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New to exocrine pancreatic insufficiency (EPI): What helps?

Posted by jewill @jewill, Dec 6, 2016

I was dignosed with e p i. Exocrine pancreatic insuffency in 2015 after having a severe reaction to premarin estergen cream then 2 weeks later i had an even more sever reaction to an infusion of reclast it is a biphosphonates l am severly allergic to phosphates, dr did not check for that. i had diarrhea lost 20 lbs destroyed 90 % of my pancreas dr gave me creon 3600 2 with each meal low fat diet that is all the information i got from him did research on web for diet and supplments .need a dr in austin tx that knows more about e p i would apprecate any info on this thank you jewill

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luckylissa | @luckylissa | 11 hours ago

Please HELP! I was just diagnosed with EPI and the score for my confirming test was 145 and my GP wrote my Rx as 2 pills with each meal & 1 with snack up to 10 pills a day. I am taking Creon 36,000 and I see many people need to adjust the pill count depending on the type of meal. I am so confused about treatment and I am recovering from a fragility fracture in my femur which required surgery in May of this year. I was 51 years old when I fell onto a 1” thick cushioned mat and it was a true “Help! I’ve fallen and I can’t get up” moment. Any advice on how to try to figure out what dosage I right for me would be appreciated.

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fred41 | @fred41 | 1 hour ago
In reply to @luckylissa "Please HELP! I was just diagnosed with EPI and the score for my confirming test was..." + (show)
Profile picture for luckylissa @luckylissa

Please HELP! I was just diagnosed with EPI and the score for my confirming test was 145 and my GP wrote my Rx as 2 pills with each meal & 1 with snack up to 10 pills a day. I am taking Creon 36,000 and I see many people need to adjust the pill count depending on the type of meal. I am so confused about treatment and I am recovering from a fragility fracture in my femur which required surgery in May of this year. I was 51 years old when I fell onto a 1” thick cushioned mat and it was a true “Help! I’ve fallen and I can’t get up” moment. Any advice on how to try to figure out what dosage I right for me would be appreciated.

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@luckylissa
From what I have read here on this forum, I don't think there is a set way to figure out the dosage. I would try to find a doctor who deals with EPI. I see a gastroenterologist, and he has changed my dosage three times since he put me on Creon 36,000 capsules. I still have episodes of diarrhea. I hope that after I see a nutritionist, I can get my diet to help with the diarrhea. I hope you find a plan that helps you.

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