Erosive Osteoarthritis

Posted by anniebrook @anniebrook, Feb 12, 2021

I have been trying to get answers for many years to find out why my OA in my hands is so painful and debilitating. It doesn't look as bad to the eye as many other people I have met that also have OA but have huge joint nodes but say it's not too painful. I had the traditional basal thumb surgery on left and right hands,left went well 10yrs ago but right which I had one yr later has never been pain free.. About 6 mths ago the pain in the back of my right wrist became so much worse at the same time a large lump appeared.I thought this was probably a Ganglion then a few weeks later a softer round lump appeared on the dip joint on the inside of my right little finger which as made the joint very swollen. Eventually got Xrays of both hands which have now been diagnosed as Erosive Osteoarthritis which I have never heard of. Prognosis doesn't look good with this type of OA. Has anyone else been diagnosed with this and do I ask to be referred to a Rheumatologist ? How do I deal with this ? Is there any meds I can take for pain and to slow down the progression ? Thank you

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@loriesco

Hey Joe! Wow, you’re a champ! I will be returning for another lumbar surgery at some point adjacent to the areas where I had my fusion L3, L4, L5. I’m just a mess right now. But I started an exercise routine because I couldn’t think of anything else to do because I’m not quite ready another surgery. With my dogs, torn knee ligaments it slowed my walking down so now I’m on a stationary bicycle in the morning for about 30 minutes to an hour before I mosey him around the block.
Regarding the OA, I had bad inflammatory reactions, especially provoked by exerting myself (which means it’s hard to exercise because it stimulates an inflammatory reaction). I went to a hand surgeon. The best there is after research and there was nothing he could do with all the arthritis my hand and wrist are loaded with. But now I have no pain in my hands when I could control the uric acid levels that come with hyperuricemia. the chart cherry capsules – the ZAZZEE work great the ones in the health food store don’t have the same amount of stuff in it. After being on the allopurinol for a few months, my uric acid levels were normal exactly at normal. When I first had gout 23 years ago, I don’t know if anybody tested my uric acid levels. The only thing they would tell me was that if I continue to have the gout flares, they would have to biopsy my joints. But I learned to control the gout, flares with a joint juice I would make of KNUSDEN brand, black cherry juice a little apple cider vinegar and some lemon juice, and then a bunch of water or white soda, and a proportion of like five to one five parts water to one part of the concoction. I down that and then after a couple hours the gout would be gone, so I never went back to the doctor for it. Over the years I would have more of an inflammatory reaction after I would exert myself and they would just say it was the OA nobody ever tested for gout. I asked my doctor how crazy that was. She really had nothing to say. I’m lucky she gives me whatever test I asked for cause it makes sense and she’s happy. I do the math. I still keep the ZAZZEE. Tar cherry capsules around because I will still flare on the allopurinol when the weather is really bad or I’ve eaten some sugar or farmed fish as I am on the lowest dose of allopurinol.
So how are you liking your new hip? I loved mine after about three months. At five months I could do my first chalk art in the street the first night or two in the hospital are always killers for me but then it’s amazing to see how much pain is gone.. I think you are like me and you are no longer afraid of the surgeries because you see how great it makes your life afterward. I did kind of wonder what happened to you there for a few weeks, but I was pretty distracted myself. I wish you a successful and complete recovery, your buddy Lori!

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Thanks so much for your kind words Lori. It sounds like you're doing better, albeit with a lot of frustration on the long road to answers. I'm sorry you're having trouble with your back after fusion surgery.

My right hip is doing great, thanks for asking. I was back on the stationary bike 16 days after surgery! It helps that I have an excellent surgeon (same Dr. who did my knees), excellent hospital and staff, weight loss - I dropped 30 lbs in the last year or so, from 190 to 160. And while I inherited osteoarthritis from my Mom, I also inherited her stamina/endurance and ability to heal very quickly.

How are you doing after the lumbar fusion? My lumbar spine is a disaster area - scoliosis, stenosis, listhesis, degenerative/degenerated discs. My spine surgeon told me all that is keeping me from fusion is my strong core muscles, so I am in the gym everyday. I've had sciatica twice, but not for the last 15 or 16 years. Fusion surgery scares me a bit.....

And it is weird how many people are so afraid of joint replacement. They walk around in incredible pain. And unfortunately, for too many people who do have the surgery, they simply don't follow through on the rehab, or only rely on twice weekly sessions with a therapist. My motto for prehab and rehab is to get obsessed and stay obsessed. Yes it hurts after surgery. But every day feels a little better if you stick with the exercises 3x/day.

Alright my good friend. Take care of yourself!

Joe

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@heyjoe415

Thanks so much for your kind words Lori. It sounds like you're doing better, albeit with a lot of frustration on the long road to answers. I'm sorry you're having trouble with your back after fusion surgery.

My right hip is doing great, thanks for asking. I was back on the stationary bike 16 days after surgery! It helps that I have an excellent surgeon (same Dr. who did my knees), excellent hospital and staff, weight loss - I dropped 30 lbs in the last year or so, from 190 to 160. And while I inherited osteoarthritis from my Mom, I also inherited her stamina/endurance and ability to heal very quickly.

How are you doing after the lumbar fusion? My lumbar spine is a disaster area - scoliosis, stenosis, listhesis, degenerative/degenerated discs. My spine surgeon told me all that is keeping me from fusion is my strong core muscles, so I am in the gym everyday. I've had sciatica twice, but not for the last 15 or 16 years. Fusion surgery scares me a bit.....

And it is weird how many people are so afraid of joint replacement. They walk around in incredible pain. And unfortunately, for too many people who do have the surgery, they simply don't follow through on the rehab, or only rely on twice weekly sessions with a therapist. My motto for prehab and rehab is to get obsessed and stay obsessed. Yes it hurts after surgery. But every day feels a little better if you stick with the exercises 3x/day.

Alright my good friend. Take care of yourself!

Joe

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Joe-190 sounds about right for a Joseph but if you’re a Josefina 160 might be a little too much! I envy your dedication to the gym. I inherited the osteoarthritis on all sides of my family. Although they were an energetic bunch, they weren’t all that athletic. I’ve had brief spurts where I get my athleticism on, but it’s soon fades for my art and career. It is pretty unbelievable that you are working out after 16 days. I have a cousin who told me last week her back hurts and her doctors haven’t given her any rehab for eight months that shocked Me She’s probably in her 50s and I think she should’ve been exercising after a couple weeks with PT. My fusion was the best thing that ever happened to me. I have all the things that you named in your lumbar. What happened was my disc fell completely out, and L4 and L5 grafted themselves together! (Didn’t you ever wonder what happened in the old days before people had surgeries?) Well I found out. Their bones grafted together. When they do that the pain stops because the nerves are squished to death. So although my surgery was an amazing success, it wasn’t done soon enough. The neurosurgeon I saw for 20 years was a bum. He saw back surgeries being bad and so he wouldn’t give me one. So I said I’ll just go home and take the opioids and that’s when he sent me to orthopedic surgeon who said there who said I needed surgery immediately. I complied it’s been 6 1/2 years and now the adjacent areas outside L3 L4 L5 are falling down. So I’m in process once again towards another surgery. But I’m trying to work on my core now giving it a last hurrah! I was very lucky to find out last fall that a lot of my inflammatory pain was coming from gout – the third type of arthritis that doctors don’t seem to recognize. So being on allopurinol has really helped my inflammatory pain be controlled. That tip I got from this site. I think we do a lot of good for people here - you definitely inspired me to more exercise, and I thank you for that! Lori

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@lustarr

This all sounds so painful. I have osteoporosis arthritis just about everywhere in my body but my hands have been the latest part ive added to the list. I have trigger fingers on both hands ; mainly the middle and ring fingers and now the thumbs. I’ve been seeing and orthopedic hand surgeon who wants to open those trigger points in my hands basically by the base of those fingers. I’m a tad worrisome about that surgery since I haven’t heard anything about it previously. I just found out that the other knuckle problems in my hands typically the middle knuckle in my thumbs and fingers do not have any repairs or meds to help them. I do take celebrex once an evening for overall degenerative disc and knee problems.
I’d be interested to hear if anyone has any. 1. Insights on the trigger finger surgery and 2. Help with the degenerative knuckle osteoarthritis. Good luck with your erosive arthritis. Prayers.

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Before you try surgery, try and acupuncturist. Both my sister and I have had that fixed through an acupuncturist rather than the surgery. It’s worth a try.

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As far as the trigger finger try an acupuncturist first. Both my sister and I have had it fixed going to an acupuncturist. IT WORKED FOR BOTH OF US

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@anniebrook

I have a lovely man as my GP but I have to do my own research to tell him what I need and want. He sent me for an Xray but I think I need an MRI. Due to the 2 thumb surgeries in the past I thought I had better ask to go back to the same surgeon and get the what I am diagnosing as ganglions looked at. Hand surgeons by the way here in BC,Canada are plastic surgeons,who knew ? So, I daren't ask to see the Rheumatologist yet I think that he thinks I focus on my pain too much so never suggests ANYTHING unless I ask for it.

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Yes, rheumatologist don’t know anything about Erosive Osteoarthritis. Most of the time He tried to ignore it. I ran into the same thing.

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@dianeyeap11

My pointer, middle and ting fingers are bad. Very stiff on middle and ring fingers and swollen on and off on my middle finger. I hope acupuncture will help your condition. Does the acupuncture hurt a lot?

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So far I have used just topical meds like voltaren. I ordered some Bee venom plus magnesium Come on spray and I weave only started to try it. I doubt it works as good as they say it does you know it’s supposed to be a miracle cure?. I had x-rays the other day and my fingers are bone on bone which has become worse than the x-rays I had in August. This seems to be progressing extremely fast for me. I don’t know how bad anybody’s pain is, but my fingers feel like sometimes that I have immerse them in fiberglass. There seems to be no I’m a reason which finger is gonna hurt today or tomorrow or five minutes from now. My pain isn’t steady and it doesn’t keep me from doing anything yet. I have the nodes, On both of my middle fingers, both of my ring fingers. As far as how to take care of all this, I use A lot of different things I use the cream I use heat I use Tylenol, I use Acupunture I’m on DULOXETINE for depression and they say it helps with pain. I’d try the acupuncturist. If It hurts it only hurts for a second.he put these little tiny needles i assume it’s around your nail area. It doesn’t hurt enough for me to not have. He is the first one to say that it might not work for everybody.

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@ellye

I'm so sorry for all you are going through. I'm not familiar with your particular disease, so I have no words of wisdom to tell you. But I will pray for you. I know that never hurts, and often helps.

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If you can find a real good assisted living, I would highly recommend that. My mom has been in one for almost 10 years and I don’t know what we would do if she wasn’t there as she has everything done for her and it’s so nice but you need a good one.

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