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lilcuti (@lilcuti)

Erythema Nodosum

Autoimmune Diseases | Last Active: Sep 18, 2020 | Replies (18)

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@gingerw

@lilcuti Welcome to Mayo Connect. We are not doctors, but fellow patients, family members, and caregivers who share our experiences and strength with others.

Your symptoms sound uncomfortable to say the least! While i also live with autoimmune disorders, this one I am not familiar with, so I looked it up. NCBI, the National Center for Biotechnology Information, published an article this past June that may give you some information: https://www.ncbi.nlm.nih.gov/books/NBK470369/
Also, there is an article from John Hopkins Medicine https://www.hopkinsmedicine.org/health/conditions-and-diseases/erythema-nodosum
While both point to a possible spectrum of causes, it can take time to figure out what the underlying reason is. Have you experienced any of the possible causes these articles refer to?
If you live near one of the Mayo Clinic campuses, or a large teaching hospital, you may have more success getting to the root of it all and finding relief.
I would like to hear more about what might have brought this condition on!
Ginger

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Replies to "@lilcuti Welcome to Mayo Connect. We are not doctors, but fellow patients, family members, and caregivers..."

Thank you so much I will definitely check out the articles and will get back to you. I really appreciate you taking the time to help me they are very painful and right now they are out of control. I’ll get back soon and share what I find. Thanks again

Thank you for the articles, I have read them and I think at this point the only thing left to do is bed rest because I’m not getting any better. I am on day 7 of Indomethacin which I have to take for 10 days and there has been no change actually getting worse. The doctor told me as last resort we could try steroid injections directly into the knots but I gave so many it would take hours and that would be torture unless they put me to sleep! I am at a lost so I’m thinking I should email him about giving bed rest a try.