Does anyone have tips on showering independently with epilepsy?

Posted by hpedersen @hpedersen, Jan 27 12:38pm

Does anyone have tips on showering independently with epilepsy?

Interested in more discussions like this? Go to the Epilepsy & Seizures Support Group.

Profile picture for louissc @louissc

i went with my mum and caregiver on a 4D3N international semi-business trip meeting more familiar associates taking 4hr plane ride both ways. Admittedly the rides were comfortable ones. There's no need for me to be on a wheelchair or need any special assistance onboard. They could'nt see me without leaning forward so I was pretty much alone without drama. There's also no problem clearing immigration with all those medication as well.

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Hi @louissc
It would be wonderful if you could share your travel experience in this discussion that was started some time ago:
What preparations do you make when travelling with epilepsy?
https://connect.mayoclinic.org/discussion/what-preparations-do-you-make-when-travelling-with-epilepsy/
Thank you!
Chris

REPLY
Profile picture for Chris Gautier, Volunteer Mentor @santosha

Hi @louissc
It would be wonderful if you could share your travel experience in this discussion that was started some time ago:
What preparations do you make when travelling with epilepsy?
https://connect.mayoclinic.org/discussion/what-preparations-do-you-make-when-travelling-with-epilepsy/
Thank you!
Chris

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@santosha

Hi Chris,

There's definitely a need from the doctor providing both a stamped/signed memo stating I am his/her patient as well as the prescription list. It will be better if those can be in the visiting country's home language, Pack the medications (with spare) in the hand carry and be prepared to answer questions at the immigration/security both at home and abroad. In the end, I am glad to say immigration/security at both sides didn't have an issue with my medication and there's no need to touch the spare which I brought along because there's no delay of flights. The dry air onboard also didn't affect me. after not having been in a metal tube for over 3 years.

There's no time difference between Singapore and Taiwan, where I visited and the plane ride was only 4 hours direct so no need to recondition my body. Knowing where to go if shit happens is vital, and it's best not to travel alone.

Other than that, no special preparation to be honest. Just enjoy yourself and ssignal/tell others don't panic (it's always not me who worry my having of seizure). It's a frustration, and may even be life threathening if we do not take care of ourselves. I kept telling me it's no difference from me being left handed. The world just isn't one totally built for me and it's just another minor inconvenienve I gotta live with.

Cheers,
Louis

REPLY
Profile picture for louissc @louissc

@santosha

Hi Chris,

There's definitely a need from the doctor providing both a stamped/signed memo stating I am his/her patient as well as the prescription list. It will be better if those can be in the visiting country's home language, Pack the medications (with spare) in the hand carry and be prepared to answer questions at the immigration/security both at home and abroad. In the end, I am glad to say immigration/security at both sides didn't have an issue with my medication and there's no need to touch the spare which I brought along because there's no delay of flights. The dry air onboard also didn't affect me. after not having been in a metal tube for over 3 years.

There's no time difference between Singapore and Taiwan, where I visited and the plane ride was only 4 hours direct so no need to recondition my body. Knowing where to go if shit happens is vital, and it's best not to travel alone.

Other than that, no special preparation to be honest. Just enjoy yourself and ssignal/tell others don't panic (it's always not me who worry my having of seizure). It's a frustration, and may even be life threathening if we do not take care of ourselves. I kept telling me it's no difference from me being left handed. The world just isn't one totally built for me and it's just another minor inconvenienve I gotta live with.

Cheers,
Louis

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@louissc
Hi Louis,
Thank you so much for sharing this experience with us.
I agree that being left-handed makes no difference — or can even be an advantage! Rafael Nadal and Martina Navratilova, two remarkable tennis players, are both left-handed. With that example, I do not need to tell you that I am a tennis fan! 😊
If possible, I would appreciate it if you could share your travel preparations directly in the discussion dedicated to this subject. This might benefit members who do not follow every discussion. Would you mind doing so? Here is the link: https://connect.mayoclinic.org/discussion/what-preparations-do-you-make-when-travelling-with-epilepsy/.
If you have any trouble, please let me know.
If I understood you correctly, you are currently living in Taiwan — is that right?
Chris

REPLY
Profile picture for Chris Gautier, Volunteer Mentor @santosha

@louissc
Hi Louis,
Thank you so much for sharing this experience with us.
I agree that being left-handed makes no difference — or can even be an advantage! Rafael Nadal and Martina Navratilova, two remarkable tennis players, are both left-handed. With that example, I do not need to tell you that I am a tennis fan! 😊
If possible, I would appreciate it if you could share your travel preparations directly in the discussion dedicated to this subject. This might benefit members who do not follow every discussion. Would you mind doing so? Here is the link: https://connect.mayoclinic.org/discussion/what-preparations-do-you-make-when-travelling-with-epilepsy/.
If you have any trouble, please let me know.
If I understood you correctly, you are currently living in Taiwan — is that right?
Chris

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@santosha
Hi Chris,

Not at all. I’m more than happy to share. Apologies for the late reply due to the time difference.

Ah yes, I do know Nadal is a left hander. My dream is to watch one of the Grand Slams finals one day. Yup I’m too a tennis fan, but of the Federer & Nadal & Williams sisters era. As for politician, there’re 2 previous American presidents - Barack Obama & Bill Clinton. I think there’re more 😊

I’m a Singaporean. I visited NTUH in Taiwan. I’ll click on that link later and share what I can. Will be glad to do so.

Cheers,
Louis

REPLY
Profile picture for louissc @louissc

@santosha
Hi Chris,

Not at all. I’m more than happy to share. Apologies for the late reply due to the time difference.

Ah yes, I do know Nadal is a left hander. My dream is to watch one of the Grand Slams finals one day. Yup I’m too a tennis fan, but of the Federer & Nadal & Williams sisters era. As for politician, there’re 2 previous American presidents - Barack Obama & Bill Clinton. I think there’re more 😊

I’m a Singaporean. I visited NTUH in Taiwan. I’ll click on that link later and share what I can. Will be glad to do so.

Cheers,
Louis

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@louissc
Hi Louis, good morning!
Thank you for your quick reply! It's so nice to connect with people from different countries here in our group.
And what a lovely surprise to find another tennis fan! I also dream of watching a Grand Slam in person someday and seeing João Fonseca (Brazilian player) competing on that stage.
Have a nice day!
Chris

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