Evusheld Update

@rosemarya I really hope they get it all straightened out soon for you! It gets tiring to constantly be advocating to get our treatments, doesn't it? I was lucky to have the injections at my oncology center, and they had doses there given to them from a hospital that didn't want to deal with it.

My husband has the names of two semi-local hospitals that have available doses, per the list @joko provided, but he hasn't followed through on contacting them yet. I gave him my patient education information to take a look at.

Keeping my fingers crossed for you...
Ginger

Hi @rosemarya 😊
It's great to hear from you! Unfortunately, I have started to expect this type of administrative nonsense when dealing with my local doctors' offices. During the pandemic, most of the older experienced and competent office staff members either retired or left healthcare. The new office staff has problems with the basics. During an appointment, I was actually presented lab results that were another patient's results. I told the PA as she was reading the results to me, that "those results are definitely not my results". (She was handed the wrong documents by a staff member).
So your PCP office has staff that cannot fax and my doctor has admin staff that can't read.
Please keep us posted when she successfully sends the Evusheld order so we can celebrate together!

Good Lord. This is one of those times when you want to jump through the phone. However deep breathing and counting to eight helps. It helps to laugh at the increasing idiocy in our society.

Hi @rosemarya 😊
Okay, it's the next day....Please tell us the good news! Did the infusion center call you last night as promised? Did they successfully receive the faxed order from your local PCP office? Do you have your Evusheld appointment? 🙏
(If not, you may want to drive over to your PCP office this morning and pick up the order and then drive it to the infusion center yourself to get your Evusheld appointment). I know it sounds crazy, but at least you would finally have your appointment without further stress. Please let us know if all is well now. 🙂

@hello1234, I do not blame on my PCP or his staff, since it had been sucessfully sent and received. However, since transplant there have been circumstances whenI have had be a bit more aggressive with some local providers who are not familiar with needs of a transplant patient.
@joko, After having my family here for our Thanksgiving dinner on Sunday, I followed my own advice and I took a much needed nap yesterday afternoon with my phone nearby.
@gingerw, I am now getting somewhere with this!

So, midafternoon, I called my PCP office to verify that fax was sent and received. As soon as I hung up, I got a call from infusion center! We filled out the registration info over the phone, and I'm in the system to be scheduled. My papers are in the hands of the verification dept. who will be calling my PCP this morning. And I have already informed him.
I will then be called to schedule an appointment!

The nurse at the infusion is really surprised that I have to travel that far. I explained to her that as a transplant patient, who is at a distance from transplant center, situations like this happen. In my brief conversations with my PCP/nurse and the infusion nurse, I have gained an insight into what they are experiencing behind the scene, - and I hope that I have given them a new perspective of a transplant recipient's experience.

My PCP didn't know that there are specific forms to fill out for immune suppressed transplant patients. His team sought the correct forms, the doctor filled them out and I am getting my second Evusheld tomorrow.

@rosemarya 😊
Success!! Excellent news, thanks for the update!

UCLA says as of 11/21/22 they will no longer accept referrals for Evusheld but will continue to administer it for patients already scheduled until Dec 9, 2022. Their website says it's because most of the subvariants will be resistant. Anyone know if there will be an updated version of Evusheld? Husband is due to have his injections in Jan '23.

Very Interesting! I have not heard anything like that. I'm in Kentucky. I'll keep my ears open.

I am currently having a difficult time getting mine scheduled because of mixed messages between me, my local provider, and infusion center. sigh...

Hi all,
I just read an article that the effectiveness of both Evusheld and the bebtelovimab monoclonal antibodies infusion is waning. The current monoclonal antibodies are not neutralizing some of the new covid subvariants. It sounds like we need to be extra careful and go back to the basics.