Connect
Does anyone have gluteal tendinopathy? Any successful treatments?
I have gluteal tendinopathy and am getting to the point that I can hardly walk. I've been to 8 doctors and had injections of several kinds to no benefit. I've been to physical therapy at least 10 times with very little benefit (I must have done 10,000 "clam shells" and "bridges").
The only thing that helps some and gives me a few hours of reduced pain is hydrocodone. I don't know if there's any point in pursuing more treatment.
Like
Helpful
HugInterested in more discussions like this? Go to the Chronic Pain Support Group.
Connect
@puffinmum for the last four years I have had life changing pain around glutes so joints lower sacrum and tried everything with injections and nerve desensitisation procedures . None of which helped and like yourself it just flares up and keeps me awake at night and in tears . Nothing showed on any scans on the sacroiliac joints and when I tried to exercise to strengthen it just made things worse . I had a radioactive CT scan which showed up L4/5 disc degeneration so I thought there is hope if I get that fixed. It was a major operation from the front and I am now four half months post op. It was the worst thing I could have done as not only did it not solve the original pain but it has made me far worse then ever before . I am using a stair lift and I cry every day . I have always been very active up until the op and I feel now that I will never recover . I take a very low dose pregabalin at night only but I started to take a Zopiclone for sleep when in hospital and now trying to come off is awful . I can’t see a way out of this tunnel of pain and no sleep therefore no energy and no functioning. I hope this story puts you off of any major operations and possibly steroid jabs etc . As for pregabalin well I don’t know . I only know that I don’t want to increase it and yes I think it does make nerve pain worse in my case but I am at a loss as to what to do now . If anyone else out there can help with advice I would appreciate it. I am very sensitive to any drug .
@tiny28
I am so sorry to hear what you have been- and still are- going through. I also feel that, so far, every medical intervention that has supposed to help, has made things worse. But it is hard not to keep trying in case something eases things at least a little.
Like you, too, I can’t quite believe that the active, healthy person I once was, has gone. I think we’re both dealing with a lot of grief over that.
I do so hope you find some comfort in knowing you are not alone- especially in the long dark hours at night. We will get through this, somehow! 💪🤗
@puffinmum thank you for your lovely reply and support. Yes it’s very hard to think that what we do to try and fix things sometimes just makes them worse . If only we all had hindsight . Let me know what you are trying out to help with pain and sleep . Coming off this awful sleeping pill is terrible . I hate drugs . I only take about 35 to 40 mg pregabalin which really isn’t enough for nerve pain but I am scared to take more. Paracetamol (tylenol) is useless but I won’t take opioids so it leaves nothing really . Quiviviq sometimes helps at night but they all make your muscles weak and leave you tired next day. By the way I also now have ME:CFS. 🌷
@jnjstein13
How is gabapentin so bad? What are the negative
@eunice1
For me it was causing ED and also useless. PreGabalin is much better, but still causes ED.
Where can you get shock wave? A pain management t office? Pt? Chiropractor?
Based on one of your recommendations, I i have an appointment next friday to be evaluated for shop wave.Therapy for my glut med rupture
I too have had multiple injections that do not help. This may have started 40 years ago when I injured my low back that was improperly treated. I find lidocaine patches help - I buy in bulk at Costco so cost less. I get some help from acupuncture and a chiropractor who does not do lumbar rolls. Recently began using CBD gummies. They allow me to sleep.
I fell while skiing ten years ago, landing very hard on my buttocks. I caused a deep, black band to develop across my lower back. I have had just about every treatment known to man. The only effective ones were a cocktail of meds and a spinal cord stimulator. Those stopped working five years ago. I feel as if all that original pain has returned, leaving me in terrible pain. I had a pain pump implanted three years ago, but it has not provided any relief. I am wondering which doctor might give me a real evaluation not just a cursory once over. I just had a visit to a pain specialist who gave me the standard "I don't know what else can be done" spiel. I know that this partially idiopathic neuropathy, but there has to be a correlation to my injury years ago. Thoughts?