My Experience on Evenity for Treating Osteoporosis

Posted by arlene7 @arlene7, Jul 7, 2020

Thought I would share for those considering or on Evenity for osteoporosis:
Afer much research and discussions with my GP and Cardiologist, I have decided to start my treatment with Evenity injections. As with all drugs, there are many side effects. My biggest concerns were stroke and heart attack. However, considering that I do no have any history for either, for me personally, the benefits outweigh the risks. As my GP said to me, "if everyone only thought about the side effects of the drugs, no one would be taking them".

I had my first injections (subcutaneously in the back of each arm) on June 30th. The nurse that administered the injections discussed the drug in depth, along with all the possibilities that may occur. She also mentioned that for all the patients that she has seen, none has had any side effects.

The injections are once a month for only one year, so I'm hoping that this works well for me and I can improve my bone density, especially in my spine, where I need it the most.

My endocronologist has also prescribed Hydrochlorthiazide for my idiopathic hypocalcemia. I have an appointment with an allergist this month to confirm whether I still have an allergy to sulfa drugs, since this drug contains sulfa. Apart from this I take D3 orally and try to obtain additional calcium through foods not supplements. Trying to walk 3-4 times a week and will begin with a few weight bearing exercises.

My journey began September, 2019 when I was diagnosed with severe osteoporosis. After waiting to see three doctors, receiving three denials from insurance company for Evenity, which took several months, I am hopefully on my way for a favorful outcome.

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

Profile picture for singingbones @singingbones

@laura1961 - I still have 5 more Evenity injections to go, so I can't start Strontium Citrate until then. I have not had what they call adverse reactions to Evenity, but I have had many of the side effects. I just don't like that a drug can do so much to my body. And I certainly don't want to introduce another harsh drug into my body to maintain gains.

I plan to wait a month after my last injection and then start SC. I'm also having my hormones reevaluated in light of bone integrity. Both SC and HRT seem like more natural approaches to addressing osteoporosis.

I'll get a REMS scan after approx 6-mo to determine if I'm on the right path or not.

Did you check out inspire.com to read about the success stories for SC?
https://www.inspire.com/m/Kathleen1314/journal/d69831-strontium-users-stories-3-alternative-to-pharma-meds/reply/11776557048344733497/

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@singingbones I have not started SC as yet. I am doing my xercises to try to build bone. Thanks for the link I will have a look.

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Profile picture for grammy9 @grammy9

@passerby Trust me if took me a year to start Evenity, I was so scared. I don't have any heart issues though. I did get an ekg and a heart scan prior. Evenity injections are no fun but I just don't have many side effects and definitely would do again is it was available. I am 63 .

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@grammy9 I am 64 hope all is going well for you.

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Profile picture for grammy9 @grammy9

@laura1961 yes I am going to do the Prolia. I have 2 more Evenity injections. Evenity was wonderful...no issues at all.

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@grammy9 Hope all is going well, please keep us posted

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Profile picture for singingbones @singingbones

@laura1961 - I still have 5 more Evenity injections to go, so I can't start Strontium Citrate until then. I have not had what they call adverse reactions to Evenity, but I have had many of the side effects. I just don't like that a drug can do so much to my body. And I certainly don't want to introduce another harsh drug into my body to maintain gains.

I plan to wait a month after my last injection and then start SC. I'm also having my hormones reevaluated in light of bone integrity. Both SC and HRT seem like more natural approaches to addressing osteoporosis.

I'll get a REMS scan after approx 6-mo to determine if I'm on the right path or not.

Did you check out inspire.com to read about the success stories for SC?
https://www.inspire.com/m/Kathleen1314/journal/d69831-strontium-users-stories-3-alternative-to-pharma-meds/reply/11776557048344733497/

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@singingbones I have joined the page thank you & will have a look into some more natural treatments.

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Profile picture for passerby @passerby

@grammy9 then why am I so scared...already been dx with coronary artery disease
But I'm So happy to read that's been good for you and all Best Wishes for restored bones --- how old are you? I'm 72.5. Thank you

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@passerby I am 64

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