1. < Gynecologic Cancers

Endometrial Biopsy: I’m terrified, what can I expect?

Posted by suesam @suesam, Dec 21, 2024

Hi there, I have no bleeding but my endometrial thickness is a 6 and I have an endometrial biopsy scheduled in 30 days and I'm terrified. I made the mistake of reading all the horror stories on the internet. My doctor said it is painful and is preparing me by asking me to take VagiFem 10 for the next month and also to take advil before arriving. I've had pap smears all my life and they never hurt but my last one did. But I think that's because the doctor ( mine retired ) used a large instrument which hurt but then switched to a smaller one which was fine. It's a different doctor who will do the biopsy. I've had 2 transvaginal ultrasounds which didn't hurt and one hysterscopy which didn't hurt at all. But I'm terrified of the biopsy. My ultrasound showed a thickness of 6, nothing else, and my CT scan showed nothing. I wish my doctor hadn't told me it would hurt - when I said my last pap smear hurt, he said this would hurt more. He wasn't trying to be mean, just preparing me. I'm hoping I can do it. Any thoughts? And thanks for listening.

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carol1024 | @carol1024 | Mar 4 9:16am
In reply to @naturegirl5 "@carol1024 I offer my apology if you've already explained your gynecological diagnosis somewhere else on Connect..." + (show)
@naturegirl5

@carol1024 I offer my apology if you've already explained your gynecological diagnosis somewhere else on Connect and I missed it. I'd like to offer my support and help to answer any questions you might have. I am not a medical professional however I am cancer survivor of endometroid adenocarcinoma, FIGO 1, Stage 1a, with a recurrence two years later.

May I ask your diagnosis after you got back your biopsy results? You wrote cervical and uterine cancer. Were both the certical and uterine cancers adenocarcinoma? There are different kinds of cancer and if you read or have a copy of your pathology report you will be able to find that information.

American Cancer Society: Types of cervical cancer:

-- https://www.cancer.org/cancer/types/cervical-cancer/about/what-is-cervical-cancer.html

American Cancer Society: Endometrial cancer:

-- https://www.cancer.org/cancer/types/endometrial-cancer/about/what-is-endometrial-cancer.html

When are you scheduled to start chemotherapy? How are you feeling today?

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It is carcinosarcoma a very aggressive and rare endometrial cancer. My survival rate is 0-10% if in advanced stages. It is in lymph nodes in pelvic area. I'm having a pet scan March 12th. I'm getting port Wednesday the 5th. I'll have 3-5 hour treatments of chemo when emergency authorization comes through. Hoping for chemo the same week I get port but may be following Monday. If, after the first 3 treatments there's no shrinkage of lymph nodes, so they can see where surgery needed, then I will transfer my care to a local female oncologist and give her a try. I have nothing to lose because they won't do surgery if chemo isn't successful. Needless to say, I am terrified.

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3 replies
kforrest | @kforrest | Mar 4 10:14am
In reply to @carol1024 "It is carcinosarcoma a very aggressive and rare endometrial cancer. My survival rate is 0-10% if..." + (show)
@carol1024

It is carcinosarcoma a very aggressive and rare endometrial cancer. My survival rate is 0-10% if in advanced stages. It is in lymph nodes in pelvic area. I'm having a pet scan March 12th. I'm getting port Wednesday the 5th. I'll have 3-5 hour treatments of chemo when emergency authorization comes through. Hoping for chemo the same week I get port but may be following Monday. If, after the first 3 treatments there's no shrinkage of lymph nodes, so they can see where surgery needed, then I will transfer my care to a local female oncologist and give her a try. I have nothing to lose because they won't do surgery if chemo isn't successful. Needless to say, I am terrified.

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my uterus lining is 37 mm i have a pre op appt with my dr this week. my left side of my abdomen hurts sometimes, a new development. i am 76 yrs old and have severe hip arthritis.

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2 replies
suesam | @suesam | Mar 4 2:02pm
In reply to @carol1024 "It is carcinosarcoma a very aggressive and rare endometrial cancer. My survival rate is 0-10% if..." + (show)
@carol1024

It is carcinosarcoma a very aggressive and rare endometrial cancer. My survival rate is 0-10% if in advanced stages. It is in lymph nodes in pelvic area. I'm having a pet scan March 12th. I'm getting port Wednesday the 5th. I'll have 3-5 hour treatments of chemo when emergency authorization comes through. Hoping for chemo the same week I get port but may be following Monday. If, after the first 3 treatments there's no shrinkage of lymph nodes, so they can see where surgery needed, then I will transfer my care to a local female oncologist and give her a try. I have nothing to lose because they won't do surgery if chemo isn't successful. Needless to say, I am terrified.

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Hey Carol - I can understand that you are terrified. That is a lot to happen and a lot of waiting involved. I'm so sorry that you're dealing with all of this. I wish you all the best tomorrow with the 'port'. Sending all sorts of good wishes to you. Sure wish you didn't have to go through this.

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suesam | @suesam | Mar 4 2:05pm
In reply to @kforrest "my uterus lining is 37 mm i have a pre op appt with my dr this..." + (show)
@kforrest

my uterus lining is 37 mm i have a pre op appt with my dr this week. my left side of my abdomen hurts sometimes, a new development. i am 76 yrs old and have severe hip arthritis.

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Wishing you all the best, Kforrest, with your pre op. Does that mean they're doing surgery soon? So sorry to hear about the severe arthritis and the new pain in your abdomen. Hope it goes well this week.

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2 replies
kforrest | @kforrest | Mar 4 4:21pm

i am being knocked out for biopsy in the hospital. i will be having a d&c, polops removed, and interuterine device put in if i want, but no thanks to the iud!!

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1 reply
kforrest | @kforrest | Mar 4 4:22pm
In reply to @suesam "Wishing you all the best, Kforrest, with your pre op. Does that mean they're doing surgery..." + (show)
@suesam

Wishing you all the best, Kforrest, with your pre op. Does that mean they're doing surgery soon? So sorry to hear about the severe arthritis and the new pain in your abdomen. Hope it goes well this week.

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thank you hope every thing goes well for you.

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kforrest | @kforrest | Mar 4 4:23pm
In reply to @suesam "Wishing you all the best, Kforrest, with your pre op. Does that mean they're doing surgery..." + (show)
@suesam

Wishing you all the best, Kforrest, with your pre op. Does that mean they're doing surgery soon? So sorry to hear about the severe arthritis and the new pain in your abdomen. Hope it goes well this week.

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i watch youtubes of the procedure

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painsucksallthetime | @painsucksallthetime | Mar 5 11:18am

I’m not going to lie, the biopsy is a bit uncomfortable…. I had 2 done & neither one rendered enough of a sample for a diagnosis so I had to have a D&C to get an adequate sample.
Good luck !!! I’ll be praying for you

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1 reply
Mentor
Helen, Volunteer Mentor | @naturegirl5 | Mar 6 10:44am
In reply to @kforrest "my uterus lining is 37 mm i have a pre op appt with my dr this..." + (show)
@kforrest

my uterus lining is 37 mm i have a pre op appt with my dr this week. my left side of my abdomen hurts sometimes, a new development. i am 76 yrs old and have severe hip arthritis.

Jump to this post

@kforrest This new pain in the left abdomen is definitely something to bring up during your pre-op appointment this week. I have osteoarthritis in my lower back and hips and sometimes I feel pain in the groin area but this is usually after doing something active. It's a confusing sensation to me as it only started to occur after a total hip replacement and hysterectomy. A pelvic floor physical therapist explained how the removal and rearrangement of my pelvic floor contributes to these aches. She also gave me stretching exercises, based on yoga, to do at home.

What is the plan for surgery? I am sending you positive energy as you meet for this appointment.

REPLY
1 reply
kforrest | @kforrest | Mar 6 2:36pm
In reply to @naturegirl5 "@kforrest This new pain in the left abdomen is definitely something to bring up during your..." + (show)
@naturegirl5

@kforrest This new pain in the left abdomen is definitely something to bring up during your pre-op appointment this week. I have osteoarthritis in my lower back and hips and sometimes I feel pain in the groin area but this is usually after doing something active. It's a confusing sensation to me as it only started to occur after a total hip replacement and hysterectomy. A pelvic floor physical therapist explained how the removal and rearrangement of my pelvic floor contributes to these aches. She also gave me stretching exercises, based on yoga, to do at home.

What is the plan for surgery? I am sending you positive energy as you meet for this appointment.

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date set for monday, april 7. biopsy, d&c, polyps removed. camera inserted.
thank you for sharing and caring!!

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