Erythema Nodosum

Posted by lilcuti @lilcuti, Sep 11, 2020

Hello, I am new to this so please bare with me. I found this while trying to google doctors in my area that specialize in EN. I happened to find this group and it was comforting to know that I am not suffering with this alone. I have been struggling with this for at least 10 years and steroids were helping with the outbreaks but seems they have recently stopped working. I have a flareup right now and its the worse one I've every had. My legs and ankles are all swollen and my shoes aren't fitting and I am so tired of "experimenting" with all these different drugs and dosages that just aren't working. I am currently taking Indomethacin 50mg to help with the inflammation and Nexium so that it doesn't upset my stomach but as usual it doesn't seem to be working. Does anyone know of a doctor that specializes in this condition that won't look at me crazy when I tell them how painful and uncomfortable it is? Has anyone found a medication or an underlying cause? Thanks for any and all help and I pray relief for those going through this.

How frustrating – begging to get a return call from someone who took the Hippocratic Oath. Please keep us posted.

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I finally got someone to answer the phone at the rheumatologist and they said they will not make and appointment unless I got a referral! I also got a call from the pharmacist saying that since my doctor has now prescribed Hydroxycloroquine to take along with the prednisone the pharmacist has to call my dr to ask WHY I need it because of COVID to see if I’m approved to get it! Since when does Pharmacist question doctors??? Have I missed something? I feel so defeated right now.

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@lilcuti I’m awaiting a reply that answers your question as it makes no sense to me.

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@lilcuti

Thank you I need all the support I can get. I feel so alone with this.

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@lilcuti please reach out whenever you need to. You are NOT alone.

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@lilcuti

I finally got someone to answer the phone at the rheumatologist and they said they will not make and appointment unless I got a referral! I also got a call from the pharmacist saying that since my doctor has now prescribed Hydroxycloroquine to take along with the prednisone the pharmacist has to call my dr to ask WHY I need it because of COVID to see if I’m approved to get it! Since when does Pharmacist question doctors??? Have I missed something? I feel so defeated right now.

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@lilcuti, were you able to get a referral to the rheumatologist? Did you get the prescription filled?

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I was finally able to get my prescription filled about 2 hours ago! The doctor had to reduce the dosage he originally prescribed for them to fill it! He is referring me to another dermatologist 1st so I am waiting to get a call from them to see if another doctor can help. If the 2nd dermatologist doesn’t work he will then refer me to rheumatologist. So prayerfully the medicine will work I start taking them both in the morning. Thanks for checking on me I truly appreciate it.

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