Mayo Clinic Connect
I am on a constant quest for shoes that don’t kill my feet due to the neuropathy. I find that Spencos and Wolky shoes seem the best. Are there any other suggestions? Shoes can be just crippling for me. Horrid.
Liked by Dee
When feet hurt, I will try anything! I have bought so many pairs of shoes, that it is ridiculous. Have to try the Finns! And they are gorgeous!
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Dorisena, How did you exercise with bands on your feet? That one I have not heard of! I thought I heard of everything already! Lor Renee
I used the colored wide rubber bands and stretched my arches up and down and then had the grandkids pull the bands to the right and to the left. You can get instructions to do a whole body workout with those bands. I used to tie them to a fence at the pool in Florida and stretch while strangers stared at me, but it is a rather easy exercise and no big equipment. They are commonly used to strengthen the arms in the gym. The different colors indicate the strength of the rubber. I broke the ones in the nursing home because they were old and I was stronger than the therapist thought. I was supposed to be having therapy on my knee replacement. I left the place after ten days. About the leather soles. I may have misled you. I got better healing with leather soles before I bought Finn shoes which have hard foam soles. It is the soft foam shoes which do not give great support. I wore them in Europe thinking they would be best and the cobblestones hurt my feet so much I couldn't walk some mornings. I soaked in Epsom salt water and we used the waste basket for a pan. The hardest part was purchasing the Epsom salt when we didn't speak the language. I demonstrated my need and my hurting feet. The clerk understood.
I never buy shoes without an expert checking the fit as different styles fit differently. It helps to have straps and buckles to adjust. Every little bit helps.
Thanks, Dorisena! I use big bands to strengthen my legs, but never have used any for the feet. Hpsoave tried many things for feet, including Epsom salt in my foot whirlpool. Very soothing. Also have used it in bath jacuzzi. By the way, I find cobblestone hard to walk on, no matter what shoes!!!! Take care, Lori R.
Hi Laura, I have so much to say! Happy Mother's Day to you as well, and I am a mom of just one son, 38 years old. He is married, and I have a precious 4 year old grandson who I have babysat, full time, since he was born. Now I only babysit twice a week, as he is in preschool the other days. Are your sons married? I am glad they gave you some sweet things. My son gave me an eBay gift certificate, because I am an avid eBay shopper. I hope your sons give you joy. Although my son is intensely busy with a demanding career and graduate school, he still takes time to give me an occasional hug and kiss! He also posts nice things on facebook. I can only imagine the story behind having an Ethiopian daughter. I know one thing. You have been a miracle in her life. I hope she is healthy now, and can only imagine her suffering. I taught English as a Second Language for 25 years, so I have dealt with junior high age children from so many places in the world. Before retirement, I had many Syrian and Iraqi students who escaped those countries just to be alive. I have heard, first hand, about their sufferings in their countries. So your daughter has been blessed. You have rescued her. As far as your health change, I do not understand, nor do you, I am sure, how the cortisone shot created these changes in your leg. And for no doc to find muscle atrophy in your feet is horrible. You are right in saying that your primary doc will not be able to do anything. Since my foot problems started, the toes on my right foot have all come too close together, and one overlaps the other. The neuro doc just shrugs her shoulders. It is part of what has happened! I hope there is an answer to what is going on with you. I think the EMG will tell you the most information. It kills me that a cortisone shot should trigger problems. Has it at least, in any way, helped your toe????? God, I hope so. As far as my epidural on Wednesday, I am praying it helps. I do not feel the Physical Therapy is helping my feet at all. But it is helping with my balance, leg strength, and back strength. I think it will take the epidural, right into the spine, to reduce inflammation, and promote healing. Anyway, I have a feeling I am in the presence of an angel, talking to you. You have given your daughter a life. What more could a human being do! I will talk soon again. Please let me know how you are doing with your changes. Try to keep emotionally strong. God Bless….Lori
@lorirenee1, I wish you best of luck with the epidural tomorrow!!! Did they say how long it would take to feel the effects? I am thinking it could take a few days? How are you feeling about it all??? Aww, your comments concerning our daughter were so very kind! You must have had a lot of patience when teaching at the junior high age level. I’m sure it must have been very challenging and rewarding as well. I bet you enjoy having your grandson so close to you!! I don’t have any grandkids as yet and maybe it is just as well because I can’t chase after little ones right now!! Hmmm, that is interesting concerning your toes on your right foot. I still wonder if the chemo drugs caused any of the feet sensations that you have now. I have heard that chemo induced neuropathy may dissipate with time. But I understand the Radiculopathy diagnosis. I think it’s very common in our age group to have this. My Mom used to say, “getting old ain’t for sissies.” Almost forgot to mention that I’m getting the nerve conduction studies next Monday, May 20th. They had a cancellation! Knowing me I will probably be in there with two pages of questions! I think I need someone to perform an exorcism on my feet because last night one foot was red and hot and the other was cold. What the heck. When you feel up to it please let me know how it all goes for you. I will be thinking and praying for you!!!! -Laura
I am apparently lucky compared to most people on here. Gabapentin allows me to sleep at night almost pain free. I have peripheral neuropathy in my feet and my biggest issue is as soon as i put on any type of shoe my feet hurt immediately. It is like my feet are raw 24/7 although they look normal. It is affecting my ability to do my job and I may have to take early retirement ( I'm 62 ) or apply for disability. This would be a hardship for me financially as I am not sure my wife and I have enough savings and retirement to sustain us. Does anyone have any suggestions or a similar issue.
Hello @thomaslink, welcome to Connect. I also have small fiber PN but only have numbness. Shoes can make a difference if you find the right ones. There is another discussion which will give your post more visibility and you can meet other members with neuropathy who share your symptoms and have issues finding shoes that help them. I'm tagging our moderator @ethanmcconkey to see if we can move your post to the following discussion:
> Groups > Neuropathy > Does anyone find that a brand of shoes helps your foot neuropathy?
I've found that Sketcher's relaxed fit shoes work fairly well for me. I also found some really comfy, stretchy, easy on/off bamboo thread socks that helped with my feet. I also wear soft socks at night specifically because I don't always feel what I step on and have more than once injured my foot without knowing it by stepping on something accidentally during the night if I have to make a bathroom trip.
@thomaslink are you able to share what the biggest problem is that you have with shoes? Is it the tightness? I've also tried several types of Crocs which I sometimes wear around the house because they have a lot of room in the toe area and are fairly wide.
Liked by Retired Teacher
Thanks for your input John. Having shoes on at all ( I usually don't even tie them ) is a problem. Even having socks on is an issue although not as bad. If I wear shoes for just a few hours my feet hurt badly. I have found that the only thing that helps is icing them down. I have a pair of Sketcher's relaxed fit air cooled that are probably the best but putting anything on my feet is a problem. It's mostly the bottom of my feet. They feel raw and sore but look normal. I saw someone suggest their podiatrist had some sample shoes and am going to look at that as I am going to a podiatrist soon. I have only seen my PCP so far.
Liked by John, Volunteer Mentor
Hello, @thomaslink – I'd like to add my welcome to Mayo Clinic Connect. Glad you've connected with @johnbishop. You'll notice I moved your post here to an existing discussion he mentioned, "Does anyone find that a brand of shoes helps your foot neuropathy?" so you can meet others with similar concerns. If you click on VIEW & REPLY in your email notification, you will see the whole discussion and can join in, meet, and participate with other members talking about their or their loved ones' experiences.
That sounds very difficult that having on shoes at all is a problem with your peripheral neuropathy and they feel raw 24/7. Ouch.
Hoping that others here who have talked about challenges with shoes hurting and trying to find solutions will chime in with some thoughts and suggestions for you on this, in addition to how this is affecting your ability to do your job. Please meet @dorisena @lauraj155 @lorirenee1 @peggyn @nanashelly @retiredteacher and others.
Right now at work, do you ice your feet down sometimes, or how are you getting through your workday with the shoe issue?
@thomaslink Hi and come on in. This forum on neuropathy is filled with so many different types of problems from the bottom of the feet to other parts of the body. It seems there are pockets of pain in different places for different people. My feet sound like yours although I can wear socks and have to wear shoes because barefoot is worse for me. I have pain like walking on broken glass. I have tried several brands of shoes but as of yet I am not comfortable in any of them. I have worn Birkenstocks for decades, and though they don't soothe my feet, they are what I am used to. I wish I had an answer, but I don't. It doesn't seem that there are any answers. Has your doctor suggested anything that will help? Sometimes a podiatrist can suggest shoes; have you tried that?
I hope you can find something that will help. I hope we all can.
Liked by John, Volunteer Mentor, Lisa Lucier, thomaslink
So far the best ones for me have been. Finn. ,,expensive,, I do better in short periods of time
Liked by John, Volunteer Mentor, Lisa Lucier
Hi Laura, How are you? Is your left leg any better? So creepy to think a shot of cortisone could trigger other problems? How is your toe that had the cortisone? How are your feet in general? AND…HOW ARE YOU? To think we could have such avid foot conversations is so nuts. But there ya go!!! We have them!!!! I am so glad there was a cancellation, and you get to get your nerve conduction test early. The sooner you know something, the sooner that hopefully, something can be done!!!! And then, if that test does not give useful information, you can get the small fiber biopsies done. More information. That is good. As far as the epidural, I did have it done yesterday. After the procedure, I asked the doc if I would be able to dance. He asked if I ever danced before!!! I said, YES, of course!!! Anyway, I will not know if the procedure helped for about 3 to 5 days. He said he has had some patients that have not had help for up to two weeks, but that seems pretty crazy. So here I sit, as always, with throbbing toes. Pain level is not excruciating, so I am ok. I have learned to live with background pain. Like an old friend, that is annoying, and ya just wanna kick in the ass. But seriously, pain is not too bad as of yet today, so I am good. I will keep you posted about the epidural. I see the doc who did it in a few weeks to check on me, and possibly repeat the epidural, or a variation of. Interestingly, from a Science point of view, the doc said that most likely, the nerve roots of the spine are probably intact, because I am not getting pain in my legs, back, or butt. He guesses that tiny distal fibers of the nerves are damaged. The ones that go to far off places….like stinky feet. So I guess, he treated them. He watches an xray as he does the procedure. So anyway, I don't want to be guilty of blabbing, so I will go for now. May 20th is an important day for you. Good luck. Hang tough. We will talk…. Lori
Liked by John, Volunteer Mentor, Chris Trout, Volunteer Mentor
Thomas, I wish I had happy input about shoes, but I do not. Shoes are intensely bad for me, as well. I can change shoes easily 6 times in the morning, to find a shoe that does not kill. And ones that kill at one time, feels ok the next time. In the house, I found giant men's socks that I wear a lot, because they don't rub on anything. I hate to see you have to quite a job you need. This might sound like a crazy question, but are you able to tell a boss at work about your problem? Could you be barefoot at work, hiding feet under a desk? Could you wear a very loose sock and walk around at work? Do even very loose socks kill you? My feet feel very weird barefoot as well. Bad sensations, but better than the excruciating pain from a shoe. I keep MANY pairs of shoes in my car, because one does not last on my foot for maybe 2 hours at best. I have bought so many pairs of shoes, that it is ludicrous. It is like a quest, but there really is no answer. I should have saved my money. Anyway, I feel for you. I really do. No one understands better than a person with the same problem. Regards, Lori Renee
Oh the money I would have if I didn't keep hoping this new shoe would help me walk. I feel your pain and have no hope to offer I am so very sorry to read about so many members of this burning club,but it does bring me comfort not to feel so alone.
I had ketamine infusions but I have no encouraging words to say,yesterday was my last of five infusions,today my pain is reaching far beyond words of burning and pins and needles.
At least when I give my shoes away I know they are not worn out!!
@lorirenee1, so good to hear from you and hearing about the continuing saga—the agony of da feet…That is interesting concerning the tiny distal fibers of the nerves causing pain in the feet. Wow, who would have known? I’m glad the doctor is working with you on this and assuming you are seeing an anesthesiologist? My nerve pain is so bizarre I never know from day to day where the pain will end up. Not having leg weakness today, but had it yesterday but who’s counting?? I’m with you in trying to ignore it most of the time except walking is so important and I can’t do much of that. Hopefully your epidural will soon kick in. I remember my husband several years ago came home from work and his knee was killing him and I mean it was bad!! I got him in for a steroid shot and he didn’t think it worked…took about ten days but it hasn’t hurt him since. That shot for me did absolutely nothing but oh well I tried and hoping for more answers on Monday. You need to let me know when you feel good and all about going out dancing!!! Gotta keep the sense of humor! You are so good at that and making me laugh!!!! -Laura
@lorirenee1 Today I learned something and you have been my teacher. You wrote that you have learned to live with “background” pain. That perfectly describes how I feel at this point. Some pain is tolerable. Some becomes more tolerable when we are distracted by something or participate in an activity. So the 1-10 scale doesn’t work for us. Maybe you just call us pain warriors. Thanks for the insight. Be free of suffering today and enjoy the evening. Chris
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