Anyone else out there with extremely high lipoprotein (a)?

Maybe Dr. Dean Onrush?

lindy,

It is great you have taken control of your weight and health.

I continue to be concerned about self-help medicine; while it may seem appropriate, in many cases those involved are someone blinded by their opinions of complex topics, and by their desire to be in charge.

Your dismissiveness regarding those who are trained and experienced, and your support for podcast doctors is troubling, as well.

Please be careful.

to MAYOCONNECTUSER1 I'm a retired health teacher and have studied nutrition since 1978. As for the the podcasts, they are from well educated, experienced doctors. And their information is science based. The doctors have decades and decades of experience in their specialty fields and I trust them. Let's compare that my own doctors at NYU Langone doing absolutely nothing, and who don't even know I have steatosis because they never saw it noted by the radiology Dr who interpreted my lung cat scan. And my doctors only want to look at LIPIDS and tell me to take statins when they are unaware of the whole picture and have no way to address the fat in my liver. They only care about the statistics they plug into the computer telling them my risk factors in 10 years of having a heart attack or stroke. I'm addressing the root cause of the lipids and cholesterol. I don't eat barrels of saturated fat.
I eat a pristine diet of whole foods so was shocked to read on a LUNG CT scan I have steatosis of the liver. I personally thanked the radiologist. I'm doing it my way - Naturally and Slowly. I had a holistic doctor ask for 33 vials of blood and I see him today, Oct. 1 2024, for his analysis of the reports. I have seen the blood test results and have learned how much I didn't even know about my body but it's all making sense. I've studied research papers from medical websites. I understand the reasons why things are going on and ways to correct them. The crashing after eating a meal - even a meal of healthy small portion of poached chicken breast in bone broth, 1/2 cup steamed cauliflower and a salad with no dressing. The INSULIN test was 30.8. and should be 18. I have insulin resistance. So listening to Dr. Eric Berg and his podcasts with reputable doctors on his podcast and by him sending me guides for free on the KETO diet have been appreciated. My own doctor is disappointed that I continue to refuse a statin. She is fear based She has protocols to follow at the University based medical system. Years ago, I've tried Crestor and Lipitor and my legs were in so much pain I had to stop. My doctor doesn't trust that I'll find my way through gentle natural ways which even includes forgiving all the people who have harmed me. Meditation, and being diligent and disciplined every single day. The liver is the seat of "Anger". My neuropathy is very bad so I cannot run but am slowly moving my body and sitting down using hand weights. I'm 5 foot 10. 74 years old. I've gone from 1/1/24 - 207 lbs. down to 10/1/24 - 184. I have 20 more lbs. to go. I consume zero sugar. zero white refined flours and rice. Now I'm phasing into the next stage and after my meeting with the holistic doctor, he'll set me up with the correct exact food plan and supplements - of which I take many, already. Niacin and NAC are faithfully consumed every day. I've dropped 102 points in triglycerides in 2 months. You sound well intended, but a real "Doubting Thomas", just like my Primary Care doctor. I even bought a body composition scale that SHOWS me 12 different measurements inside my body. I'm thoroughly committed in my own recoveries. thank you for replying.

lindy,

Do you have sufficient education and experience in science and medicine to make such broad statements?

I'm concerned by statements like yours regarding podcasts and refusal to take statins ... it is very common to see these sorts of comments, but they are not generally based on appropriate levels of science, education and experience.

Good information. The info I saw must have been older then. I had heard that in could be dangerous in very large dosages over an extended period of time.

Niacin was looking to be helpful in reducing LP(a) but in more recent studies niacin was found to be not helpful as hoped and could be dangerous.

Thank you for replying. I am also doing deep mindful meditation to calm my nervous system, diaphragmatic deep breathing, and reaching out to the world as I've learned how dangerous it is to heart health to live alone and be isolated. Groups like the Mayo Clinic support groups are validating and helpful. Linda

Best wishes to you.
There was one doctor some years ago that would have supported your plan. I wish could remember his name. He wrote books describing his methods which included a very very strict diet, meditation, lots of exercise, total stress removal. He had remarkable success with patients that were motivated to stay with the diet and plan.

My lp (a) is < 10. But my lp (b) is 141. So much to learn and understand. In 3 months of hard work with a modified food plan I created, A1C is down .4 from 6.7 to 6.3. HDL is 43 (up 3 pts from 40). Triglycerides 287 down 102 pts. from 389. LDL up 10 pts. from 152 to 162. At the time of the May 31 blood test, I weighed 197. I was 207 on Jan. 1. I had a second blood work up on Sept. 6. (extensive with 33 vials of blood). It showed my insulin was off the charts at 30.8 should be < 18. I've learned so much since the early Sept. blood tests. And my weight has dropped from 194 to 184 in 30 days. I can tell after eating a restricted pristine whole food meal if I feel groggy that my body is pumping insulin and the cells are resisting it. So smaller meal is better. And with the doctor podcasts I am learning that intermittent fasting will trick the sluggish fatty liver into burning the fat in the liver. YES. this had been my question - how to clean fat out of the liver. I have to be careful because I also had a Ct scan of the heart and discovered I have an electrical problem in heart (SVT) with an irregular heart beat and some plague in carotid arteries and some calefied vessels but not life threatening.
I AM DETERMINED TO CLEAN UP MY BODY WITHOUT DRUGS.
BY UNDERSTANDING MY METABOLISM AND INFLAMMATION, i BELIEVE i CAN AND WILL STAY ON THIS STRICT LIFE ALTERING FOOD PLAN AND REACH HEALTHY LEVELS.

My primary doctor is clueless. I had a holistic dr check many things my doctor would never think of. They are all stuck on checking standard lipid panels and focused on statins AND eat a low fat diet and exercise. I refuse to take statins. I've spent weeks researching the root causes of my steatosis that showed up on a pulmonary Ct scan and the pulmonary dr. never mentioned the liver or the atrophied thyroid. If i hadn't read the cat scan, I'd never have known, and I thanked the dr. who interpreted the Cat scan ex rays. It focused me into researching endless studies and listening to doctor owned podcast . Dr. Ken Berry. Dr. Bikman, Dr. Philip Ovadia, Dr. Eric Berg, Dr. Khan. So grateful for the insights and knowledge from taking a lot of time educating myself. This is what will keep me vigilant.

Its very good to hear that Repatha worked for him.

I had a second blood test for Lp(a) recently as I thought the first test
may have been wrong as it was so high at 559.9 nmol/l but the second was even higher 591.3 nmol/l. My LDL C is not really high and other lipids are in normal range.

My GP has referred me to to a new clinic in my area that specializes in Familial Hypercholesterolemia and Lp(a). I'm hoping to get into a Clinical Trial or Repatha. I've been told that Repatha can reduce the Lp(a) by 20-30% but the drugs in late stage trials can reduce levels by 90+%.