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Doses for the Big 3 meds for MAC

Posted by deb62 @deb62, May 16 8:09pm

I have had MAC for about 3 or 4 years. I’ve been in the “watch” stage with no meds. I also have Wegeners Disease which is under control but the meds bring down my immune system. I’ve had pneumonia for the last couple of months so my ID doctor is starting me on the Big 3 this week. I’m curious about the dosage that others are taking. Here’s what I have been given:
Azithromycin- 500mg
Ethambutol HCL - 1600 mg
Rifampin - 600mg
All 3 x week starting with the Azithromycin 1st & gradually adding the others.
Does anyone think the ethambutol a high dosage? Im 5’4 & weigh 145lbs.
Thanks for your input.

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kris2468 | @kris2468 | 1 hour ago
In reply to @galec "@kris2468 These are going to be my doses also. I have started Azithromycin and will add..." + (show)
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@kris2468

These are going to be my doses also. I have started Azithromycin and will add the other two. How do you take them? I know it’s individual but trying to find out what works for others. Probiotic timing? What wonderful news for you!!

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@galec I started taking azithromycin in the morning rifampin at midday and ethambutol at night. At NJH they had me take them all together in the morning. No problem. I take probiotic at night. Good luck!!

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paxmundi | @paxmundi | 1 hour ago
In reply to @kris2468 "My dosages are azithromycin 250 mg, rifampin 600 mg, ethambutol 800 mg daily. I’ve been on..." + (show)
Profile picture for kris2468 @kris2468

My dosages are azithromycin 250 mg, rifampin 600 mg, ethambutol 800 mg daily. I’ve been on 12 months with no issues. If my next sputum culture is negative I can stop in January. After 6 months my CT scan had improved. All the best to you!

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@kris2468 You are SO fortunate to have had no side effects!

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galec | @galec | 13 minutes ago
In reply to @kris2468 "@galec I started taking azithromycin in the morning rifampin at midday and ethambutol at night. At..." + (show)
Profile picture for kris2468 @kris2468

@galec I started taking azithromycin in the morning rifampin at midday and ethambutol at night. At NJH they had me take them all together in the morning. No problem. I take probiotic at night. Good luck!!

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@kris2468
thank you

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