Fearing risks of Prolia

Posted by slr1 @slr1, Jan 6 8:55pm

I am going to my pcp tomorrow morning to discuss whether to start Prolia or Jubbonti after getting dexa scan results showing my osteoporosis has gotten worse. I took Ralaxifene for the last 2 years and it didn't help. I have researched these 2 drugs and have read a ton of bad side effects from patient reviews and I am really nervous to try! After taking Boniva just one time in the past, I felt like I was ran over by a truck for 3 days and I refused to ever take a biphosphate again. I am thinking about not starting a new drug and exercising more. Any input is much appreciated!

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gravity3 | @gravity3 | 6 days ago

In reply to @slr1 "@leslieb52 - I will! I do not know thr costvfor a self pay dexa scan." + (show)

@slr1

Check with the billing office at the facility where you get the dexa

slr1 | @slr1 | 6 days ago

@gravity3 --
Yes , I def will!
I am not having it till December.

leslieb52 | @leslieb52 | 6 days ago

In reply to @oopsiedaisy "@leslieb52 I was replying to OP who stated that they took Boniva and don’t want to..." + (show)

@oopsiedaisy thank for clarifying

leslieb52 | @leslieb52 | 6 days ago

In reply to @sup7401 "Hi, RN here. I tried alendronate , which helped initially...went off of it with better results...." + (show)

@sup7401 you tried ,prolia with zero side effects?

susanjane77 | @susanjane77 | 6 days ago

In reply to @leslieb52 "@susanjane77 thanks for the clarification. I am 73, so I will be on it for many..." + (show)

@leslieb52 every two years but reading some of the other comments, I see that some are able to get one every year .
Talk to your doctor as I am going to talk to mine about getting a DEXA test every year. I am due for one in June, so I am hoping the scores are better and it shows the Prolia is working.

grammy9 | @grammy9 | 6 days ago

In reply to @sup7401 "Hi, RN here. I tried alendronate , which helped initially...went off of it with better results...." + (show)

@sup7401
Great news! Have you had any teeth or jaw issues?

ausiemaggs73 | @ausiemaggs73 | 6 days ago

In reply to @leslieb52 "@ausiemaggs73 keep me posted on what the dermatologist says. You and I will be the Prolia..." + (show)

@leslieb52 Wonderful! I don't even have a sister, let alone a twin so happy with a Prolia twin lol. Yes I'll let you know next Tuesday what happens.

leslieb52 | @leslieb52 | 5 days ago

I just had an appt with someone in the pharmacology dept at my hospital.
She scheduled blood tests and my first Prolia shot for January 29.
Wish me luck and send good vibes that I won’t have any of the reactions that some folks had.
I will keep you posted on my things, if you don’t mind.

slr1 | @slr1 | 5 days ago

In reply to @leslieb52 "I just had an appt with someone in the pharmacology dept at my hospital. She scheduled..." + (show)

@leslieb52 -
I wish you nothing but the best! I hope you have a great transitioning when you do start on Prolia, and that you do well, and that your and your bones
benefit big time!!!
Slr1