Anyone else out there with extremely high lipoprotein (a)?

Have you visited glucosegoddess.com

I came across this group earlier. familyheart.org
Checking their website menu are a number of articles regarding high lp(a).

I have a hard enough time with inches and centimeters. 🤪💚

My friend has other lipid problems, so spends a lot of time and energy managing her health. Overall, she would say she has a good quality of life. We met because of our respective lipid problems and we consider that in the win column. You’re making progress towards prevention instead of waiting around to see what happens. Kudos!

Yes the measurements are confusing as it is not exact to convert mg/dl to nmol/l

My test was 260.35mg/dl or the most used by worldwide researchers is 559.9nmol.l

I still haven’t see higher numbers that those except for your comment of 1,000. Although I sympathize with that person, it comforts me that numbers could be much higher without mortality😊

It is scary to find out problems in blood. I don't have elevated LP(a) but have researched it a bit since I have a variety of other lipid things going on. It is so good that you are heading to someone specializing in the area you need, and that you are understanding it is a serious risk factor. And, you're rocking your lifestyle. Yay for you!

I have learned a couple things that I hope are reassuring for you. There are a couple of different measurements used for LP(a) making it important to know which scale to look at. The American Heart Association's webpage says high is 50 mg/dL or 125 nmols/L. My LP(a) is 8 mg/dL and I have a friend who has results of over 1,000 mg/dL.

Also, 20-30% of the population has concerning numbers. I am certainly not trying to encourage you to not take this seriously. It is a serious risk factor and we live in an exciting time that modern medicine understands this and therapies are becoming available to address it. I guess I am just trying to provide a bit of scope to what I have learned. It's a marathon you're entering and not a death sentence.

My Lp(a is 559.9 nmol/l.
Yeah, I’m very concerned.😟 Tried to get into a clinical trial but although I had the highest level seen by the Study office, I was not accepted as not had a coronary or vascular episode…yet.

I am being referred to a new cardiology lipid clinic specializing in Lp(a). They are testing and creating a database of people with Lp(a). Not much they can do though for me though as at 78 my cholesterol levels are relatively stable, just on a low dose statin. Normal weight, healthy diet. physically fit. Quit smoking 10 years ago.
I’m looking for another clinical trial until FDA approves an Rx in final testing. Estimated 2-3 years.

My lipoprotein was high despite best efforts re diet and exercise etc. and I asked for a LPa test. The results showed that my situation was genetic and I would need to take statins to reduce it. So far it’s working, gradual introduction so the amount didn’t cause any side effects while adjusting to the medication. Have you had the LPa test?

Did you figure out anything for lowering your LPA?

No seed oils? Does that include chia seeds, hemp seeds, flax seeds ground or whole? My lipoprotein a is 156 and everything else well in normal range

If I didn’t reply already here I did somewhere else, but I will say it again. I can’t take statins Either so I asked for the LEVQIO. I also can’t do gluten or lactose and I can’t remember if that’s what qualified me for the Le Vecchio but it is awesome. Awesome. Awesome awesome. Dramatically changed my cholesterol and all its components in three months, the LPa might take longer to reverse itself as you get kind of a dump in your bloodstream as it loosens and exits your body on my second or third LP test after starting the LEVQIO I am now changing in a positive direction and lowering my LPa! good luck eat a lot of salmon and little fish in cans!.