Fibromyalgia Medication and treatment

Posted by Sundance(RB) @sundance6, Jun 1, 2019

I have been on the Mayo Connect for over six months. My symptoms point to the umbrella of things, Lyme disease, West Nile, Fibromyalgia, Lupus, and Chronice Fatigue. I have seen every doctor in my hospital system. Had every test and scans done. JUST MADE MORE $$ FOR THE HOSPITAL SYSTEM!
Yesterday I finally went to a Rheumatologist for a consultation on a blood test. When I expalined what I had been going through the last ten months he finally gave me a diagnoses. (First one after 10 months and 10 doctors.)There is a small chance I may have Lyme Disease, but to late to tell. He said he was sure it is Fibromyalgia. He said I should have been directed to him when it first started. (Again as many of you agree they put you through unecessay test and perscribe pills to make $$ for the industry.
So now that I fianally have some direction to move, I need some advice, information, what helps, what causes it and such. He said he feels mine is in the area of sleep. Does this make sense to anyone? He is sending me to a sleep clinic for evaluation.
I know I have seen many postings about Fibromyalgia, but I guess it is the “Fibro Fog” that dosen’t remember all.
Can someone lend me some advice.
I had been on Gabretentian but the side effects were worse than my pain! We are tryng Cymbalta. Can anyone let me know how it has worked for them. Anything to watch for?
As always this site is the Best! People are so honest and open about helping.
Thanks,
Sundance
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Thanks Ginger! Sounds like our symptoms are very similiar. The last blood test showed up in an autoimune condition that they are researching now. Interesting you bring up the streching and Tai Chi. That is what the Rheumotoligist reconmended Friday. He said Tai Chi or Yoga. Can anyone chirp in if they have tried both and which works for them. We're all different! Being a senior, my YMCA has the Silver Sneakers program that I am going to look into this week. Funny thing is I don't want to embarass myself in front of others! Does that give you a clue of deep issues I have! LOL!

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@sandytoes14

Stress and sadness have started a flare in the pain of fibromyalgia. Three weeks ago we got a new furry member of the family. He is a beautiful milk chocolate Labrador about 3 years old. Boy,does he have personality! He will be going to training while we go on vacation later this month. It's been hard getting him and my granny dog 13 years to get along. And then the horrific shooting in Virginia Beach has really got me. You may not know my husband served in the Navy for 31 years. We lived in Virginia Beach for 12 years. I had been casually acquainted with one of the victims many years ago. I once worked for the City of Virginia Beach and made frequent trips to the Municipal complex of offices.

To try and ease the flare, I have been using my tens unit more, the heating pad, and taking baths with Epsom Salts.I'm hoping talking about the stress will help. Thanks for letting me vent!

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@sandytoes Hi that was a horrific shooting It always affects a person when close to them I'm so sorry for the loss of everyone involved .Be kind to yourself and find someway to let it go.Hold your family closer. Last week fibromyalgia @arthritis gained up on me finally got into the sunshine felt better I took everything under the sun but no relieve but getting into it sure helped .Dr gave me Prednisone it has helped , but don't take it only when I'm that much pain.Enjoy your dogs they are healing as cats are too.Enjoy your vacation.

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@sundance6

Thanks Ginger! Sounds like our symptoms are very similiar. The last blood test showed up in an autoimune condition that they are researching now. Interesting you bring up the streching and Tai Chi. That is what the Rheumotoligist reconmended Friday. He said Tai Chi or Yoga. Can anyone chirp in if they have tried both and which works for them. We're all different! Being a senior, my YMCA has the Silver Sneakers program that I am going to look into this week. Funny thing is I don't want to embarass myself in front of others! Does that give you a clue of deep issues I have! LOL!

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@sundance6 After you hurt so bad you will let vanity disappear I've had fibromyalgia since the 90,s no cause of cure has been found. .My vanity left me years ago I retired in 2005 so all the years of working with it. I have the silversneakers it is a great way to keep going I go to a gym.that has a pool which I find helpful plus use different pain tools that I have .It is a challenge but since we don't work full time this keeps us busy taking care of ourselves .

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I agree on the Vanity! I need to put my Big Boy pants on and go do it! I still work full time running myy own company, so staying busy is not my problem. It's finding the energy to get it all done.
Amazing a disease such as Fibromyalgia that is suffered by so many people that don't know how to cure it.
I've read some articles That say it doesn't exist! It's in our minds.
How Foolish!
Sundance, aka RB

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@sundance6 How foolish indeed So this is what they say still wow .When I was first diagnosed I went to a group class there they said isometric exercise is helpful I found them it was I still do them when not in a flare ,nothing helps then.Rheumatologist especially understand fibromyalgia but most Dr, don't .This like so many other auto immune problems we have to do our own research and find what helps us ,yes put your big boy pants on lol

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@sandytoes14

Stress and sadness have started a flare in the pain of fibromyalgia. Three weeks ago we got a new furry member of the family. He is a beautiful milk chocolate Labrador about 3 years old. Boy,does he have personality! He will be going to training while we go on vacation later this month. It's been hard getting him and my granny dog 13 years to get along. And then the horrific shooting in Virginia Beach has really got me. You may not know my husband served in the Navy for 31 years. We lived in Virginia Beach for 12 years. I had been casually acquainted with one of the victims many years ago. I once worked for the City of Virginia Beach and made frequent trips to the Municipal complex of offices.

To try and ease the flare, I have been using my tens unit more, the heating pad, and taking baths with Epsom Salts.I'm hoping talking about the stress will help. Thanks for letting me vent!

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Jen @sandytoes14 Sending some cyber fair winds and calm seas your way and hoping all goes well with the training of the new family member. Also hoping your vacation is restful as well as fun!

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@lioness

@sandytoes Hi that was a horrific shooting It always affects a person when close to them I'm so sorry for the loss of everyone involved .Be kind to yourself and find someway to let it go.Hold your family closer. Last week fibromyalgia @arthritis gained up on me finally got into the sunshine felt better I took everything under the sun but no relieve but getting into it sure helped .Dr gave me Prednisone it has helped , but don't take it only when I'm that much pain.Enjoy your dogs they are healing as cats are too.Enjoy your vacation.

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@lioness I dread taking Prednisone. The side effects are sometimes worse than the symptoms. Because I had RNY gastric bypass the absorption is so different on all my meds.

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@johnbishop

Jen @sandytoes14 Sending some cyber fair winds and calm seas your way and hoping all goes well with the training of the new family member. Also hoping your vacation is restful as well as fun!

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John, thanks my friend!

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@sundance6

Thanks Ginger! Sounds like our symptoms are very similiar. The last blood test showed up in an autoimune condition that they are researching now. Interesting you bring up the streching and Tai Chi. That is what the Rheumotoligist reconmended Friday. He said Tai Chi or Yoga. Can anyone chirp in if they have tried both and which works for them. We're all different! Being a senior, my YMCA has the Silver Sneakers program that I am going to look into this week. Funny thing is I don't want to embarass myself in front of others! Does that give you a clue of deep issues I have! LOL!

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@sundance6, I have taken both Chair Yoga (which does not require getting on the floor [two TKR] and getting up), as well as Tai Chi. Both are wonderful in terms of stretching , flexibility, and balance. Both give you an incredible workout. Make sure you find an instructor that will allow you to work at your own pace and ability. We are all in different spots on the path to wellness.

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@sandytoes14

@lioness I dread taking Prednisone. The side effects are sometimes worse than the symptoms. Because I had RNY gastric bypass the absorption is so different on all my meds.

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@sandytoes I'm On a sliding scale from 6-1 to none I saw what it did for my Mom I don't want to be On it only when I need it Its been 8-9 yrs since I took it it was only when I underwriTer would order like this.I've started to look at nerve surgery on my burning pain in my legs To it to talk to pain Dr I think.

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@capausz

@sundance6, I have taken both Chair Yoga (which does not require getting on the floor [two TKR] and getting up), as well as Tai Chi. Both are wonderful in terms of stretching , flexibility, and balance. Both give you an incredible workout. Make sure you find an instructor that will allow you to work at your own pace and ability. We are all in different spots on the path to wellness.

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Is Tai chi expensive to take ?

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@tazscott

Is Tai chi expensive to take ?

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@tazscott, at my local community center, I pay $3 per session, and I pay $5 per session at my local health wellness center. Each class is typically 50 to 60 minutes in duration. I find two classes a week works well for me.

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