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Erosive Osteoarthritis

Posted by anniebrook @anniebrook, Feb 12, 2021

I have been trying to get answers for many years to find out why my OA in my hands is so painful and debilitating. It doesn't look as bad to the eye as many other people I have met that also have OA but have huge joint nodes but say it's not too painful. I had the traditional basal thumb surgery on left and right hands,left went well 10yrs ago but right which I had one yr later has never been pain free.. About 6 mths ago the pain in the back of my right wrist became so much worse at the same time a large lump appeared.I thought this was probably a Ganglion then a few weeks later a softer round lump appeared on the dip joint on the inside of my right little finger which as made the joint very swollen. Eventually got Xrays of both hands which have now been diagnosed as Erosive Osteoarthritis which I have never heard of. Prognosis doesn't look good with this type of OA. Has anyone else been diagnosed with this and do I ask to be referred to a Rheumatologist ? How do I deal with this ? Is there any meds I can take for pain and to slow down the progression ? Thank you

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loriesco | @loriesco | Apr 14 5:27pm
In reply to @msmcecelia "I know what you’re going through. I attached the MRI from 2019. Disc degeneration is awful..." + (show)
Profile picture for msmcecelia @msmcecelia

I know what you’re going through. I attached the MRI from 2019. Disc degeneration is awful and has been progressively taking more joy from life. Last year I had a fourth epidural injection and it made pain worse so I bought a mobility scooter. I am accepted into a Pain Clinic at a nearby hospital and they will try nerve ablation. I hope that is helpful. Their next treatment is meditation, deep breathing and counselling which I have done for 30 years plus I had acupuncture for years. For the last 15+ years I slept on the floor with a thin portable pad, necessary for some sleep. We finally bought a very firm mattress last year so helpful and not be bothered with the floor. Hah my knees have arthritis so getting up was a problem. It is helpful to know my condition isn’t unique. We can always feel the empathy from others.

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try exercise when you can. It helps keep us strong. Only through the low dose of opioid use can I exercise, and it helps a lot. Yes, the degeneration is unexpected in our lives. But what is the option? hugs.

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heyjoe415 | @heyjoe415 | Apr 15 7:38am
In reply to @msmcecelia "I tried topical Diclofenac (Voltaren) 2% in drugstore without a prescription, but it isn’t effective for..." + (show)
Profile picture for msmcecelia @msmcecelia

I tried topical Diclofenac (Voltaren) 2% in drugstore without a prescription, but it isn’t effective for me. I have a 10% Diclofenac cream through prescription.
It truly helps, I have often woken up 4-6 am to stop the burning stabbing knee pain. My knees are so eroded and severe to bone on bone. Also I take Diclofenac tablets 2x daily with a full meal. I tried Celebrex first for a few years and and it stopped working and I gained a lot of weight.

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Hi msm,

Thanks for this info. I take Diclofenac tabs 2x daily with food as well for my shoulder. I have tried Celebrex and IMO Diclofenac works better. It is harder on the stomach though, and I don't know if it's ok to use long term.

I was not aware that there is an Rx-strength version of the cream/gel. I'll check that out, and thanks.

Are you considering a total replacement for one or both knees? I had both of mine replaced, 4 months apart, in 2022. I was 68 y/o at the time. Best thing I've done for myself, all pain gone. Post-op rehab is a must.

All the best.

Joe

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bswpb | @bswpb | Sep 20 1:55pm
In reply to @johnbishop "Hi Elizabeth @ess77, I don't have much knowledge on Plaquenil but did find two articles that..." + (show)
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Hi Elizabeth @ess77, I don't have much knowledge on Plaquenil but did find two articles that mention it's use in treating the conditions.

"As a treatment for sarcoidosis, the antimalarial drug hydroxychloroquine (Plaquenil®) is most ... Severe vasculitis can be associated with exudates that." -- SARCOIDOSIS TREATMENT GUIDELINES: https://www.stopsarcoidosis.org/wp-content/uploads/FSR-Physicians-Protocol1-1.pdf

"Antimalarials - Chloroquine and hydroxychloroquine have been frequently used in treatment of sarcoidosis based on early randomized trials that showed a long-term benefit with chloroquine (56). However, based on the better safety profile, hydroxychloroquine is most often preferred. The mechanisms of action for hydroxychloroquine are varied; it can interfere with antigen presentation, prevent T cell activation, inhibit toll-like receptor signaling, and reduce inflammatory cytokines by T cells and B cells (57). Hydroxychloroquine has been particularly useful in cutaneous disease, hypercalcemia, and in some cases of neurosarcoidosis (58–60). Although gastrointestinal side effects are commonly reported with use of hydroxychloroquine, they are generally mild and well-tolerated (61)." -- Treatment of Sarcoidosis: A Multidisciplinary Approach: https://www.frontiersin.org/articles/10.3389/fimmu.2020.545413/full

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Interesting. I was diagnosed with Sarcoidosis in the 90's. The only treatment I was ever offered was prednisone. I refused. It took about 10 years but it did become inactive. Now I have B cell Vasculitis, Sjogren's Syndrome and possibly RA. I was put on hydroxyquinalone first then prednisone was added and I am to start Rituxan in a week.

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celia16 | @celia16 | Sep 28 7:01am

I am trying to figure something out regarding a friend. I don’t want to pry, but is there an association in this condition and oxygen therapy? Any thoughts appreciated.

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2 replies
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heyjoe415 | @heyjoe415 | Oct 1 5:43am
In reply to @celia16 "I am trying to figure something out regarding a friend. I don’t want to pry, but..." + (show)
Profile picture for celia16 @celia16

I am trying to figure something out regarding a friend. I don’t want to pry, but is there an association in this condition and oxygen therapy? Any thoughts appreciated.

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Hi Celia,

You can do a search of all open forums here on Mayo. I think if you go to the search box at the top of the page and enter "oxygen therapy" you should find something.

If that doesn't work, you can start your own thread/discussion group - it's best done by asking a specific question. It's a little clunkier to set up - I think it starts by searching for existing threads first, but it can be done. I've done it but don't remember exactly what the steps are.

Hope this helps.

Joe

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gently | @gently | Oct 1 3:52pm
In reply to @celia16 "I am trying to figure something out regarding a friend. I don’t want to pry, but..." + (show)
Profile picture for celia16 @celia16

I am trying to figure something out regarding a friend. I don’t want to pry, but is there an association in this condition and oxygen therapy? Any thoughts appreciated.

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@celia16, hi.
Hyperbaric oxygen therapy is said to help avascular bone. Here is a link:
https://pubmed.ncbi.nlm.nih.gov/39940834/
I hope it helps your friend and I 'm glad you are looking out for her.

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1 reply
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heyjoe415 | @heyjoe415 | Oct 3 6:53am
In reply to @gently "@celia16, hi. Hyperbaric oxygen therapy is said to help avascular bone. Here is a link: https://pubmed.ncbi.nlm.nih.gov/39940834/..." + (show)
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@celia16, hi.
Hyperbaric oxygen therapy is said to help avascular bone. Here is a link:
https://pubmed.ncbi.nlm.nih.gov/39940834/
I hope it helps your friend and I 'm glad you are looking out for her.

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Thanks Gently,

Thanks! This is interesting. Any ideas on where I can find it?

Joe

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1 reply
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heyjoe415 | @heyjoe415 | 6 days ago
In reply to @gently "@heyjoe415, most university hospitals have HBO chambers. https://www.mayoclinic.org/tests-procedures/hyperbaric-oxygen-therapy/care-at-mayo-clinic/pcc-20394387 What city?" + (show)

Thanks Gently, much appreciated. And thanks for that link.

It looks like these chambers are used for very specific ailments. And I'm very fortunate not to have any of them.

I'm a gym rat and love cardio (spin 6x/week) and I'm always interested in how to improve oxygen delivery, VO2 max.

I think the answer is "keep working hard", and I do that cause I just turned 71 and want to stay healthy and, ideally, work out until the day I die. We'll see about that!

Thanks again Gently, much appreciated.

Joe

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gently | @gently | 6 days ago

heyjoe415, https://pmc.ncbi.nlm.nih.gov/articles/PMC8825926/
There are spa businesses that have single person hyperbaric oxygen chambers. Keep working hard, but get massages and at least try the chamber.

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