Empty Sella Syndrome

Posted by caras @caras, Aug 29, 2012

Hello, Newly diagnosed with this syndrome. Basically pitatuary gland is pinched and/or not able to be found on MRI and now affecting my vision and my ACTH and prolactin levels are wacky. MRI found a csyst or possible CSF leakage. Anyone experience this? I am just beginnin this journey and looking for any information at all.
Thank you,
Cara in ND

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shayla7 | @shayla7 | Oct 30 12:39pm

Can anyone recommend a Mayo - Rochester doctor that specializes in Empty Sella Syndrome?

Thank you
Shayla

Lisa Lucier, Moderator | @lisalucier | Oct 30 3:21pm

In reply to @shayla7 "Can anyone recommend a Mayo - Rochester doctor that specializes in Empty Sella Syndrome? Thank you..." + (show)

Hi, @shayla7 - A couple of Mayo Clinic physicians who served as authors of this paper on Empty Sella Syndrome might be potential sources for you:

Here is the paper I'm referencing:
"Does pituitary compression/empty sella syndrome contribute to MRI-negative Cushing’s disease?" Journal of Neurosurgery
https://thejns.org/focus/view/journals/neurosurg-focus/48/6/article-pE3.xml
Here are the physicians who were part of the authorship team for this paper who practice at Mayo Clinic:
Jamie J. Van Gompel, M.D., a neurosurgeon
https://www.mayoclinic.org/biographies/van-gompel-jamie-j-m-d/bio-20087329
Irina Bancos, M.D., M.S., and endocrinologist
https://www.mayoclinic.org/biographies/bancos-irina-m-d-m-s/bio-20055627
Is Empty Sella Syndrome a diagnosis you've been given, @shayla7? If so, will you tell us what was happening with you that prompted you to go see a physician?