Endometrial Cancer Stage IIIC1
Spotting in late April.
Referred to gynecologist after abnormal pap showing atypical glandular cells in June
Ultrasound showed endometrial lining thickened to 19.55mm
Collposcopy, scrape of cervix, and endometrial biopsy resulted in endometrial adenocarcinoma FIGO grade 3
Gynecologic consult Aug 4
Complete hysterectomy bilateral salpingo oopherectomy Aug 8
Pathology report: tumor in uterus, 97% invasion of myometrial lining, cancer cells in right sentinel pelvic lymphnode Stage IIIC1
Consult Sep 2: oncologist recommended platinum systemic therapy of six cycles of carboplatin and paclitaxel. Oncologist doesn’t recommend EBRT even though tumor board recommended a referral.
Anyone familiar with this stage and chemo treatment who might be able to share information on side effects. The more I read about chemo, the more I’m afraid to weaken my immune system. Seems like recurrence is likely and wondering about no further treatment?
Interested in more discussions like this? Go to the Gynecologic Cancers Support Group.
Ha! - re Taco Bell.
I knew I was “coming back” from chemo fog when I craved potato chips!
So relieved your oncologist was able to adjust your medication. I am a bit worried about becoming more anemic, and hadn't thought about needing blood transfusions. I also feel good on a while for plant based diet but worth about maintaining my weight of I lose my appetite which sounds fairly common.
Thank for for sharing your experience with me. I hope your next treatments go well.
I find this group invaluable.
I am so conflicted and relieved to hear I'm not the only one who second guesses treatment options.
Near to Boston.
I think every opinion will recommend chemo and/or radiation. I was hoping to find someone who had chosen a more holistic approach with their doctor's support.
I'm so sorry to hear that you had recurrence prior to your last cycle. I hope that external radiation and brachytherapy were helpful.
The recurrence threw me for a loop and so I am deemed “chemo resistant.” But I just celebrated three years since my final radiation treatment and I would like to think that it has helped, along with the surgeries.
(I do deal with side effects but so far they are manageable, if not annoying.) Three years is a milestone that I wasn’t sure I would reach. I can only hope that my gift of time will allow me to see a breakthrough treatment for aggressive NSMP (no specific molecular profile) cancers like mine. And for all the rest of my EC sisters.
I know..I carried a lot of extra weight, lost 25 lbs, which in my case was not a bad thing. Each woman is so unique that the side effects vary so much among all of us. It's a challenge, trying to balance protein needs with zero appetite. I had anti nausea meds, which I used and never vomited. I wish you all the best. Stay strong!
Don't think you will get holistic recommendation- with endometrial diagnosis- I was originally stage 1a serous papillary and they recommended carbo taxol and brachy- Moffett said it was Stage 2a since it was going into the cervix and they recommended sandwich therapy. Eight years later my oncologist has said I just need check ups with my primary gyno. So far so good.
I breezed through the chemo treatments-most importantly I iced my feet and hands during treatments and never got neuropathy. Had gorgeous wigs- went out on dates- everyone wanted to know where I had my hair colored ha ha. Lost all hair and eyebrows lashes but everything grew back. First 4 days of treatment horrible but then back to regular activities zumba etc. and eating. Mind over matter.
Hello, @mtstack ,
From Vermont, here, so we're nearly neighbors on the Mayo Connect world-wide scale! I have received primary healthcare from Sojourns Community Health Clinic in Westminster, VT since 2011. I see a naturopath who is also a PT and midwife. When my first post-menopausal spotting happened and I called her, she got on the phone right away and said, "you need a gynecologist to do an endometrial biopsy, and don't wait." I was shocked to hear my hippie, herbal wise naturopath say that. When a cancer diagnosis ultimately came back and I heard the recommendations for hysterectomy, oophorectomy, salpingotomy and sentinel node biopsy, I met with her again to ask what other options I had. I didn't want surgery and didn't want "what might follow it" post-surgery. She was quite clear. There are ways that integrative oncology (a naturopath trained in oncology) can help you manage symptoms and side effects of treatment and can support the effectiveness of standard treatment. It can help you to design and live a quality life and maximize your chances of preventing recurrence, but to get the cancer out of your body, you need to advocate for aggressive treatment to start.
There is also an integrative oncologist in Middlebury, VT who I've seen and appreciated very much. I am imagining you can find the same near you. A consult with one might be very helpful for you to clarify all of your options and how they might work together.
I wish you well!!!!
@gynosaur42
I never got nauseous- yes all hair fell out- but came back - same with eyelashes and brows- but I made myself look gorgeous with wigs and makeup. First 4 days not great -laid in bed- no appetite - then I was rearing to go- bug appetite -zumba classes- running around etc. I hardly told anybody what I had- I did not want a pity party.