Does surgery work for Laryngopharyngeal Reflux (LPR)?
Since December 13, 2016. My symptoms started with a soar throat, soar inflamed taste buds on the tip of my tongue and inflamed salivary glands on my soft palate. My tongue, throat and soft palate had a painful burning sensation that was on and off. My General practitioner referred me to an Ear Nose throat specialist who referred me to an oral surgeon who referred me to an oral pathologist for burning mouth syndrome. After wasting 3 months of running around with these Dr's and being tested for oral thrush, hsv tests, vitamin deficiency tests, auto immune deficiency tests, cultural bacteria tests all which came back normal. I decided to go for a second opinion with another E.N.T. specialist who performed a camera scope and diagnosed me with acid in my throat. I was put on Dexilant and noticed the pain dissipate almost immediately only problem was I couldn't tolerate the medication. I was then put on Tecta and referred to a G. I. My general Practitioner did some blood work for h pylori and I tested positive. I started to develop tinitus in my left ear. I had a gastroscopy where they found a 2 cm Hiatel Hernial and my lower sphincter was weak. Thats when I was told I have a mild case of gerd, but I don't suffer from any heart burn. I was put on triple dose of antibiotics for h pylori and continued with the Tecta, domperadone and sucrolafate. I'm getting a little relief from the PPI and meds but I still suffer from bitter reflux taste and burning pain in my throat, soft Palate, the tip of my tongue and dry mouth that comes and goes. I'm in the process of having a 24 hr ph level test done. The G. I. I was seeing says my esophagus biopsy tested clean and he doesn't believe what is happening in my oral cavity is related to my gut. He stated in order for acid to travel to the throat it has to travel through the esophagus and the esophagus tested clean. Thus he can't help me anymore. I'm so confused my ENT says I have acid in my throat and the G.I. doesn't agree.
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Hello @bpositive,
My sincere apologies for the tardy reply; your message slipped passed me. I'd like to welcome you to Connect, and thank you so much for sharing your history. I can imagine the frustration and stress these symptoms may cause!
You may be interested in reading these threads:
Laryngo-pharyngeal reflux - made a decision to visit the Mayo Clinic http://mayocl.in/2uaMnRY
Laryngopharyngeal Reflux (LRP) - severity and outlook? http://mayocl.in/2tcNxiK
Acid Reflux and its Symptoms http://mayocl.in/2uaXPgD
I’d like to introduce you to a few members who have posted about Laryngopharyngeal Reflux, LPR (also known as Silent Reflux), and may be able to offer some insights. Please meet @smorford, @davehudsn, @stardisc, @cowboy1997, @kaystrand, @ptfitzy, @cab26, @ptfitzy, @davearnatt, @kaystrand, @dancemom57, @boogirl, @danielad, @dandl48, @robbinr, @cbs618752, @cmaso67, @dynesapp, @pauletta.
I’m also tagging @travelgirl on this discussion as she has experience with h. pylori
@bpositive, it sounds like you are dealing with a lot and are frustrated, but you have found a very supportive community and we thank you for finding us. If I may ask, has your ENT specialist communicated the findings with the gastroenterologist?
@bpositive I am sorry to hear that you have been to see so many doctors and have experienced so little relief. That has to be discouraging to say the least! We have many members who come to Mayo Connect with many unanswered questions. As Kanaz said above please keep sharing. Often when individual specialists can't seem to agree on a plan it is a good idea to consult with a large medical center (Mayo has 3 clinics in Minnesota, Florida and Arizona) or a university medical school where there are many specialists who communicate with each other and also have state-of-the-art testing and research going on within their medical community. Do you have such a medical center nearby? Are you in a place where you could travel to Mayo or another center? Teresa
Thank you for your response Kanaazpereira, sorry for such a late reply. Yes my E.N.T. Specialist and G.I. are communicating. I'm now with a G.I. That my E.N.T. has referred me to for a second opinion and still waiting for Esophageal Manometry & 24-hour Ambulatory study. Not sure if this will help for LPR? Update to my status. I had a carbon 14 breath test done and tested negative for h Pylori. Saw a Rheymatologist who ruled out Sjorjens for my Xerostomia.
I had a biopsy taken from my soft palate inflamed salivary gland which was also tested for Sjorjens, cancer etc... all came back negative except for unknown mild inflammation. Had an MRI brain scan from a Nuerologyst also came back normal. I am wheezing off the PPI medication and I'm only down to one 40mg Nexium a day. I don't find the PPI's are helping much...
If I don't get a diagnosis soon I will be visiting Mayo Clinic. I live in Canada so I will be paying in cash...
Hi @bpositive,
I hope you are feeling better? We would love to hear back from you, and get an update on your progress.
Hi. My problem started about a month ago when I started chugging down a glass of water and suddenly I had a spasm in the area of my pharynx. It scared me, and took several minutes to abate, but no other symptoms. Soon, I found that I could no longer drink orange juice without the same problem, and then ice cream gave me very thick saliva that was difficult to spit out as well as the tightness in my throat. I had had problems with normal heartburn in the past, but a few days of ranitidine (Zantac) and I was OK. I think this was because of my taking ibuprofen on an empty stomach. If the Zantac didn't help, which was seldom, I took Prilosec for 3 days and it was gone. Now, after the spasms, I began burping and having hiccups frequently, which was new to me, so I started on Prilosec 20mg once a day. I also changed my diet to conform with the diet for GERD and I think I'm beginning to get better, but it's taken a lot out of me because I've been on the same diet for a long time and all of a sudden I'm missing crucial nutrients that I ordinarily get. By the way, I"m 69 and have been healthy and disease free for at least 20 years. I want to discontinue the Prilosec because I've only been taking it for a little more than two weeks. I'm wondering if I could switch back to the Zantac 150mg twice a day without experiencing rebound symptoms because I've been on the Prilosec for such a short time. I can see that there are many people here with digestive health problems and I'm hoping someone can steer me in the right direction. My doctor is very good at giving labs and writing prescriptions, but he doesn't seem to do much doctoring, but that was OK, because I haven't had any serious health issues. He just told me " You know you have to see a gastroenterologist". Because of the holiday I haven't been able to schedule an appt. yet and now, with some of the symptoms lessening, I'm hoping there's a chance that I can switch to Zantac, or preferably cimetidine (Tagament) which helped me greatly when I developed an ulcer many years ago, and solve this problem without any intervention. The reason I want to stop taking it is because of the side effects. I've had diarrhea a few times and lots of headaches.I"m also worried about the things that can happen when you have so little stomach acid. I"d appreciate any comments from people who have had experience weaning off Prilosec after short term use, or anyone who has suffered with LPR or laryngopharangeal reflux, or anyone at all. Thanks for listening!!
I was taking omeprazole 40 mg twice a day for only two weeks when I stopped it because of side effects and I had lots of the rebound effects for a couple of weeks until I started another PPI. Sorry, that’s probably not what you wanted to hear, I imagine this is probably true with most if not all PPI meds.
sanchopanza: Your doctor is correct; you need to see a GI doctor, a gastroenterologist. It sounds like you may need an upper endoscopy to sort this out. I put it off for a long time and finally did it -- very easy procedure but do make sure to be totally 'out' for it, i.e., general anesthesia. It's an out-patient deal, painless, and only takes a few minutes. You will need a ride home, however, because they don't want liability of someone driving right after anesthesia.
I had been taking Tums myself for years on occasion but within past year it was nightly. There are so many symptoms associated with indigestion and sometimes people have 'silent' GERD as well so they don't really know anything is wrong.
I am over 65 as well and life catches up with us. My GI doc wanted endoscopy plus abdominal CT scan. The scan was fine except it found several small kidney stones in one kidney. Totally surprised by that and have to deal with it now, too.
The endoscopy was not expected to show much but doc found Barrett's Esophagus tissue in lower portion (you may need to research that); a growing problem around the world and can in some cases turn to adenocarcinoma of esophagus . Chances of having this happen are small but it's good to get the upper endoscopy to check, especially after age 50. These days, though, this problem is being found in people in their twenties and thirties, too.
I would go see a GI doc and get the endoscopy if it is recommended. My best to you.
Thanks, bonnieh218. No, not especially what I wanted to hear, but I appreciate the heads up!!
Thanks for your concern, courtneyt. Yeah, aging isn't all it's cracked up to be. I was hoping to avoid the endoscopy, but I think you're right; I need to know what's going on. I'm pretty sure this is the silent GERD from the reading I've done. And yes, I ran across the Barrett's esophagus and I'm hoping that's not what I have. I did see that if not treated, it can become cancerous, and that esophageal cancer is the fastest growing cancer in the U.S. My problem is trust. I'm on Medicare and Medi-caid and I worry that some GI doc will perform unnecessary procedures on me. The hardest part is changing my diet. I'm losing weight and getting weaker because I still haven't figured out exactly what I can and can't eat. Most of what I used to eat doesn't work anymore. Again, thanks for getting back! I really do appreciate it. I'm living alone and don't have anyone to run things by.
Some time ago I was diagnosed with same symptoms did my own research come up with some things that helped me: started drinking alkaline water only, elevated my bed four or so inches at head, started sleeping on right or left side at night never on my back or stomach however God made people individually so what is working great for me maybe not work the same for everyone. You have to try to see for yourself