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@lorirenee1

Hi Laura, I did not realize you have not had an EMG since 2005! So you are not even sure you have neuropathy?! God! And your feet hurt so bad! The steroid shot will help your toe, for sure. I am so glad you are seeing your neuro doc. It is so important. Here in Illinois, you can wait three to four months to see a neurologist. They are booked solid. Mine is from a really prestigious teaching hospital and I was so glad to see her. It has taken one year to finally get what seems like what might be a diagnosis. That is because you wait and wait to see a doctor, get results of a test, etc. As far as back pain, I have none. That is why I was so amazed by this. My first EMG done six months ago, did not show this, but the current one did. I changed neurologists and she ordered new tests, etc. I believe in always trying new doctors if you are getting nowhere. My pain is excruciating a lot. Anyway, please let me know about that toe of yours, your appointment, your exercise, etc. Be good to yourself, and only do what you can do. We are both in a lot of pain. Not for the faint of heart. Be kind to yourself, and I wish you well. Talk soon.... Lori Renee

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Replies to "Hi Laura, I did not realize you have not had an EMG since 2005! So you..."

@lorirenee1, Waiting to see a specialist can take months also. I think it may be just the way our health care system is run now, a lot of it being for profit. I’m glad that you have been such a strong advocate for yourself and were able to see the new Neurologist and get the exact diagnosis. Will they also need an MRI on your lumbar spine as well?
I had a normal EMG in 2005 and I saw so many different specialist all telling me a different diagnosis. The only thing that really helped was a very low dose of oral hydrocortisone. That tells me right there it is coming from an autoimmune condition. I had a positive Scleroderma test back in 2014. I don’t have symptoms but my doctor said I have some kind of autoimmune condition going on but I have a negative ANA. At my age now I really don’t want to give steroids another try due to the side effects and one of them being Osteoporosis. I already have osteopenia, even in my feet. I see the Neurologist on May 3rd and have been waiting for a couple of months for that appointment. I just hope that they can determine this time what this flare up is about. Believe it or not I was hiking in the mountains last October!! All we can do is keep trying!! Take care and hope you are feeling well today!!