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Does surgery work for Laryngopharyngeal Reflux (LPR)?
Since December 13, 2016. My symptoms started with a soar throat, soar inflamed taste buds on the tip of my tongue and inflamed salivary glands on my soft palate. My tongue, throat and soft palate had a painful burning sensation that was on and off. My General practitioner referred me to an Ear Nose throat specialist who referred me to an oral surgeon who referred me to an oral pathologist for burning mouth syndrome. After wasting 3 months of running around with these Dr's and being tested for oral thrush, hsv tests, vitamin deficiency tests, auto immune deficiency tests, cultural bacteria tests all which came back normal. I decided to go for a second opinion with another E.N.T. specialist who performed a camera scope and diagnosed me with acid in my throat. I was put on Dexilant and noticed the pain dissipate almost immediately only problem was I couldn't tolerate the medication. I was then put on Tecta and referred to a G. I. My general Practitioner did some blood work for h pylori and I tested positive. I started to develop tinitus in my left ear. I had a gastroscopy where they found a 2 cm Hiatel Hernial and my lower sphincter was weak. Thats when I was told I have a mild case of gerd, but I don't suffer from any heart burn. I was put on triple dose of antibiotics for h pylori and continued with the Tecta, domperadone and sucrolafate. I'm getting a little relief from the PPI and meds but I still suffer from bitter reflux taste and burning pain in my throat, soft Palate, the tip of my tongue and dry mouth that comes and goes. I'm in the process of having a 24 hr ph level test done. The G. I. I was seeing says my esophagus biopsy tested clean and he doesn't believe what is happening in my oral cavity is related to my gut. He stated in order for acid to travel to the throat it has to travel through the esophagus and the esophagus tested clean. Thus he can't help me anymore. I'm so confused my ENT says I have acid in my throat and the G.I. doesn't agree.
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I have had LPR for last 2 years. Started with Gerd four years ago and Gerd progressed in my throat. Don't eat and especially don't drink any fluids 5 hours prior to laying down to sleep. Take Extra strength Gaviscon. You can order on Amazon. It comes from UK. It has algae anise. Get a wedge 8 inch high and sleep on your left and put a pillow on your back so you sleep straight, otherwise your back starts curving and hurts. And diet. Research on Google to see what you can't eat. Drs. don't know unless is an Integrative doctor. Not sure if you have hiatal hernia and if the if your LES is working properly. Good Luck.
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2 ReactionsI used to have SIBO several times, and got tested. Now, I don't eat sweets and dontvtake H2 blockers or PPIs. Anytime I took Tagamet, or Pepcid or Protonix, I got Sibo and thrush in my throat. When someone takes these pills, the gas and acid inside the GI disappears, and that's when the Sibo starts growing. So, if you have to keep taking these drugs, you keep getting Sibo.
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2 ReactionsI am told to sleep on left side. It helps somehow with Gerd....
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1 ReactionWhen you have time, scroll back through this thread. It has many useful tips.Read The Chronic Cough Enigma by Jamie Koufman and se if it makes sense to you. She also has a blog email you can sign up for.
I saw an integrative medicine doctor during my breast cancer journey, but continue to consult with him regarding digestive and osteoporosis issues. He has been most helpful. There are many homeopathic things you can implement as well as lifestyle changes/modifications. (See my prior posts.)
Lastly, try not to fret too much as stress exacerbates LPR.
Best wishes to you, Cindy
My dr is not so sure that lpr is a real thing and if you go on line some sites claim that lpr might be something over diagnosed. If you are on ppis for 2 months and it doesn’t help I would think it’s not acid reflux. Diet should help and sleeping propped up should help but it doesn’t address the underlying cause. That is the big question. Ent drs think it’s sinus and gastro drs think it’s acid reflux. Good luck
Not so sure about any homeopathic remedy but try and drink a lot of ph balanced water ( essentia, figi). Some people say probiotics help .
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1 ReactionHave you changed your diet. You know , no chocolate, caffeine, tomatoes, alcohol , citrus fruits etc?
Thankyou for all of your kind advice.
My ENT was the first doctor told me it was LPR, after 3-4 years and seeing over ten doctors. I did take Tagamet, got better, but got Sibo as Tagamet gets rid of gas and acid and creates an environment for SIBO.
I listened to a dr Jamie Koufman on the radio and he believes in lpr but does not believe in ppis. This whole thing is so frustrating and before you know it years go by and still no answer. I hope you find relief