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lilcuti (@lilcuti)

Erythema Nodosum

Autoimmune Diseases | Last Active: Sep 18, 2020 | Replies (18)

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@johnbishop

Hi @lilcuti, I would like to add my welcome to Connect along with @gingerw. You might also be interested in another discussion on Connect where other members share your symptoms and learn what has helped them.

Chronic Erythema Nodosum & Ehlers-Danlos Syndrome (EDS): https://connect.mayoclinic.org/discussion/chronic-erythema-nodosum/

You mentioned your legs and ankles being swollen. I also have lymphedema in my legs and wear compression socks which help with the swelling during the day. I found an article I thought you might find interesting and could possibly discuss with your doctor — Compression stockings as an effective treatment for erythema nodosum: Case series: https://www.sciencedirect.com/science/article/pii/S2352647517300643

I think a doctor that specializes in diagnosing and treating Erythema Nodosum is a rheumatologist or dermatologist but I'm not sure. As @gingerw mentioned, Mayo Clinic or a large teaching hospital would be an excellent choice if it's a possibility.

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Replies to "Hi @lilcuti, I would like to add my welcome to Connect along with @gingerw. You might..."

Thank you I will read the articles that you suggest and I appreciate your help. I do have compression stockings that were recommended years ago but this outbreak is so painful I can’t bare to get them on right now