I had a headache for months and didn't know what it was, but within two weeks of using Xdemvy it was gone. Demodex are not the commensal creatures that doctors are taught in med school. They are dangerous. If you have a Facebook account, you'll be shocked at how many support groups there are for Demodex. The one I use is has some red flowers in the image and has (Human) in parentheses.
Be prepared for the mites to die in your eyes and to get itchy from that, but it's a good thing. They will move to other places, like your ears, nose and hair (if they're not there already!), so I recommend getting a Tea Tree oil shampoo. I add 100% TTO to my shampoo, put on goggles and then pour it in my hair and immediately put on a shower cap. Then wait 10 minutes. The TTO kills them in 3 minutes, but I never took any chances and set a timer for 10. For my eyebrows, I put it on a cotton pad and lie down so it won't drip into my eyes, or I wear the goggles.
When you read what other people do, you'll be shocked at how much the mites have negatively impacted our lives. Too many people are being told by their doctors that they're hallucinating and refer them to therapists. Outrageous! Some dermatologists won't deal with them as patients, others are more informed and prescribe ivermectin, others (like mine) say they're commensal and aren't harmful.
Again, the medical community needs to wake up. There's another support group on this Mayo connect about Demodex you may want to join, but the Facebook ones are really active, have a moderator, and can be quite helpful.
I had a headache for months and didn't know what it was, but within two weeks of using Xdemvy it was gone. Demodex are not the commensal creatures that doctors are taught in med school. They are dangerous. If you have a Facebook account, you'll be shocked at how many support groups there are for Demodex. The one I use is has some red flowers in the image and has (Human) in parentheses.
Be prepared for the mites to die in your eyes and to get itchy from that, but it's a good thing. They will move to other places, like your ears, nose and hair (if they're not there already!), so I recommend getting a Tea Tree oil shampoo. I add 100% TTO to my shampoo, put on goggles and then pour it in my hair and immediately put on a shower cap. Then wait 10 minutes. The TTO kills them in 3 minutes, but I never took any chances and set a timer for 10. For my eyebrows, I put it on a cotton pad and lie down so it won't drip into my eyes, or I wear the goggles.
When you read what other people do, you'll be shocked at how much the mites have negatively impacted our lives. Too many people are being told by their doctors that they're hallucinating and refer them to therapists. Outrageous! Some dermatologists won't deal with them as patients, others are more informed and prescribe ivermectin, others (like mine) say they're commensal and aren't harmful.
Again, the medical community needs to wake up. There's another support group on this Mayo connect about Demodex you may want to join, but the Facebook ones are really active, have a moderator, and can be quite helpful.
Hi Nancy,
I’m so sorry you had to go through that. This is awful and gross to say the least. My eyes don get itchy but I do get the crust that you described and they feel irritated a lot. Will check out Facebook. I will definitely push my eye doctor on this. He’s affiliated with Will’s Eye - a top eye Hospital in Philadelphia. This has truly been an eye opener!
Have never been diagnosed with Sjogren’s but was suffering with very dry mouth beginning in 2019 following a nose surgery to remove a polyp, and ENT prescribed Pilocarpine. It can be taken up to 3 x per day. I take 2 x per day for dry mouth! I understand it is often prescribed for those with throat cancer undergoing treatment and having very dry mouth. I have had no side effects from it.
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I take xiidra.
I had a headache for months and didn't know what it was, but within two weeks of using Xdemvy it was gone. Demodex are not the commensal creatures that doctors are taught in med school. They are dangerous. If you have a Facebook account, you'll be shocked at how many support groups there are for Demodex. The one I use is has some red flowers in the image and has (Human) in parentheses.
Be prepared for the mites to die in your eyes and to get itchy from that, but it's a good thing. They will move to other places, like your ears, nose and hair (if they're not there already!), so I recommend getting a Tea Tree oil shampoo. I add 100% TTO to my shampoo, put on goggles and then pour it in my hair and immediately put on a shower cap. Then wait 10 minutes. The TTO kills them in 3 minutes, but I never took any chances and set a timer for 10. For my eyebrows, I put it on a cotton pad and lie down so it won't drip into my eyes, or I wear the goggles.
When you read what other people do, you'll be shocked at how much the mites have negatively impacted our lives. Too many people are being told by their doctors that they're hallucinating and refer them to therapists. Outrageous! Some dermatologists won't deal with them as patients, others are more informed and prescribe ivermectin, others (like mine) say they're commensal and aren't harmful.
Again, the medical community needs to wake up. There's another support group on this Mayo connect about Demodex you may want to join, but the Facebook ones are really active, have a moderator, and can be quite helpful.
Good luck!
~Nancy
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2 ReactionsHi Nancy,
I’m so sorry you had to go through that. This is awful and gross to say the least. My eyes don get itchy but I do get the crust that you described and they feel irritated a lot. Will check out Facebook. I will definitely push my eye doctor on this. He’s affiliated with Will’s Eye - a top eye Hospital in Philadelphia. This has truly been an eye opener!
Thanks again!
Have never been diagnosed with Sjogren’s but was suffering with very dry mouth beginning in 2019 following a nose surgery to remove a polyp, and ENT prescribed Pilocarpine. It can be taken up to 3 x per day. I take 2 x per day for dry mouth! I understand it is often prescribed for those with throat cancer undergoing treatment and having very dry mouth. I have had no side effects from it.
Did it help with improving your sense of taste?