← Return to Dual Diagnosis of CLL and Acute Epstein Barr Virus

Comment receiving replies

Hello @oceantroll, welcome to Connect. I would like to invite @travelgirl to this discussion as she has talked about being on the wait & watch approach with CLL, but specifically about dealing with fatigue as an active person. Being diagnosed with two different diseases that both cause fatigue must be difficult. I see that you also found a chronic epstein barr virus discussion, but here is another one you may find interesting as well, https://connect.mayoclinic.org/discussion/treatment-for-chronic-epstein-barr/.

@oceantroll, while we wait for other members to join in, would you mind sharing what things you have tried to do to combat your fatigue?

Jump to this post

Replies to "Hello @oceantroll, welcome to Connect. I would like to invite @travelgirl to this discussion as she..."

Sleep – as a result, I have gained 30 lbs which is why I am desperate to find help. I have also really scaled back on my own expectations of what I will achieve so I don't drive myself crazy. As a result – my work as a consultant to nonprofits is moving more towards grant writing. So I write when I feel "well" and do self-care when I don't. Too afraid to go back to 9-5 as I don't think my body can take it.

I also find that I am taking ibuprofen every day to address chronic to acute body aches – it feels like every day I have the flu. Sometimes it's so bad my brain kind of hazes out until I take more pain made – then the brain refocuses and I can get back to trying to do some work.

Thanks for the suggestions. I hope others will chime in soon including @travelgirl .

  Request Appointment