Does surgery work for Laryngopharyngeal Reflux (LPR)?

Posted by Bpositive @bpositive, Jun 13, 2017

Since December 13, 2016. My symptoms started with a soar throat, soar inflamed taste buds on the tip of my tongue and inflamed salivary glands on my soft palate. My tongue, throat and soft palate had a painful burning sensation that was on and off. My General practitioner referred me to an Ear Nose throat specialist who referred me to an oral surgeon who referred me to an oral pathologist for burning mouth syndrome. After wasting 3 months of running around with these Dr's and being tested for oral thrush, hsv tests, vitamin deficiency tests, auto immune deficiency tests, cultural bacteria tests all which came back normal. I decided to go for a second opinion with another E.N.T. specialist who performed a camera scope and diagnosed me with acid in my throat. I was put on Dexilant and noticed the pain dissipate almost immediately only problem was I couldn't tolerate the medication. I was then put on Tecta and referred to a G. I. My general Practitioner did some blood work for h pylori and I tested positive. I started to develop tinitus in my left ear. I had a gastroscopy where they found a 2 cm Hiatel Hernial and my lower sphincter was weak. Thats when I was told I have a mild case of gerd, but I don't suffer from any heart burn. I was put on triple dose of antibiotics for h pylori and continued with the Tecta, domperadone and sucrolafate. I'm getting a little relief from the PPI and meds but I still suffer from bitter reflux taste and burning pain in my throat, soft Palate, the tip of my tongue and dry mouth that comes and goes. I'm in the process of having a 24 hr ph level test done. The G. I. I was seeing says my esophagus biopsy tested clean and he doesn't believe what is happening in my oral cavity is related to my gut. He stated in order for acid to travel to the throat it has to travel through the esophagus and the esophagus tested clean. Thus he can't help me anymore. I'm so confused my ENT says I have acid in my throat and the G.I. doesn't agree.

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Profile picture for cmdw2600 @cmdw2600

Has anyone been diagnosed with silent reflux or LPR? This is a condition where there is no heartburn, but acid makes its way to the throat. I have had a sore throat/throat irritation for over two years.Would like to treat without PPI and do what I can homeopathically.

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Don’t drink white vinegar in water. Very acidic on the throat and esophagus. Bad advice.

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Profile picture for cmdw2600 @cmdw2600

Yes! It is called silent reflux also. There is plenty of information in this thread. GI doctors many times prescribe drugs that are not necessarily appropriate for this condition, like PPI’s.

Dr. Jamie Koufman has written numerous helpful books but you can also sign up for her blog, which addresses quite a few topics.

Best wishes to you! Cindy

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For silent reflux it is recommended that you sleep at a 30 degree incline (or more). This may be a silly question, but as a side sleeper how do I keep from sliding down? I have some plastic wedge risers under the mattress that are about 5 inches high and I still slide to the flat part of the bed-even though that is not even thirty degrees. The wedge pillows did not work for me. My throat definitely hurts more when reclining.

Thank you for any tips!
Cindy

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Profile picture for cmdw2600 @cmdw2600

Has anyone been diagnosed with silent reflux or LPR? This is a condition where there is no heartburn, but acid makes its way to the throat. I have had a sore throat/throat irritation for over two years.Would like to treat without PPI and do what I can homeopathically.

Jump to this post

I don't mean to laugh, but I have the same issue. I spend several times during the night hoisting myself back up to the head of the bed. I believe the only answer is to have an electric bed with not only head elevation, but also knee elevation which helps the slide down process. Or some nights I sleep in my lazy- boy chair. I am a side sleeper, so it is difficult .You can buy a foam piece to put under your knees also.

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Profile picture for cmdw2600 @cmdw2600

For silent reflux it is recommended that you sleep at a 30 degree incline (or more). This may be a silly question, but as a side sleeper how do I keep from sliding down? I have some plastic wedge risers under the mattress that are about 5 inches high and I still slide to the flat part of the bed-even though that is not even thirty degrees. The wedge pillows did not work for me. My throat definitely hurts more when reclining.

Thank you for any tips!
Cindy

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You can try to tuck a bunch of blanket under your bottom. I think it helps.

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Profile picture for cmdw2600 @cmdw2600

Has anyone been diagnosed with silent reflux or LPR? This is a condition where there is no heartburn, but acid makes its way to the throat. I have had a sore throat/throat irritation for over two years.Would like to treat without PPI and do what I can homeopathically.

Jump to this post

Hi, I recommend following the dietary guidelines outlined in Jamie Koufman's book "Dr. Koufman's Acid Reflux Diet" . However, I suggest reading her first book, "Dropping Acid: The Reflux Diet Cookbook & Cure," before starting. This book delves into the scientific aspects of reflux and offers a plethora of interesting and useful recipes that may aid in managing your reflux.

Additionally, there is a dedicated website, refluxgate.com, entirely focused on treating reflux through dietary changes and other methods. I hope you find this information helpful!

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Profile picture for rosemaryhow @rosemaryhow

I don't mean to laugh, but I have the same issue. I spend several times during the night hoisting myself back up to the head of the bed. I believe the only answer is to have an electric bed with not only head elevation, but also knee elevation which helps the slide down process. Or some nights I sleep in my lazy- boy chair. I am a side sleeper, so it is difficult .You can buy a foam piece to put under your knees also.

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@cmdw2600 @rosemaryhow
I am a side sleeper with GERD and sleep apnea and I have the same sliding down issue even with an adjustable bed. I hadn't really played with the leg elevation much though, but that's a good idea to see if it keeps me from sliding down. I also have a back back though so if I am sleeping on my side shaped like a banana LOL, I may then throw out my back. I already sleep with two pillows between my knees. It's such a challenge to get situated in bed. I do know I'm still getting some elevation though because when I go to a hotel and have to sleep on a perfectly flat bed, it feels like my head is going downhill instead of flat. Very uncomfortable. I just had to put the sofa cushions in the hotel room under the head of my mattress to sleep.

Yes, it's hard for a side sleeper to sleep in the recliner. I can only be on my back in the recliner or it hurts my back, but on my back my sleep apnea is worse. It's hard to decide which problem I want to battle each night. LOL

My neighbor just turned 97. I think of all my physical challenges now and think if this is what my body feels like at 64, I can't imagine what it would feel like to be 97! Holy moly!

Good luck to all!

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Profile picture for Zebra @californiazebra

@cmdw2600 @rosemaryhow
I am a side sleeper with GERD and sleep apnea and I have the same sliding down issue even with an adjustable bed. I hadn't really played with the leg elevation much though, but that's a good idea to see if it keeps me from sliding down. I also have a back back though so if I am sleeping on my side shaped like a banana LOL, I may then throw out my back. I already sleep with two pillows between my knees. It's such a challenge to get situated in bed. I do know I'm still getting some elevation though because when I go to a hotel and have to sleep on a perfectly flat bed, it feels like my head is going downhill instead of flat. Very uncomfortable. I just had to put the sofa cushions in the hotel room under the head of my mattress to sleep.

Yes, it's hard for a side sleeper to sleep in the recliner. I can only be on my back in the recliner or it hurts my back, but on my back my sleep apnea is worse. It's hard to decide which problem I want to battle each night. LOL

My neighbor just turned 97. I think of all my physical challenges now and think if this is what my body feels like at 64, I can't imagine what it would feel like to be 97! Holy moly!

Good luck to all!

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Boy, I really can relate. Thank goodness you can laugh about it. That sure helps me too. If I could just get rid of the gerd, I could cope better with pillow support of the the bad knee and neck support. Must be a better way to keep from sliding down with my wedge. Have to admit flannel sheets on the bed and cotton sleepshirt tucked into sleep pants helps a bit!

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Profile picture for cmb1 @cmb1

Boy, I really can relate. Thank goodness you can laugh about it. That sure helps me too. If I could just get rid of the gerd, I could cope better with pillow support of the the bad knee and neck support. Must be a better way to keep from sliding down with my wedge. Have to admit flannel sheets on the bed and cotton sleepshirt tucked into sleep pants helps a bit!

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@cmb1
I just thought of the perfect solution…drumroll please…Velcro sheets and jammies! Can you imagine? 🤣

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Profile picture for cmdw2600 @cmdw2600

Has anyone been diagnosed with silent reflux or LPR? This is a condition where there is no heartburn, but acid makes its way to the throat. I have had a sore throat/throat irritation for over two years.Would like to treat without PPI and do what I can homeopathically.

Jump to this post

I also have very bad silent reflex. My main symptom is extremely sore throat upon lightning in the morning. I did some research and found out that sleeping pills, I take zolpidem when I need it, may cause acid reflux. Has anyone out there experienced the same thing with sleeping pills.

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Profile picture for rosemaryhow @rosemaryhow

So, just so I understand correctly, when you have LPR, can it also reflux up as high as your frontal sinuses. Because I am also suffering from constant nasal drip, and inability to breathe through my nose, which comes and goes, and is especially bad in the eve.. If I cannot breathe through my nose, I have a anxiety attack. I have self medicated with nose spray, Mucinex, Vicks, neosinephryn, Tylenal severe sinus, humidifier, Neilmed sinus wash, and if it helps, it is only for a very short period. If this is so, why does GI tell me they have never heard of this?? Some days I just sit and cry, and pray.

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This sounds exactly like me. I had a panic attack because I was unable to breathe. I went to the ER. They told me I have acid reflux but after tests and no heartburn I have LPR. The GI doctor just wants to treat me with ppi meds. Have have been on 3 different ones because they do not work for me. Not sure what to do. Have you found any relief?

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