1. < Bones, Joints & Muscles

Erosive Osteoarthritis

Posted by anniebrook @anniebrook, Feb 12, 2021

I have been trying to get answers for many years to find out why my OA in my hands is so painful and debilitating. It doesn't look as bad to the eye as many other people I have met that also have OA but have huge joint nodes but say it's not too painful. I had the traditional basal thumb surgery on left and right hands,left went well 10yrs ago but right which I had one yr later has never been pain free.. About 6 mths ago the pain in the back of my right wrist became so much worse at the same time a large lump appeared.I thought this was probably a Ganglion then a few weeks later a softer round lump appeared on the dip joint on the inside of my right little finger which as made the joint very swollen. Eventually got Xrays of both hands which have now been diagnosed as Erosive Osteoarthritis which I have never heard of. Prognosis doesn't look good with this type of OA. Has anyone else been diagnosed with this and do I ask to be referred to a Rheumatologist ? How do I deal with this ? Is there any meds I can take for pain and to slow down the progression ? Thank you

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dlsparks | @dlsparks | Jan 5 1:10pm
In reply to @JustinMcClanahan "Hello @dlsparks, I moved your most recent post about erosive osteoarthritis to an existing discussion where..." + (show)
@JustinMcClanahan

Hello @dlsparks, I moved your most recent post about erosive osteoarthritis to an existing discussion where you met other members discussing this diagnosis:

"Erosive Osteoarthritis"
- https://connect.mayoclinic.org/discussion/erosive-osteoarthritis/

@chris7121 , @parrotqueen, @heyjoe415, @mememc52 and @ljbrindle are a few members who have posted in this discussion and may have some more insight to offer.

@dlsparks, if you are comfortable sharing, have you been officially diagnosed with this type of osteoarthritis, but your current provider has no more insight to offer?

Jump to this post

I was diagnosed by xrays. It was later confirmed that i did not have rhumitoid arthritis. deinitely erosive. i was only diagnosed in August. So I’m really just getting started on this. I see a lot of people have been in it for quite a while and they’re in a lot of pain. Right now I’m not in too much pain and I am working with my acupuncturist as individual fingers start to really hurt so we’ll see if that lasts the help that he can give me. I’ve just been kind of wondering, what the hell was going on because I can’t find I couldn’t find anybody that knew anything so I appreciate all your people helping me and telling me and it looks like there might not be any light at the end of the tunnel for this stuff but at least if you know what you’re fighting you can get ready for it. Thanks again everybody.

REPLY
dlsparks | @dlsparks | Jan 5 1:12pm
In reply to @mypet98 "I have erosion osteo-arthritis, it's rare, not understood by medical and non-medical people. It is in..." + (show)
@mypet98

I have erosion osteo-arthritis, it's rare, not understood by medical and non-medical people. It is in my left femur, makes standing and walking difficult. I try my best to eat foods recommened for arthritis, try to avoid sugar but it is difficult. Gels, rubs help. Salonpas, Voltarian, pain relief drugs have been helpful. Some Teas are calming. Yes, hanging there is a good description, that's what I do.

Jump to this post

see. I have been told that it can only be in your fingers on your toes so they really don’t know very much about this. You’re right so good luck I can’t imagine not having it someplace like that.

REPLY
dlsparks | @dlsparks | Jan 5 1:17pm
In reply to @JustinMcClanahan "Hello @dlsparks, I moved your most recent post about erosive osteoarthritis to an existing discussion where..." + (show)
@JustinMcClanahan

Hello @dlsparks, I moved your most recent post about erosive osteoarthritis to an existing discussion where you met other members discussing this diagnosis:

"Erosive Osteoarthritis"
- https://connect.mayoclinic.org/discussion/erosive-osteoarthritis/

@chris7121 , @parrotqueen, @heyjoe415, @mememc52 and @ljbrindle are a few members who have posted in this discussion and may have some more insight to offer.

@dlsparks, if you are comfortable sharing, have you been officially diagnosed with this type of osteoarthritis, but your current provider has no more insight to offer?

Jump to this post

thanks for moving me over to the other group. I’ve gotten quite a bit of information by reading their posts. I definitely have a arthritis in my hands. It was found by x-ray isn’t confirmed by blood test that I don’t have women toward arthritis my PA here in Cortez I’ve never even heard of it. I went to rheumatologist over Duran Duran, Duran Duran, Durango, Colorado, and he never heard of. I mean, I think he heard about it, but he didn’t know anything and he didn’t bother to do any research before I saw him for the second time with the results of my blood test, so that’s why I felt so out there with no help so this has really helped. Can’t say it’s very uplifting, but at least gives me away to know what I’m up against thanks again

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