Epilepsy - HAIR LOSS AND WEIGHT GAIN

Posted by D @zeljko, Mon, May 27 9:48am

My son 16,5 y, recently (2 months) got epi diagnoses and started taking drugs for his therapy.
(each day: Valproic acid – Depakine, Tegretol (carbamazepinum) and Vimpat (lacosamide)).
He is experiencing:
1. Hair loss
2. Weight gain
Is there good suggestion – experience how to stop hair loss and enhance hair growth, without therapy changes?
What about weight gain? Anyhow speeding the metabolism?
I’ll be thankful for any useful advice.
Regards

Liked by Leonard

@zeljko
I believe it’s the Valproic Acid that is causing the majority of your sons problems.
Sometimes it can be a challenge to find the right drug cocktail for seizure control with the fewest side effects.
Are your sons seizures both Focal and Generalized? Is the medication controlling them?
I wish I knew how to control his side effects without lowering dosages or changing medications but I’m at a loss.
Perhaps if you asked this question on one of the Epilepsy Forums someone there may have also encountered these issues.
Here are a couple links.

Coping with Epilepsy
https://www.coping-with-epilepsy.com/forums/

Epilepsy Foundation Chat
https://www.epilepsy.com/connect/chat

Epilepsy Action
https://forum.epilepsy.org.uk/

Jake

REPLY
@jakedduck1

@zeljko
I believe it’s the Valproic Acid that is causing the majority of your sons problems.
Sometimes it can be a challenge to find the right drug cocktail for seizure control with the fewest side effects.
Are your sons seizures both Focal and Generalized? Is the medication controlling them?
I wish I knew how to control his side effects without lowering dosages or changing medications but I’m at a loss.
Perhaps if you asked this question on one of the Epilepsy Forums someone there may have also encountered these issues.
Here are a couple links.

Coping with Epilepsy
https://www.coping-with-epilepsy.com/forums/

Epilepsy Foundation Chat
https://www.epilepsy.com/connect/chat

Epilepsy Action
https://forum.epilepsy.org.uk/

Jake

Jump to this post

@zeljko
I edited the above to add a few forum links
Jake

REPLY

@zeljko
Here is a forum for 13-19 year olds in case he wants to chat with people his own age.

The tea room
http://www.thetea-room.com/

Jake

REPLY

Hi @zeljko, I add my welcome along with @jakedduck1. I'd also like to invite a few other members to join this discussion, like @dawn_giacabazi @ketomom @thoferer81017 @patrassi @ahernandez @bonnieh218 @12271997 @venki and @mst3000, who may have experiences to add about weight gain and hair loss on medications such as Depakine (valproic acid), Tegretol (carbamazepinum) and Vimpat (lacosamide).

Zeljko, what type of epilepsy was your son diagnosed with? Have you heard about the Keto diet?

Liked by Leonard

REPLY

Hi, @zeljko. I wanted to add my welcome to Mayo Clinic Connect and also mention that @crstyday40 may have some thoughts or suggestions for you on the weight gain and hair loss you mentioned your son was experiencing on medications such as Depakine (valproic acid), Tegretol (carbamazepinum) and Vimpat (lacosamide).

I'd also be interested in hearing about what type of epilepsy your son was diagnosed with?

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@lisalucier

Hi, @zeljko. I wanted to add my welcome to Mayo Clinic Connect and also mention that @crstyday40 may have some thoughts or suggestions for you on the weight gain and hair loss you mentioned your son was experiencing on medications such as Depakine (valproic acid), Tegretol (carbamazepinum) and Vimpat (lacosamide).

I'd also be interested in hearing about what type of epilepsy your son was diagnosed with?

Jump to this post

Hi, @lisalucier, I didnt know you had tagged me in this post, I apologize for not responding sooner!!! @zeljko Ive been on all of these meds and if I remember correctly I want to say that the valproic acid made me gain weight, very rapidly too!! And as far as the hair loss it may have been the vimpat but I cant be certain about that! My memory is very bad!! When I did a clinical study for Topoma(name brand only, not the.off brand!) But all the weight I had gained from the valproic acid, lost it all and then some!! Went from 205lbs to 98lbs. It was crazy how it came off so fast!! But, because none of those meds ever helped my seizures, im currently on 3 different seizure meds again now and my weight is back up!! And still having seizures daily!!! I hoped that helped some, good luck to you and your son!!!

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