Endometrial Cancer Stage IIIC1

Posted by mtstack @mtstack, Sep 6 10:17pm

Spotting in late April.
Referred to gynecologist after abnormal pap showing atypical glandular cells in June
Ultrasound showed endometrial lining thickened to 19.55mm
Collposcopy, scrape of cervix, and endometrial biopsy resulted in endometrial adenocarcinoma FIGO grade 3
Gynecologic consult Aug 4
Complete hysterectomy bilateral salpingo oopherectomy Aug 8
Pathology report: tumor in uterus, 97% invasion of myometrial lining, cancer cells in right sentinel pelvic lymphnode Stage IIIC1
Consult Sep 2: oncologist recommended platinum systemic therapy of six cycles of carboplatin and paclitaxel. Oncologist doesn’t recommend EBRT even though tumor board recommended a referral.

Anyone familiar with this stage and chemo treatment who might be able to share information on side effects. The more I read about chemo, the more I’m afraid to weaken my immune system. Seems like recurrence is likely and wondering about no further treatment?

Interested in more discussions like this? Go to the Gynecologic Cancers Support Group.

Profile picture for mtstack @mtstack

@juliea55
Thanks Julie, for replying.
So hard to know what information to post and took me a long while to even post on this site.
I’m 65, in great health, and feel really good eight weeks after surgery, just stunned by the diagnosis I received. Am on no meds or supplements, eat basically a plant based diet but even stricter since my diagnosis as is no sugar, saturated fats, dairy, meat or fish, and amped up fiber, whole grains, etc. I’ve lost 15 lbs since surgery, 125 down to 110, although that was not intentional. I knew I would lose some going entirely whole food plant based, but maybe it’s also stress related. Walking 4-6 miles per day and trying to sleep better.

Had hoped surgery was the answer and crestfallen by staging results and recommendation for further treatment.

I have stopped working my part time job since just before surgery, as I was on my feet 6-8 hrs per day and lifting lots of produce, beyond my lifting restrictions. So I’ve had plenty of time to read books, research papers, studies, watch videos of oncologists and other professors talking about how long chemo really prolongs your life for, and whether if patients knew, if they would embark upon chemo as a treatment.

I know many people have had success with treatment even with recurrences so I haven’t ruled it out, and look forward to discussing treatment with the medical oncologist today. The wait time between diagnosis, consult/surgery, post surgery consult and today’s consult probably has given me too much time to feel sorry for myself. I know going forward I will have to adopt the warrior spirit and positive outlook.

Thank you for bolstering my confidence.

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@mtstack You are doing all the right things. A plant-based diet seems to help avoid many side effects. With diet and exercise, my numbers remained stable throughout chemo and side effects were minimal. I bet you will have the same experience. I never missed a treatment or had to mask. Keep fighting! You can do this!

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Profile picture for juliea55 @juliea55

@mtstack You are doing all the right things. A plant-based diet seems to help avoid many side effects. With diet and exercise, my numbers remained stable throughout chemo and side effects were minimal. I bet you will have the same experience. I never missed a treatment or had to mask. Keep fighting! You can do this!

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@juliea55

Thank you so much for the support!
I’m so glad to hear that your chemo cycles went well.
That’s a relief to hear.

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Profile picture for aardvark2118 @aardvark2118

@mtstack hello. I had the same diagnosis and stage as you and had surgery, chemo, EBRT and brachytherapy and am yep years in remission. I was fortunate to have had an “easy” time with all treatments. Don’t let the pictures of chemo in the movies/tv scare you. It isn’t always like that I worked full time through all treatments (6 of chemo ) and missed two days of work. I opted for everything they recommended so I knew I would have no regrets. I wish you all the best

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@aardvark2118

Thank you so much for your positivity and kind words of support!

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