Fibromyalgia Medication and treatment

Posted by sundance6 @sundance6, Jun 1, 2019

I have been on the Mayo Connect for over six months. My symptoms point to the umbrella of things, Lyme disease, West Nile, Fibromyalgia, Lupus, and Chronice Fatigue. I have seen every doctor in my hospital system. Had every test and scans done. JUST MADE MORE $$ FOR THE HOSPITAL SYSTEM!
Yesterday I finally went to a Rheumatologist for a consultation on a blood test. When I expalined what I had been going through the last ten months he finally gave me a diagnoses. (First one after 10 months and 10 doctors.)There is a small chance I may have Lyme Disease, but to late to tell. He said he was sure it is Fibromyalgia. He said I should have been directed to him when it first started. (Again as many of you agree they put you through unecessay test and perscribe pills to make $$ for the industry.
So now that I fianally have some direction to move, I need some advice, information, what helps, what causes it and such. He said he feels mine is in the area of sleep. Does this make sense to anyone? He is sending me to a sleep clinic for evaluation.
I know I have seen many postings about Fibromyalgia, but I guess it is the “Fibro Fog” that dosen’t remember all.
Can someone lend me some advice.
I had been on Gabretentian but the side effects were worse than my pain! We are tryng Cymbalta. Can anyone let me know how it has worked for them. Anything to watch for?
As always this site is the Best! People are so honest and open about helping.
Thanks,
Sundance
🙂

Morning…….I have numerous health issues and one is fibromyalgia . Besides the osteoarthritis and open heart surgery and mostly the meds the pain was to the point of little or no sleep. CBD oil which I spray as often as needed can be purchased over the counter has helped ease some of the pain. I am also on medical cannabis and the product I purchased from the dispensary is a miracle…..I can finally get relief and sleep, which is needed for one's body to heal.Always ask your doctor before taking anything including vitamins, especially if you are on blood thinners. Hoping you are able to get some relief soon.

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Thanks. Have you tried the CBD eddibles? Will try the oil!
Thanks,
Sundance

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@sundance6 Hi I've had fibromyalgia since the 90,s there is no cure and Dr,s still don't know the cause of it if you don't get a good sleep at night your muscles can't relax. Have you tried these are all things I do I have done. Epsom salt bath or wring out a washcloth and apply, hot showers ,Tens unit to relax tight muscles, Fibro Malic it's from Vitacost.com Melatonin for sleep, I take CBD helps with sleep and pain ,research it for the quality, aqua exercise in warm water. There is also a Epsom salt in rub form by Procure even a vinegar in water is good like Epsom Salts Cider not white vinegar. These are just a few things I use.I don't want any sleep mask. .

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Ms. Lioness. Thanks! So what you're telling me is we have to live with it the rest of our lives. I appreciate the help. I know the Epson Salt Bath does help. I use to have a lady that did body work on me for over 20 years. I always stayed healthy. She retired a few years back and hven't been able to find anyone else.
Thanks,
Sundance
🙂

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@sundance6

Ms. Lioness. Thanks! So what you're telling me is we have to live with it the rest of our lives. I appreciate the help. I know the Epson Salt Bath does help. I use to have a lady that did body work on me for over 20 years. I always stayed healthy. She retired a few years back and hven't been able to find anyone else.
Thanks,
Sundance
🙂

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@sundance6 If I can help I'm happy we all here have terrible pain and suffering from any problem isn't fun you have to find what works for you I forgot Ice
is anti inflammatory as Ginger-turmeric tea from Trader Joes only place besides Amazon you can get it .You have to listen to your body and advocate for yourself

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I have heard about the Tea. What does it do? I've also used a heating pad on my neck some days when I am working on my computer. Helps keep down the pain.
Thanks,
Suncance

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@sundance6 The spices Ginger ,turmeric are anti inflammatory Ice is also anti inflammatory these are both good inflammation causes pain I drink a cup of 2everyday.

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@sundance6

Thanks. Have you tried the CBD eddibles? Will try the oil!
Thanks,
Sundance

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Hello Sundance…Yes, I tried the edibles for sleep I have to watch the % of THC since it increases my pulse and pressure rates. I was told that I had Lupus too…..that was not true either. You should try the cannabis that's Indica ….I use half a dropper an hour before bed and at least the pain disappears and I can sleep…for more than 8 months after the open heart surgery I averaged 2 to 4 hours of sleep and no matter how many times I called the cardiologist about no sleep, headaches, gums bleeding, light headed , weak , back pain etc. I got the same response ….the benefits outweigh the side effects….I finally changed the main cardiologist but kept the AFIB specialist.
Sleep clinic ???? You can't sleep because you're in pain ! Geez……I'm not a doctor but I would try the over the counter CBD oil spray or cream and if your state allows the medical cannabis get the Indica blend tincture that relaxes you , takes away the pain and lets you sleep. Maybe a new doctor might be needed too . But, I always tell people before they try something new, even vitamins a doctor should be consulted. Hope you get some relief soon.

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THC does the same to me. I got some edibles in Colorado that were low on THC. I tried them for several days and didn't seem to help. I have a some of the body main as most others. My pain is in the form of headaches. I have never suffered from them in my life until 10 months ago, and now they don't go away! The doctor said it is because Fibromyalgia magnifies the pain. Has some validity.
Also,as I have said before I have been extremely physically active my whole life, 72 years! From team sports in my younger days to hiking, skiing, fly fishing racing I have always been active. Now the tiredness and lack of energy is bringing me down mentally. I would say that could be the cause of my headaches, but the headaches came first and have caused me to slow down to a crawl!
Sundance
🙂

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Stress and sadness have started a flare in the pain of fibromyalgia. Three weeks ago we got a new furry member of the family. He is a beautiful milk chocolate Labrador about 3 years old. Boy,does he have personality! He will be going to training while we go on vacation later this month. It's been hard getting him and my granny dog 13 years to get along. And then the horrific shooting in Virginia Beach has really got me. You may not know my husband served in the Navy for 31 years. We lived in Virginia Beach for 12 years. I had been casually acquainted with one of the victims many years ago. I once worked for the City of Virginia Beach and made frequent trips to the Municipal complex of offices.

To try and ease the flare, I have been using my tens unit more, the heating pad, and taking baths with Epsom Salts.I'm hoping talking about the stress will help. Thanks for letting me vent!

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@sandytoes14

Stress and sadness have started a flare in the pain of fibromyalgia. Three weeks ago we got a new furry member of the family. He is a beautiful milk chocolate Labrador about 3 years old. Boy,does he have personality! He will be going to training while we go on vacation later this month. It's been hard getting him and my granny dog 13 years to get along. And then the horrific shooting in Virginia Beach has really got me. You may not know my husband served in the Navy for 31 years. We lived in Virginia Beach for 12 years. I had been casually acquainted with one of the victims many years ago. I once worked for the City of Virginia Beach and made frequent trips to the Municipal complex of offices.

To try and ease the flare, I have been using my tens unit more, the heating pad, and taking baths with Epsom Salts.I'm hoping talking about the stress will help. Thanks for letting me vent!

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@sandytoes14 Sending calming breaths in your direction. When tragedy hits close to home [physically or emotionally] we are never prepared for the aftermath in our systems, especially when we are already compromised. Please be gentle on yourself.
Ginger

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@sundance6 Fibro seems to be a "constellation" disorder, and manifests itself in different ways to different people. So relief solutions seem to work differently for people. I was diagnosed with fibromyalgia back in 2006 or so, I think. I have other autoimmune conditions, and it took a bit for them to separate the issues. Fibro affects my sleep, and energy, those are connected. I also have extreme muscle discomfort sometimes, and do notice the "brain fog" at times. I use CBD tincture, which really seems to alleviate my discomfort. Beyond that, being gentle on myself, forgiving myself if it's needed to cancel plans. Those who are my friends understand. I keep up with healthy eating, and supplementing with vitamins and minerals. Activities like walking, stretching, Tai Chi.
Ginger

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Thanks Ginger! Sounds like our symptoms are very similiar. The last blood test showed up in an autoimune condition that they are researching now. Interesting you bring up the streching and Tai Chi. That is what the Rheumotoligist reconmended Friday. He said Tai Chi or Yoga. Can anyone chirp in if they have tried both and which works for them. We're all different! Being a senior, my YMCA has the Silver Sneakers program that I am going to look into this week. Funny thing is I don't want to embarass myself in front of others! Does that give you a clue of deep issues I have! LOL!

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@sandytoes14

Stress and sadness have started a flare in the pain of fibromyalgia. Three weeks ago we got a new furry member of the family. He is a beautiful milk chocolate Labrador about 3 years old. Boy,does he have personality! He will be going to training while we go on vacation later this month. It's been hard getting him and my granny dog 13 years to get along. And then the horrific shooting in Virginia Beach has really got me. You may not know my husband served in the Navy for 31 years. We lived in Virginia Beach for 12 years. I had been casually acquainted with one of the victims many years ago. I once worked for the City of Virginia Beach and made frequent trips to the Municipal complex of offices.

To try and ease the flare, I have been using my tens unit more, the heating pad, and taking baths with Epsom Salts.I'm hoping talking about the stress will help. Thanks for letting me vent!

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@sandytoes Hi that was a horrific shooting It always affects a person when close to them I'm so sorry for the loss of everyone involved .Be kind to yourself and find someway to let it go.Hold your family closer. Last week fibromyalgia @arthritis gained up on me finally got into the sunshine felt better I took everything under the sun but no relieve but getting into it sure helped .Dr gave me Prednisone it has helped , but don't take it only when I'm that much pain.Enjoy your dogs they are healing as cats are too.Enjoy your vacation.

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@sundance6

Thanks Ginger! Sounds like our symptoms are very similiar. The last blood test showed up in an autoimune condition that they are researching now. Interesting you bring up the streching and Tai Chi. That is what the Rheumotoligist reconmended Friday. He said Tai Chi or Yoga. Can anyone chirp in if they have tried both and which works for them. We're all different! Being a senior, my YMCA has the Silver Sneakers program that I am going to look into this week. Funny thing is I don't want to embarass myself in front of others! Does that give you a clue of deep issues I have! LOL!

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@sundance6 After you hurt so bad you will let vanity disappear I've had fibromyalgia since the 90,s no cause of cure has been found. .My vanity left me years ago I retired in 2005 so all the years of working with it. I have the silversneakers it is a great way to keep going I go to a gym.that has a pool which I find helpful plus use different pain tools that I have .It is a challenge but since we don't work full time this keeps us busy taking care of ourselves .

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