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Fearing risks of Prolia
I am going to my pcp tomorrow morning to discuss whether to start Prolia or Jubbonti after getting dexa scan results showing my osteoporosis has gotten worse. I took Ralaxifene for the last 2 years and it didn't help. I have researched these 2 drugs and have read a ton of bad side effects from patient reviews and I am really nervous to try! After taking Boniva just one time in the past, I felt like I was ran over by a truck for 3 days and I refused to ever take a biphosphate again. I am thinking about not starting a new drug and exercising more. Any input is much appreciated!
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I have taken Prolia for about ten years. No side effects after first couple of shots. Dexa numbers better. No fractures. Only when I took a second Amgen monoclonal antibody, Repatha, did I have serious side effects. Two monoclonal antibodies at the same time seemed dangerous. For me anyway.
@tatiana987
Tatiana. May I ask your age? I know some women who are considered elderly may choose to stay on Prolia until they die. I am considered elderly at 76 but I am opting to stop prolia after 3 shots. My neighbor who is 66 stopped Prolia after 10 years and went on reclast for the transition
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2 Reactions79.
@gravity3 why did yiu stop Prolia?
@leslieb52
My endocrinologist said that I could do a smaller dose of reclast to counter rebound effect of stopping Prolia and that I might be able to have a drug holiday. Part of that also hinges on my being on bhrt for a year and the positive effects that may have on rebound. I have already taken alendronate for 5 years, forteo for two and evenity for 1. If I live long enough I will probably return to Prolia until I die. I have had no noticeable side effects with any
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3 Reactions@leslieb52 Hi my Prolia twin! Promised an update of my drip to dermatologist. Nothing much to report only that she's taken a biopsy but I won't have results until 3 Feb as I'm going away next week for 8 days so will get results when I see her again. However, she thinks it may be an autoimune rash which who knows what could have triggered it. Hopefully nothing more serious! I'm still thinking the Prolia's caused it as it's a known side effect whether autoimune or otherwise (I don't really know what autoimune means other than it's the body recognising something strange has been put in there! I'll be disappointed if it is the Prolia as I would think if it is I'll need to change to a bisphosphinate (sorry about my spelling). If the biopsy shows autoimune then from there I'll need a blood test which hopefully will show what is causing it. Hope everyone who reads this are all well.
@ausiemaggs73 thanks for the update sister. Are you going on a vacation?
Did you just have a rash? I am getting my first shot on Thursday Jan 29.
I hope I don’t have any reactions.
How quickly after the shot did the rash appear?
You gave me the tip of drinking a lot of water before and after the shot. Any other tips?
Keep me posted on your stuff.