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@lauraj155

@lorirenee1, what kind of salve did the compounding pharmacy make for you? I was going to see about an Amitriptyline and Ketamine compounded cream. I spent 136.00 for the strongest cbd/thc salve. It helps maybe just a bit. My feet never really got all the way better but definitely they became very manageable and I was able to be pretty active. I always had to wear certain shoes and changing to a different one was always a pain. Who knows...I’m just hoping I can get some answers from the neuro doc. I know it just takes time and trying to be patient. Meditation helps...I’m glad you are getting a few pain free days!! -Laura

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Replies to "@lorirenee1, what kind of salve did the compounding pharmacy make for you? I was going to..."

Hi Laura, I really have to say that I do and don't like the compounding cream I have. It costs 300 bucks for an ounce, and I would never buy it again. There are about 12 ingredients in it, including ketamine, gabapentine, lidocaine, and I have no idea what else. All of my pain is in the balls of my feet and toes. That is it. The compounding cream makes my toes very stiff, which I don't like, but takes pain away. It is very good for pain in the ball of the feet. I have a CBD salve for 25 bucks that works better. My salve is fabulous for my gnarly, achey, toes. It makes them feel human again. Please, if you want info on the salve, let me know. I swear by it, but everyone is so different. I have had a revelation today, but it may change, because it seems nothing is consistent with neuropathic pain. It seems that shoes trigger either a good or bad day. If a shoe sets off pain, I am in trouble off and on, all day. Today I am wearing a pair of very open sandals. Sometimes I cannot even wear this shoe!!! God in heaven. You have just a few days before you see the doc. Did you have a catalyst that got your pain started again, after it was manageable? Let me know how it goes Friday. I cannot wait to get my epidural on the 15th. If I wind up without pain, I am throwing myself a party, after I stop crying....