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My Experience on Evenity for Treating Osteoporosis
Thought I would share for those considering or on Evenity for osteoporosis:
Afer much research and discussions with my GP and Cardiologist, I have decided to start my treatment with Evenity injections. As with all drugs, there are many side effects. My biggest concerns were stroke and heart attack. However, considering that I do no have any history for either, for me personally, the benefits outweigh the risks. As my GP said to me, "if everyone only thought about the side effects of the drugs, no one would be taking them".
I had my first injections (subcutaneously in the back of each arm) on June 30th. The nurse that administered the injections discussed the drug in depth, along with all the possibilities that may occur. She also mentioned that for all the patients that she has seen, none has had any side effects.
The injections are once a month for only one year, so I'm hoping that this works well for me and I can improve my bone density, especially in my spine, where I need it the most.
My endocronologist has also prescribed Hydrochlorthiazide for my idiopathic hypocalcemia. I have an appointment with an allergist this month to confirm whether I still have an allergy to sulfa drugs, since this drug contains sulfa. Apart from this I take D3 orally and try to obtain additional calcium through foods not supplements. Trying to walk 3-4 times a week and will begin with a few weight bearing exercises.
My journey began September, 2019 when I was diagnosed with severe osteoporosis. After waiting to see three doctors, receiving three denials from insurance company for Evenity, which took several months, I am hopefully on my way for a favorful outcome.
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@dmshope Thank you! Sometimes its not to horrible but I do usually get a lump for a day or two. It's not horrible at all though. I get my dexa next month and I am anxious to see my results. What are you doing next? I have decided to do Prolia for 2 to 3 years. I did aldronate before Evenity.
I was diagnosed with severe OP in Aug 25 following a no trauma pelvis fracture. DEXA results T scores Lumbar spine -3.5 and Femoral neck -3.1.
I started Romosozumab injections (Evenity) that I self-administer into belly. No pain at all, literally! Not even particularly hard to do mentally, though the first ones were a little scary. I practised with just a sterile needle into my belly to get over the shock of self-administration.
I do have narrowing of one of my coronary arteries. It is classified as mild- moderate. I have never had a heart attack or stroke and have been on a statin since 2024. My cholesterol series is good, I exercise, watch what I eat and am losing weight. My cardiologist OKed me starting Evenity as he considered my risk to be managed.
My plan after this is to go onto Reclast infusion.
I understand that everyone has their own journey, and we are all at different levels of disease, but I think it is very important that we put the risk of side effects into perspective. My OP was severe, so my risk of vertebral or other fracture was significant and likely. I have already got one vertebra that has started to collapse. Fractures are debilitating and can be permanently life altering. The risk of side effects for each drug is available in the literature and is often a very small risk. The risks on both sides of the equation need to be assessed to be able to make balanced decisions. Fear of an event that is nasty but has a 0.01% chance of happening vs a potentially nasty fracture which has a 10% chance of happening. I know which way I have jumped.
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2 Reactions@dmshope please lmk about your DEXA scan. Best wishes!!
@jemimaandbigted
Thanks to all for your experience on Evenity. While making a decision for Evenity I made appt with Cardiologist first. I have good insurance and it approved this drug, however, while 80% is covered, the 20% co-pay to me amounts to $500 a month until the cap kicks in or 5-6 months. I must still weigh all options, but that was a shocker.
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1 Reaction@pechu
Sadly, we do have to take money into account as it doesn't grow on trees! Hopefully, you can make a decision that is a good one for your health as well. Fortunately, I live in Australia and I meet the criteria for it to be a government subsidised medication. I only pay $ 30-40 each month