Anyone else out there with extremely high lipoprotein (a)?

Hello - I was wondering if you have had any change in your Lp(a) number? I was just diagnosed with high LDL and my Lp(a) is 271 nmol/L I don't have anyone to talk to about this and I would appreciate hearing what others are doing and how they are dealing with it psychologically ? I feel so alone.

I am in Canada also and just learned my number today and it is 271 and I have high LDL so I will have to go on a statin for that. I have a consultation with my pharmacist on Tues and a Drs appt on the 3rd. I can feel my BP is high from worrying yet I can't stop worrying. I wish someone would offer some encouraging words. 🙁

Hello - I saw that you're Lp(a) is/was 295 I just got my number and I am 271 plus I have high LDL. I have a doctors apt on Sept 3rd and am having a consultation with my pharmacist on Tues because I thought she could direct me to the best course of action.- I am on the verge of tears right at the moment, I live by myself and don't have anyone who understands my concerns. I am needing some reassurance. I noticed that you said your Lp(a) "was"295 and not "is" 295, did you get it to lower? I will need to go on a statin for my high LDL which apparently will make my Lp(a) go higher.

Hi, can you please update us on how you are doing since you wrote your message?

Many - MANY - folks have much higher CAC scores and remain asymptomatic.

Rule out obvious things:
- stress test with echo
- peripheral artery disease test
- advanced lipids test
- statins to get LDL around 50
- icosapent ethyl to get triglycerides around 50
- make sure you are symptomatic ... no chest discomfort ever?
- keep up your great lifestyle

Unless you have bad results from the above, live your life.

I’m a 65 year old , that is very healthy, I weigh 115 walk and average of 5 to 9 miles a day. I try and eat healthy I don’t drink and smoke. I keep active. But the calcium score freaks me out. 600 is way too high. What can I do?

There are many kinds of coronary artery disease and combinations of lipids and lipid tests. It is kind of like putting together a puzzle. The numbers have to be used in context to each other and then that isn’t good enough we need a physical picture of our arteries to see if the puzzle pieces Have made an impact. This all must be used in combination with your diet and exercise. In summary, you need the numbers,, but they don’t work in a vacuum, so you need the pictures, and then you can make adjustments to your diet, exercise, routine, and medications. The science of coronary artery disease, the numbers, and the ratios are changing. New tests are emerging. Use those as a “guide“ to the actual photos of your arteries to see what condition you are actually in. Make adjustments where you can, research on your own, so you can suggest medication which you find promising, and see a cardiologist periodically to reassess your progress. From my observation, watching two generations of familial, coronary artery disease, it’s obvious that paying attention and making modifications along the way will allow everyone to live full lives. .

Age?
Previous issues?
Health?
Full lipid numbers?
Weight and height?
Body mass index?
Family history?

Ask your doctor, please.

I have a score of 600 for my calcium do I need to worry about taking cholesterol medication? My good cholesterol is really good but my bad is really bad 182? Should I start taking it.

Look up Dr Thomas Dayspring on YouTube. He is a lipidologist and he is fascinating. I think the best interviews are with Dr Gil Carvalho and another with Peter Attia. He said people should attack high cholesterol at the liver AND intestines. If you do one, the other will increase their receptors. I can not take statins, nor Praluent. I am taking Zetia, Nexletol and I added Benecol chocolates. My Dr wants my LDL below 30. I am a bit freaked out myself. My carotids are blocking and I have calcification in my aorta.