My Experience on Evenity for Treating Osteoporosis

Posted by arlene7 @arlene7, Jul 7, 2020

Thought I would share for those considering or on Evenity for osteoporosis:
Afer much research and discussions with my GP and Cardiologist, I have decided to start my treatment with Evenity injections. As with all drugs, there are many side effects. My biggest concerns were stroke and heart attack. However, considering that I do no have any history for either, for me personally, the benefits outweigh the risks. As my GP said to me, "if everyone only thought about the side effects of the drugs, no one would be taking them".

I had my first injections (subcutaneously in the back of each arm) on June 30th. The nurse that administered the injections discussed the drug in depth, along with all the possibilities that may occur. She also mentioned that for all the patients that she has seen, none has had any side effects.

The injections are once a month for only one year, so I'm hoping that this works well for me and I can improve my bone density, especially in my spine, where I need it the most.

My endocronologist has also prescribed Hydrochlorthiazide for my idiopathic hypocalcemia. I have an appointment with an allergist this month to confirm whether I still have an allergy to sulfa drugs, since this drug contains sulfa. Apart from this I take D3 orally and try to obtain additional calcium through foods not supplements. Trying to walk 3-4 times a week and will begin with a few weight bearing exercises.

My journey began September, 2019 when I was diagnosed with severe osteoporosis. After waiting to see three doctors, receiving three denials from insurance company for Evenity, which took several months, I am hopefully on my way for a favorful outcome.

Interested in more discussions like this? Go to the Bones, Joints & Muscles group.

Hi – I just finished my 12 injections of Evenity. I had no real weight gain. Im waiting for my DEXA scan next month to see how the medicine worked. Im wondering if anyone else has finished and if they saw some results.

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thank you so much for this guide

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@readhead1226

I just finished my 1 year on Evenity. No side effects. Waiting on my new DEXA scan and want to know if anyone had improvement.

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Congratulations for achieving à great goal. Please post your Dexa results now and before Evenity. I also can’t wait to see how much you improved and Keep my fingers crossed.

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@saz

Congratulations for achieving à great goal. Please post your Dexa results now and before Evenity. I also can’t wait to see how much you improved and Keep my fingers crossed.

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I will be doing my DEXA scan in July and will def post my results. Has anyone else done this?

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@readhead1226

I will be doing my DEXA scan in July and will def post my results. Has anyone else done this?

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Apparently no body posted Dexa results after completing the treatment. Only before.
Are you waiting for July according to a particular reason?
I will receive my fourth shot end of May. My Dexa was below 4,7 and I am 64 years old. I had 3 fractures in the last 3 years (9 altogether since I was a child) and I used to maintain a very healthy lifestyle.

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@readhead1226

Hi – I just finished my 12 injections of Evenity. I had no real weight gain. Im waiting for my DEXA scan next month to see how the medicine worked. Im wondering if anyone else has finished and if they saw some results.

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Hi! Congratulations for achieving one so difficult goal without any side effect ! When you will have your DEXA results on July please inform us . I am 67 years old and I suffer from osteoporis . On September 2021 I fell on the street and broke my wright thighbon and my wright wrist straight away . Now I just started the treatment with Evenity ( after my doctors advice ) last week without any problem but I have as you had some concerns about side effects .

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@artscaping

@arlene7. Thank you so much for sharing your experience with Evenity. I noted the statement about "everything" has side effects. I think that is true and the challenge becomes to make sure Evenity or other bone medications don't have an interaction with our current drugs or treatments. I also have an allergy to sulfa drugs…..so you did have and now it is possible that you will not have an allergic reaction to sulfa. No more rolling on the carpet naked to take care of the itching. Now that I have the neuropathic itch, I don't need anything else.

Arlene, there is one question about Evenity, I think many of us would like to hear. How long do you take Evenity? 2 years? And then what? I always want to know what comes next to protect the bone that is developed.

You have my good wishes for a helpful outcome. Please check in with us as you begin this journey. You have persevered beautifully. Now all you have to do is share …….. not a bad deal.

Be safe and protected from inner and outer harm.
Chris

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It was interesting to read everyone’s experiences. I began treatment in November, 2021 and have completed 6 months of the year long plan. My side affects are mostly of swelling at the injection site in my arms and fatigue the day after. I’ve found using massage, heat packs, and sometimes lavender oil to help the medication disperse more quickly. My left arm seems to hold the fluid longer which accounts for the different methods to help with the swelling and fluid dispersement. In general I feel great. Like many of you, my spine is the main reason I began this protocol and hope it is successful. I’ll continue to check back to see how our journeys are progressing.

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Arlene 7, I am new to Mayo Clinic Connect and I am not sure how this works or how to continue the discussions. My doctor has suggested Evenity or Prolia. I have been on Forteo and did not due well and was also on Boniva for a while. How did the Evenity work out for you. Were there any side effects, are you doing okay now?

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@angie13

Arlene 7, I am new to Mayo Clinic Connect and I am not sure how this works or how to continue the discussions. My doctor has suggested Evenity or Prolia. I have been on Forteo and did not due well and was also on Boniva for a while. How did the Evenity work out for you. Were there any side effects, are you doing okay now?

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@arlene 7, I am new to Mayo Clinic Connect and I am not sure how this works or how to continue the discussions. My doctor has suggested Evenity or Prolia. I have been on Forteo and did not due well and was also on Boniva for a while. How did the Evenity work out for you. Were there any side effects, are you doing okay now?
Figured out I needed the @

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@angie13

@arlene 7, I am new to Mayo Clinic Connect and I am not sure how this works or how to continue the discussions. My doctor has suggested Evenity or Prolia. I have been on Forteo and did not due well and was also on Boniva for a while. How did the Evenity work out for you. Were there any side effects, are you doing okay now?
Figured out I needed the @

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@angie13 do you mean that your bone density did not improve on Forteo? Did you do it for two years? Evenity and Prolia work differently. If your osteoporosis is still severe perhaps Evenity is better. You take it for one year.

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@windyshores

@angie13 do you mean that your bone density did not improve on Forteo? Did you do it for two years? Evenity and Prolia work differently. If your osteoporosis is still severe perhaps Evenity is better. You take it for one year.

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@angie13 I had to stop the Forteo because of the side effects after one month. Dizziness and unsteadiness in my legs, stomach issues exasperated my gerd. Heart issues I have heard about make me hesitate on the Evenity

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@angie13

@angie13 I had to stop the Forteo because of the side effects after one month. Dizziness and unsteadiness in my legs, stomach issues exasperated my gerd. Heart issues I have heard about make me hesitate on the Evenity

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@angie13 do you have high risk for stroke or heart attack?

Have you considered Tymlos? It does the same thing as Forteo but some of us do better in terms of side effects with Tymlos, because the pen has "clicks" unlike Forteo, which is only one (full) dose. I started with two clicks and moved up slowly and am now on 6 or 7. A full dose is 8 but my doc is fine even with 6. I am guided by side effects.

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