Anyone else out there with extremely high lipoprotein (a)?

Hello, I’m sorry I think I misread your question. I thought you were contemplating whether or not to go away for a long weekend, but your question was that you were concerned that you couldn’t get a hold of a medical professional or cardiologist over a long weekend.
My guess is the long weekend is over and you’ve had a chance to reach out to your medical professionals at this point?

Totally agree you should
Contact your personal care provider, and if you have a cardiologist contact them. If not, you should find a cardiologist. I have a very high CAC score, workout every day exercise, my diet could be better, and when asked by a cardiologist why my CAC score was so high, this might be the answer for the reason.

I’m an agreement with the previous post and that is you should probably have a hard scan to see what the levels of calcium and plaque are in your cardiovascular system.

I know you probably had some time to calm down, but sometimes it takes months. Just realize that what you know today was probably true yesterday and for a while before and you’re still here, so try not to overwhelm yourself. Stress is not good for you.

Sorry for the misunderstanding, and good luck keep us posted

I would definitely go to see a cardiologist and have them do an arterial calcium scan . But it's probably a good idea to if aspirin doesn't bother you to take a baby aspirin a day. my LP (a) was 101 nmols so slightly out of range on the high side. Both my mom and dad had heart disease and ended up with triple bypasses. I don't know which one carried the Gene I have five brothers and two sisters and I've told them they need to get checked. It took me a couple of months to get in to see a cardiologist he gave me an EKG which came back OK but he wanted to do an arterial calcium scan with a CT and he called me later that day and told me it was high my calcium score was 1253 among four coronary arteries. My left anterior descending had a score of about 600. So he put me on a stress test and did an echocardiogram on me and everything turned out OK. So he told me to take my statin and take a baby aspirin and just watch what I eat. I have never had chest pains or shortness of breath or sweating or lightheadedness or anything so it's kind of really surprising. I had just gone bc i had some abdominal pain and it turned out I had a kidney stone but when they checked me out one thing led to another so I guess it was fortuitous that I have the kidney stone

i tell you what's really frustrating is that when my dad had his triple bypass I was 24 years old and so I started to eat low fat and take exercising seriously so for over 40 years I've been eating low fat and exercising now I'm not an exercise fanatic I don't go out and run five or 10 miles but I'm active every day walk I used to run but not anymore I'm 68 years old and go to the gym and walk and treadmill and bike and it's just really disappointing that you work so hard and you know watch what you eat and you still get CVD . apparently diet and exercise does not lowerLP(a). And the funny thing is I've been asking my primary care physician for the last couple of years several years actually to test me for LP(a) and he would say why ?what for ? we can't do anything about it. there's no medicine to give you and I would tell him well at least I would know so finally I went out and did it on my own when they told me at the hospital that I had an abnormal EKG. . I would recommend to anyone as they get older in their 40s or 50s getting the LP (a) tested. I think it should be part of every physical at least once in your lifetime. My daughter had hers checked and it came back OK and my son is going to have his check this July. there is a nonprofit group called Family heart.org and you can go online and order a free test for LDL and LP(a). You just put a few drops of blood on a little test card and mail it back to them and they'll get you a score in a week or two pretty easy.

Hello, the way, I understand it is that your Lipo protein levels are somewhat constant through most of your life. And with their being no treatment for it, at least at the moment. Personally, I’m not sure that you can stop living your life because of single blood test. That being said, if you’re having any symptoms of chest pain, shortness of breath or other indications that you may be having an issue, I’m not sure why I would hesitate, But this has to be a personal decision.

Hello @joce18, I am tagging @elliott1953, @dnward12, @george7856 and @buster11 who all posted in this thread about their experiences with high lipoprotein so they would see your message as well. You also posted in another discussion that you are concerned about traveling for your family reunion.

@joce18 - have you had the conversation with your provider who diagnosed your high lipoprotein about traveling? Did they have any concerns?

Learned yesterday that mine is also very high. In Canada my measurement is 231 with normal being not more than 100.
Scared also.

Well, the good news is there are medications that are in development. I also have high levels near 300, and will go for my second meeting at a clinicalstudy tomorrow. I’ve done a little reading and found four other clinical studies that have been going on for a while and shown positive results with few side effects. So help may be on the way.

re the above - I think the upper limit for Lp(a) is approximately 99 nmol/l, mine was 295

I can relate to your concern. I am 72 years old. Despite my HDL, LDL, Triglycerides blood work being very good, my LP(a) was about three times higher than the upper limit 295 nmol/l.

Since it's genetic, my understanding is that there is very little you can do about it other than keeping fit and eating healthy so that your LDL, HDL, and tryiglycerides are in a healthy range. I know that there are some drugs that may be available in the near future to address elevated LP(a) but I believe that they are all in the experimental stage at this time. I'd be cautious of what some people say you should take for Lp(a) if it doesn't have sound medical evidence behind it.

As a result of another unrealted matter, I had a series of ultrasounds on my vascular system which showed that I had moderate blockage of one of my carotid arteries (heart, aorta, and everything else was all fine) so I am now taking a baby aspirin and a low dose of a statin (5mg of Crestor).

The LP(a) isn't a routine blood test but I am glad that I got it. Knowing I could be at higher risk for cardiovascular disease just leads me to continue to live a healthier life style. And, often when I reach for something to eat that may not be too healthy, I ask myself 'do I really want that' - sometimes I do, sometimes, I don't

Highly recommend looking into the coronary benefits of vitamin K2.

Um
"I don't take BP meds," But you take a Beta Blocker which is a BP med. It will take you BP Level down slightly, and some H/R digits.
But BBs Metoprolol or Bisoprolol did not control my Day H.R.
Stopped Bisoprolol from 2.5 to 1.25 to stop.
My PRO-BNP, Protein-Peptide the stress indicator went from 198 last Sept to 103 to 89 now no Bisoprolol.
My cholesterol and tryglycerides should drop too. Cholesterol 5.8 Total and Try - 3
cheri jOY