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Does surgery work for Laryngopharyngeal Reflux (LPR)?
Since December 13, 2016. My symptoms started with a soar throat, soar inflamed taste buds on the tip of my tongue and inflamed salivary glands on my soft palate. My tongue, throat and soft palate had a painful burning sensation that was on and off. My General practitioner referred me to an Ear Nose throat specialist who referred me to an oral surgeon who referred me to an oral pathologist for burning mouth syndrome. After wasting 3 months of running around with these Dr's and being tested for oral thrush, hsv tests, vitamin deficiency tests, auto immune deficiency tests, cultural bacteria tests all which came back normal. I decided to go for a second opinion with another E.N.T. specialist who performed a camera scope and diagnosed me with acid in my throat. I was put on Dexilant and noticed the pain dissipate almost immediately only problem was I couldn't tolerate the medication. I was then put on Tecta and referred to a G. I. My general Practitioner did some blood work for h pylori and I tested positive. I started to develop tinitus in my left ear. I had a gastroscopy where they found a 2 cm Hiatel Hernial and my lower sphincter was weak. Thats when I was told I have a mild case of gerd, but I don't suffer from any heart burn. I was put on triple dose of antibiotics for h pylori and continued with the Tecta, domperadone and sucrolafate. I'm getting a little relief from the PPI and meds but I still suffer from bitter reflux taste and burning pain in my throat, soft Palate, the tip of my tongue and dry mouth that comes and goes. I'm in the process of having a 24 hr ph level test done. The G. I. I was seeing says my esophagus biopsy tested clean and he doesn't believe what is happening in my oral cavity is related to my gut. He stated in order for acid to travel to the throat it has to travel through the esophagus and the esophagus tested clean. Thus he can't help me anymore. I'm so confused my ENT says I have acid in my throat and the G.I. doesn't agree.
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I have silent reflux, Mac and Bronchiactisis. I used to cough a lot but since I started the Big 3/Nebulizing 7% Sodium Chloride/Levabuterol, Autogenic Clearance and bought an elevating bed, it has really helped. I became very strict with my diet by only drinking low acid coffee, no food after 6:00, cut out spicy and fried foods, carbonated drinks (except for an occasional Diet Dr. Pepper) and no alcohol. I took PPI's off and on for years to no avail so I quit completely and can really see the changes 100%. I am going to NJH in May and can't wait!
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2 ReactionsYou can diagnose LPR (respiratory or silent reflux) via a transnasal scoping done by an ENT. A low acid diet, alkaline water, Gaviscon Advance are some of the tools you can try to address it. You can get more details at Dr. Koufman's web site: https://jamiekoufman.com/. At this link you can read about a person's consult with Koufman: https://www.reddit.com/r/acidreflux/comments/x16q1h/lpr_i_paid_500_to_talk_to_dr_jamie_koufman_so_you/. I am doing several of the recommended things, and also am experimenting with putting alkaline water drops up my nose. My postnasal drip is getting better. Still have periodic sore throat but am only 2.5 weeks into trying this advice.
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3 ReactionsAfter trying traditional medicines, homeopathic methods and dietary changes for the past nine months with no effect, I will be having the Bravo meter implanted via endoscopy this Friday. My new GI doctor, who is a good listener, explains that we need to know the PH of my digestive tract in order to best treat what I have felt to be silent reflux resulting in chronic sore throat. But it could be low acid, who knows. I will report back after having this device in me until early next week.
Hoping this will be helpful to others. Cindy
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4 ReactionsYes, I too have a chronic sore throat…doctors blame it on nasal allergies draining down my throat, GERD, LPR, but no definitive answer or treatments. I will be interested in your findings…thanks for posting.
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1 ReactionBravo meter will be implanted 4/28 so I should have information on 5/2 or 5/3. I hope the test yields useful information for myself, for you and anyone else trying to find answers. Cindy
Best of luck to you! I hope you find the answers you are looking for.
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1 ReactionGood luck to you, hope you can get some answers!
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1 ReactionI had constant sore throat with gerd. Barium xray shows a lot.
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1 ReactionQuestion to those diagnosed with LPR, do you find that your symptoms are worse 1st thing in the morning, gets a little better during the day and then becomes even worse later in the eve. I sound like I have laryngitis early eve. and have a chronic cough, and feel like I am choking on my secretions. Then I panic because I cannot breathe through my nose.
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1 ReactionMy symptoms are there all day. I appreciate your note as this is how I feel. Struggling with finding answers. Comfort in numbers!
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