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src3acs
@src3acs

Posts: 12
Joined: Feb 26, 2018

Extreme fatigue

Posted by @src3acs, Feb 26, 2018

Good Morning, I am new here so this may have been discussed before. I was diagnosed with MAC in 2012 after I was diagnosed with breast cancer. I had a biopsy and lung wedge resection…both confirmed the MAC. In 2015 I had a bronchoscope done which again confirmed the MAC and bronchiectasis. I have seen a Pulmonologist, infectious disease and my primary care doctor. Everyone seems up in the air whether to treat or not. They seem to be leaving the decision up to me. I don't have a cough, I do have some shortness of breath occasionally but I am always tired. No matter how much I rest or sleep…..I am tired and sometimes exhausted after minor activity. Is fatigue a main symptom of the disease. Would treatment help my fatigue or make is worse. Thank you!

REPLY

@windwalker

@jweisser I went through all of the heart tests, bubble test included. My heart is fine. I guess they have to check all possibilities. I swear, I can't help but wonder if our food isn't what is making us have this gawd-aweful fatigue. There seems to be no explanation for it. My infections are not active, my bronchiectasis isn't that bad…..so I don't understand the constant fatigue.

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I feel the same way most all of the time, although I rarely eat food that is processed. I try to fight through it, but it feels overwhelming sometimes.

@jweisser

@terri M, You might be right about the food we eat. Way too many additives. I've just never had to contend with this kind of fatigue. When I'm sitting quilting or just relaxing I feel fine and think I can get up and do anything I want. Then once I do get up, I can only clean or cook for about 15 minutes until I'm totally wiped out. If nothing shows up on the tests, what in the world do you do? I have very bad body pain and I'm assuming that is just Fibromyalgia which I've had for years but I've never had the total fatigue. It's good to have someone to connect with. Thanks, Jan

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@jweisser I've got the same thing here; do anything for 15 mins and then am wiped out also. My husband makes fun of the way I do things. I do a little bit here, and a little bit there, until it gets done. It's all I can do. I used to to keep a super neat house. Now, it is impossible to keep every room straight at the same time. oh well….

@windwalker

@jweisser I've got the same thing here; do anything for 15 mins and then am wiped out also. My husband makes fun of the way I do things. I do a little bit here, and a little bit there, until it gets done. It's all I can do. I used to to keep a super neat house. Now, it is impossible to keep every room straight at the same time. oh well….

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@windwalker I think I need to quit thinking along the lines of 38 and remember I'm 78. I used to clean my whole house in a morning (small house) and now I can't do it in a week. I'm still frustrated because my doctor doesn't think I should be this tired with as few areas in my lungs. This week should be the heart valve test. We haven't worked our way to my legs yet??? Maybe it's my legs refusing to move. I know it's not funny but if I don't laugh I cry.

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