years ago I had a complete neurological workup. The only thing that was shown were tremors.
Do you feel like this? What do you do when this happens?

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Hi Sandytoes14, I was given cymbalta by my psychiatrist but an endo was trying to transition me onto synthroid from natural thyroid – which was a big bust for the 4th time so I haven’t tried the cymbalta yet. I am afraid of gaining more weight. Since my thyroid failed I have gained alot of weight. I can’t lose weight cause it is 100% hormonal. Have you gained weight from cymbalta? I was told not to try lyrica as that was also a weight gainer. I could literally starve myself but gain water weight. There have been times when I haven’t eaten anything due to a flu and I don’t lose weight. Now my endo won’t even return my phone calls because I could not stay on the synthroid. It is really sickening with what goes on with doctors. I would do anything to ease my thyroid / fibro symptoms but about 10 percent of thyroid patents can’t metabolize synthroid. Oh I also have tremors like you in my legs and hands. I don’t know what to do. I have bought hemp gummies but not sure if they are doing anything.

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@sandytoes14

I was diagnosed in 2012 with Fibro. Over the years I have been on different prescriptions. For a while now I have been taking 60 mg Cymbalta and 150 mg Lyrica. It works well to help with most of the pain but of course I have flare ups, especially when the weather turns. Lately I have been suffering from the dreaded Fibro Fog. It gets so bad that I want to cry. I get frustrated when I talk and can’t think of what I want to say. Sometimes I even lose my train of thought mid sentence. I don’t know how to describe the feeling other than my thoughts are no longer clear but like I have stepped into a cloud. A few years ago I had a complete neurological workup. The only thing that was shown were tremors.
Do you feel like this? What do you do when this happens?

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I’ve been on Cymbalta for over 10 years, and had not noticed that it promotes weight gain. But then again, I’ve gained 20 pounds in the last year, which has made everything more difficult. Maybe it IS the Cymbalta, or the other combinations of meds that I use to get a measly 5-6 hours of uninterrupted sleep. I suggested that my PCP and my Rhuemy (who has been useless) sit down together and talk about a comprehensive plan, but that was vetoed. My hands and legs always shake and always have. Didn’t know it wasn’t normal. The Gummys won’t hurt even if they don’t help.

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@sandytoes14

I was diagnosed in 2012 with Fibro. Over the years I have been on different prescriptions. For a while now I have been taking 60 mg Cymbalta and 150 mg Lyrica. It works well to help with most of the pain but of course I have flare ups, especially when the weather turns. Lately I have been suffering from the dreaded Fibro Fog. It gets so bad that I want to cry. I get frustrated when I talk and can’t think of what I want to say. Sometimes I even lose my train of thought mid sentence. I don’t know how to describe the feeling other than my thoughts are no longer clear but like I have stepped into a cloud. A few years ago I had a complete neurological workup. The only thing that was shown were tremors.
Do you feel like this? What do you do when this happens?

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When will they approve Marijuana through out our Country. It is the drug companies holding it back. I move from Oregon where there is a shop on every corner. The first time I went in there, I saw more SENIOR than younger people. They separate the medical from the Recreational. The medical is stronger. My friend who has MS has almost a normal life. Actually two friends, they transferred from Calif to Oregon so her could get the medical Marijuana.

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@sandytoes14

I was diagnosed in 2012 with Fibro. Over the years I have been on different prescriptions. For a while now I have been taking 60 mg Cymbalta and 150 mg Lyrica. It works well to help with most of the pain but of course I have flare ups, especially when the weather turns. Lately I have been suffering from the dreaded Fibro Fog. It gets so bad that I want to cry. I get frustrated when I talk and can’t think of what I want to say. Sometimes I even lose my train of thought mid sentence. I don’t know how to describe the feeling other than my thoughts are no longer clear but like I have stepped into a cloud. A few years ago I had a complete neurological workup. The only thing that was shown were tremors.
Do you feel like this? What do you do when this happens?

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I agree. I live in N.Y. where its been legalized but its a long waiting list to actually get to see the Dr. Its also nearly unaffordable. I wish the insurance companies would pay for medical marijuana. We all know its better for us.

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@sandytoes14

I was diagnosed in 2012 with Fibro. Over the years I have been on different prescriptions. For a while now I have been taking 60 mg Cymbalta and 150 mg Lyrica. It works well to help with most of the pain but of course I have flare ups, especially when the weather turns. Lately I have been suffering from the dreaded Fibro Fog. It gets so bad that I want to cry. I get frustrated when I talk and can’t think of what I want to say. Sometimes I even lose my train of thought mid sentence. I don’t know how to describe the feeling other than my thoughts are no longer clear but like I have stepped into a cloud. A few years ago I had a complete neurological workup. The only thing that was shown were tremors.
Do you feel like this? What do you do when this happens?

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Oh yes. Kradom

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Hello foxyjune. Im lioness a retired nurse Im so sorry for what you are going through. They have legalized Marijuana here in Calif now for recreational and medical. That’s the reason I don’t take perscreption meds —to many side effects instead I have studied holistic herbs,homeopathtic med I have fibromyalgia 30 yrs diagnosed and have been having all symptoms the burning pain ,numbness,tingling muscles pain. After a lot of research I found what works for me is Magnesium about 1000 mg a day as we age our bodies are depleted of minerals not only with age but the soil is depleted so go organic if you can. I also take for sleep Calcium at night with Magnesium and Vit D3 5000 units. Within the mag is some other things and its called Fibro Malic from Vitacost or Amazon. I use a tens unit for muscle tightness. Ice ,heating pad and pace yourself. If you can find a warm water pool and do a little exercising All this has helped me . I understand you have more problems then me but these are suggestions I use that help me. Since I have a fractured back I cant do heavy work so have a housekeeper that comes in. But you can sign up for Meals on Wheels that will will help you . B less you hope you get some relieve.

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@sandytoes14

I was diagnosed in 2012 with Fibro. Over the years I have been on different prescriptions. For a while now I have been taking 60 mg Cymbalta and 150 mg Lyrica. It works well to help with most of the pain but of course I have flare ups, especially when the weather turns. Lately I have been suffering from the dreaded Fibro Fog. It gets so bad that I want to cry. I get frustrated when I talk and can’t think of what I want to say. Sometimes I even lose my train of thought mid sentence. I don’t know how to describe the feeling other than my thoughts are no longer clear but like I have stepped into a cloud. A few years ago I had a complete neurological workup. The only thing that was shown were tremors.
Do you feel like this? What do you do when this happens?

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I agree 100 percent. I think medical marijuana would help, not hurt. In NY it is hard to get it but I will start the process and maybe I will get lucky. Thanks for your input.

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@sandytoes14

I was diagnosed in 2012 with Fibro. Over the years I have been on different prescriptions. For a while now I have been taking 60 mg Cymbalta and 150 mg Lyrica. It works well to help with most of the pain but of course I have flare ups, especially when the weather turns. Lately I have been suffering from the dreaded Fibro Fog. It gets so bad that I want to cry. I get frustrated when I talk and can’t think of what I want to say. Sometimes I even lose my train of thought mid sentence. I don’t know how to describe the feeling other than my thoughts are no longer clear but like I have stepped into a cloud. A few years ago I had a complete neurological workup. The only thing that was shown were tremors.
Do you feel like this? What do you do when this happens?

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Hi robbinr, if you don’t mind me asking what do you take to help you sleep? If you have been on Cymbalta for 10 years and this year you gained 20 lbs. then perhaps it isn’t the Cymbalta for you?

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